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1 week down, 11 more to go ... arghh

Jun 05, 2013 - 5 comments
Tags:

Blood

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nausea

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injection

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meds



This morning completed the first full week of meds.  Had to lie down, but feared I was going to throw up.  Don't want to take an Ondansetron yet...  really is constipating leading to butt burn.  Taking my 2nd injection later today and getting a blood draw.  I sure hope it's working.  After coffee and an attempt to clear my system, I may take another of those tiny pills to calm down my gutt.  When G-d invented nausea, what was he thinking?!

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by Diana66, Jun 05, 2013
Hang in there, it is doable but some day can be a bit of a mission.

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by MarkFly1, Jun 05, 2013
Wish I knew if the meds were working.  Next week's blood draw will test for viral load.  I'll know something then.  It'll be a long week.  How are you doing?

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by Diana66, Jun 06, 2013
I am sort of ok, Bad headache for the last 2 days and throwing up everything. All of a sudden i have a lot of swelling at the base of my neck on both sides and I cannot really figure out if this are the lymph nodes going creazy from lymphoma or is a results of some muscle injury. (I had some back and neck neck manipilation late last week and I felt quite a bit of pain in the neck and sholder after that. Luckily I have a hematology specialist app next Mon so she will tell me what is happening.

Regarding your blood results next week: what counts is week 4, but if you have some good feedback next week it always helps :)
Once you get the UND results it feels like is worth it and even though it is still bad, you have one big tick on the list

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by MarkFly1, Jun 06, 2013
Thanks Diana.  You might have some edema perhaps in your neck?  Just a thought.  Be careful about manipulations though.  Good you're having your blood checked.  I fantasize that I'm already undetectable, but I wish there was some sign.  I'll just have to wait.  Today, I can hardly catch my breath.  It'll be good to get the numbers from yesterday's blood draw.  Thanks for your encouragement...these things help in mysterious ways.  I wish you weren't throwing up everything.  Is there some antiemetic you can take?

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by Diana66, Jun 06, 2013
Much better today, thank you. Yes I thought about having edema, although is weird being in that neck area. One side is better and now the other side became bigger. Crazy but might be a release and in fact maybe it was stocked for very long time and maybe only now some lymph is moving properly. We shall see...

Yea, there are not many signs to let you know is getting better. You might feel good at 7 am, crap at 10 am and good again in the afternoon. Just don't do like me, I was feeling so great one day that I thought I can get on doing some gym and also attend a party. Paid for that for the next 3 days :)))  So if you feel good, hold on that and save it for later. Also had the breathing issues for around 10 weeks, after that I think the body got used with it and started to compensate somehow. Also during the Incivek my blood pressure went up, got slightly tahicardic with 98-100 beats/min. Now only one dual tx, even though hemoglobin is still in low side, I am back to 75 beats/min and blood pressure of 115/75.

I am doing weekly blood tests due to my situation, so is interesting to see that sometimes low values do not corelate with the way I feel !!! Maybe you can ask for the results to be emailed to you. This is what I am doing so I can keep my records on file

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