Jun 18, 2013
Hello fellow brother, I can tell you was in the service from your name. I was in for 16 1/2 years. So yes it is natural to be scared, like the taught you if you are not scared something is wrong. I had my surgery July 2012. I was DX'd in May 2012 and then surgery. I did not know I had Chiari at all it was found by accident. I thought I was having a stroke one morning driving to work. I called my wife and she said call the hospital and I did and drove myself there. Turned out it was Bells Palsy, symptoms like a HA. Doc did a CT scan and found mine, and made the appointment for me. It turned out that I had a little more than just Chiara, I also had Basilar Invagination. SO it was a double whammy. I had every one of the symptoms except headaches. To watch me wald was funny cause I would do it like the old wibble wobble's from side to side. Eating out was fun, trying not to get choked out in public. So yes I know what all of what you are going through. After surgery a few things happen that I done not the surgery. I freaked out and pulled out my trach tube not once but three times, I had to have a trach tube put in so I could breath. I was kept sedated for two weeks. Until I was healed enough to not do anything crazy. My surgery was 9 hours long; they did three surgeries at once. They did the decompression and then I had four steel rods put in my spine to keep everything from going any lower and help my BI from dropping. When I did awake fully, I could move everything but had no control. So basically I was a big blob with no control. Yes, that means I couldn't walk either. I started some therapy but it was slow. My wife was told That it would be best it I was put in a nursing home cause I am not get any better. Then one doctor asked me if I was willing to do whatever it took to walk again , I told him yes. so I was put in Patricia Neal after spending 31/2 weeks in IUHealth. Then 3 weeks there. I spent the next 6 months learning to walk, eat, talk, and move again. Basically I was a 47 year old baby. All this was cause my syrinx was so large it went from C2 - C7 and had the flow about the size of a sheet of paper. I was in my home by the middle of Sept. When I left PN I told them that I would walk by the first of the year. I was still in a wheelchair and barely could stand up with the help of a walker. I had home therapy 4 days week until Oct. Then outpatient therapy two days a week. I was still in a wheelchair. But by my birthday 11/26 I was walking with a walker. By the middle of Dec I was walking. Today I am back at work and driving. I have limited motion of my neck but that is something easy to deal with long as I can play with my grandbaby.