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Inner cold feeling / bones feel cold

Apr 09, 2009 - 11 comments

After 5 months,  alot of blood work, and hard work by my doctor the only thing that has turned up is an active thyroid. Hypothyroidism is what we "think" is the concern. It has been checked 3 times, and twice it was off. My doctor proscribed some medicine(Levothyroxine, lowest dose possible for now- .25 or 25) for 2 months. In 6 weeks we'll do blood work again and see if I still have the inner cold feeling.

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by michaela125, Jul 08, 2010
I have exactly the same feeling of innner cold -bones feel cold and cannot warm up!  Have you found a diagnosis??? Michelle: ***@****

by THX1167, Aug 31, 2010
We have not. Still feel the same, and just had a bad few days where I was worse, couldn't sleep well, tired, legs feel real cold and ache alittle. One night I was asleep but I was shivering so bad it shook the bed and woke up my wife. She got me another blanket(4th one) and microwaved a heating pad for me.
My local doc is going to send me out for a 3rd opinion.

by jimmyjay78, Oct 19, 2010
Unfortunately, I have possibly something similar - have had it for the last 10 years. I have had numerout tests, thyroid was fine, noting else came up funny. Personally it is as if the cold enters my bones (ankles and wrists particularly) - then the pain starts and once the pain enters I cant sleep till the 'cold' leaves my bones.... Doctors have brushed it off as possibly rheumatism or arthritis.... Try to stay out of the cold or draughts etc etc as once it enters....

by loulou654, Nov 26, 2011
I have the same thing. I have hypothyroidism and RA. Pain gets so severe i have had to sleep ina warm bath to get ANY relief. My doctor also began prescribing vit d in amounts of 50,000mg twice a week. It has actually lessened my pain. Hope this helps.

by connie87, Jan 21, 2012
I have Hypo too - 13 yrs now. Make sure your TSH numbers are staying within  1-3 and for me to feel ok I need 1.5. Keep getting tested and find a doctor who will keep your numbers where you need to feel OK or get another one NOW.
Synthroid and never in the generic, EVER. Sometimes my symptoms even look like I have too little but I actually have too much making my number go too low .05.. cannot go below a zero by the way. One would think getting too much would make me too warm but everyone is different and it is not a direct up and down (symptoms vs meds) so don't self medicate! you could be making it worse. Now go get retested till you feel better.

by married19, Jan 28, 2012
I have hypo too.  Just started the meds for it.  Then my bones started getting cold.  I am going to follow up with my doctor this week.  Hopefully that will help.  I hope this coldness *****.

by michelletremonti, Feb 05, 2012
i have had bad knee pain for about 1 year now, and within the last couple of months have had sensation of cold pain starting in the knee and radiating down the top 1/3rd of my shinbone.
i have had my thyroid levels checked several times in the past couple of years, and it had always come back normal.
any other thoughts?

by Regulus, Feb 29, 2012
To the original poster:

Find a doctor that believes in Lyme disease and get checked.

by Bone_chills, Sep 02, 2012
I have The same symptoms. Started  in my wrists and hands, now back shoulders, hips, feet and shins. I just feel cold, and my bones hurt. My doctor ordered blood works for arthritis and thyroid.
Doctor things I have tendonitis due to working long hours in a ergonomic desk. A friend f mine told me that my hips and lower body pains are due to moving to new house that has ceramic tules instead of wood floor or carpet. she might e right, lower body pains when I moved to he new house.
Will see what comes up with blood works.
Low vitamin d could be a reason also, I don't spend enough time in the sun. I will good when
My pain lowers significantlty when I warm up inthe sun.
Will look into Lynette disease.


by Bone_chills, Sep 02, 2012
I meant Lyme disease above*

by crazySue, Feb 02, 2014
A year ago I started having what I called the chills, but I now describe it as COLD in my bones, I ache particularly in my hands.  My Mom suffered from RA and was bedridden for 16 yrs.  My RA tests came back normal.  I started feeling better in the summer.  But "it" came back in October and I have have been "ill" everyday/nite since.  I was am also very dizzy.
The dizziness starts 3 months into the beginning of feeling ill.   My doc said I probably had/have a virus?  All my tests (including Lyme) came back "normal".  All I want to do is stay in bed…. getting depressed.  I feel like someone is standing on my chest and back.  I was thinking I need a PET scan…worrying about a cancer diagnosis?  Although I am not happy others are suffering, I am relieved to know I am not alone…I feel like I am going crazy and my family and friends cannot relate ~


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