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My own thoughts and opinions

Apr 02, 2008 08:17PM - 25 comments

I ask that medhelp please not delete this. A journal is supposed to be for our deepest thoughts and feelings, our joys and our fears. A way for us to express ourselves in situations that we have no control over. And that is exactly what I am doing, expressing my own thoughts and concerns.
  I too was hurt and betrayed by recent incidents. I thought that I would be able to put it in the past and move on. Not so. Now it has been thrown back in my face in all its glory. My opinion now is the same as it was then. How pathetic that some people have nothing better to look forward to in life but to cause others pain. I have always known that there are people in the world like that, but living in the rural area that I do, it is just not something I experience to often in life. But now I have seen it and experienced it myself.
  Most everyone on this forum was drawn here for the same reason, ovarian cancer or the fear of it. And in coming here found a community of women (and men) who showed so much care and support, that we immediatly felt welcome and felt a part of that community. So much so that many of us stayed. And those of us who did found a wealth of knowledge and a pillar of support that we were not able to find elsewhere. I have only been around for about 6 months, but the friends that I have made and the support that I have recieved make it seem a life time. I have watched everyone stick together through so much, the loss of loved ones, surgical bad news, the joy of someone finding out they are finally NED, it has become an extended family to me. Sure we have all had our ups and downs, that is to be expected, but things always worked out in the end. There will always be disagreements as we all have our own opinions. But that is what makes it so special. We are able to voice our own opinions and everyone respects that in each other. But then enter those few bad seeds. How can we let a few evil deceitful people tear down what we have all come to know and love? If we fall apart now, we have let them win. They will have accomplished what they set out to do. We are warriors, we are fighters. In some way or another, all of us are fighting CANCER, and for the moment we are winning. And we are fighting it together. If together we can stand up to cancer, then together we should be able to stand up to anything that comes our way. Cancer is what brought us together in the first place, so it should take a heck of a lot more than a few pimples on the butt of society to bring us down and ruin what we have here. There is a saying "United we stand, divided we fall" and I think that we should all think of that before we let a few sick people and a bad choice tear down the community that we have all worked so hard on building.
  In no way am I trying to undermine anyone else's thoughts or opinions. Nor am I saying that anyone is right or wrong (myself included). I am just expressing my own thoughts and opinions. I just do not want to see someplace that has done so much good for so many people fall apart at the seams. No matter what any one decides, I could never turn my back on any of you. So many of you have been there for me when I needed it, that I want to be able to give some of that back. So I hope that each and every one of you knows that I will be here whenever and for what ever you might need. And I will include all of you in my prayers that we are able to overcome this like we have been able to overcome so many other obsticals that have been thrown our way.
   Love and peace to you all, Chris

Comments
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by Morrowville, Apr 02, 2008 08:46PM
Chris,

If the forum does stop and the friends on here do leave, can someone email me at ***@****?

thanks

Morrowville

by marie3B, Apr 02, 2008 09:49PM
Chris,

You have worded this so perfectly. You have said everything that I feel. This forum took me in and helped me. It gave me new friends and made me feel that I have a whole lot of back-up. Even if everyone I've gotten to know leaves I will stay. There are women out there that will come here looking for what I was looking for. I will be here when they find this forum. I have met a few here that I think are just great women. Shari doesn't have cancer, thank God, but has become a huge source of support for me. Thanks , Chris. You are much needed on this forum.

Marie

by SimplyStar, Apr 02, 2008 10:38PM
This whole thing has affected me,  in a way that when  I tried to  help out on several different occasions,  it was like I was offering my opinion, but those opinions were deleted.  What I did then was a personal choice, I decided to curtail my postings to  just research that  I feel will benefit those with OVCA,  I blocked all "my friends" except one, so that I do not have to deal with messages. This forum is supposed to be unmonitored.  I think if we ask MedHelp to help us delete a harmful post, fine, but let us make that decision.  I am an adult, as most of us are, we all want to protect the forum from outside hecklers and false advertizing.  I do not have OVCA but I feel as close to it as is humanly possible.  When something is said on here, by anyone,  that warrents a discussion, as to right or wrong,  I trust the knowledgeable women/men on the forum to be able to sort it out. We cannot always agree on everything,  but even those of us that do have disagreements, get over it  and remain friends.  I would like to see the "delete" button only used by MedHelp, when asked  by the majority of the forum.  I know that this forum is managed by MedHelp and I appriciate that, but I also think that many of us feel an "ownership" of it now.  Marty

by silver&gold, Apr 02, 2008 10:53PM
I don,t know what has been going on here but it has obviously hurt a great many of you ladies and that is a great shame .It is true that this is a great community with people who genuinely care about each other . Nobody can or will take that away from you .
    
  Angie

by Jan214, Apr 03, 2008 04:37AM
It may be 2007, but it is always 1984 in the United States of Oceania.

by Morrowville, Apr 03, 2008 07:33AM
Dear Angie, Simply Star and Jan,

First to Jan, MedHelp deleted my messages to you.  I dont know if you had a chance to receive them.  I pray about this situation and pray you don't leave.

Angie, I will be here too--I am too new to the forum to know what happened, and find the comfort and information I get here overwhelmingly important compared to something that happened in the past before I was on here.  Yeah, it pissed me off that MedHelp took it upon themselves to delete my mesages & stuff, but I'm still not convinced that I should leave "because of THE MAN", when I get such companionship & support here.

I only hope that the ladies all stay.  One bad apple shouldn't spoil our great pie.

Morrowville (Donna)

by butterflytc, Apr 03, 2008 11:49AM
I have no CLUE what is going on..My surgery and recovery has left me in a loop..I am so sad right now the tears won't stop falling. I feel like a fool looking forward to meeting all of you..just to find out people are so angry, or saddened by something that they are leaving the forum? I really really pray, we can find away to forgive? forget? or just accept that people may be just sick, sore, scared, tired, or at the end of their rope on any given day. Words hurt yes, but saying "I am sorry please forgive me" or just understanding that someone is just having a bad day and letting it go. The board is not just for support. Sometimes people need to let the poison of Cancer out.
Oh Heck I cannot talk about what I do not know!
just please come back to our neighborhood, lets just find a way to forgive each other for whatever has happened?
I am lost without all of you
butterflyTc

by crecco, Apr 03, 2008 03:54PM
  I am not looking for a response of any kind, just taking some time to try and sort out my emotions. I sit here in tears again today over all that has happened here lately. It seems that so many have been hurt by recent events, and I share that pain. I only wish that there was something I could do to make it go away, to make things better again. It is so hard when we lose a loved one to this beast we are all fighting, but in the last 2 days I have found it is just as hard to lose loved ones because of some sick persons lies and deceits. There was a deep injustice done here, and I feel it should be made right. But how? I don't have that answer. I only wish that I did. I have a big empty feeling inside, that I know will not go away any time soon.
  For those of you have told me good bye, I will not say good bye in return. That word is to permanent for me. Instead I prefer something on the order of see you later. You were all here when I first found this forum and you welcomed me with open arms and made me a part of your loving community. For that I will be forever grateful. You showed me how much easier it was to fight this cancer with the support and care of so many people behind you, cheering you on. When you say that you will stay in touch, I hope that you mean that, because you will all be in my daily thoughts and prayers. Not a day will go by, that i won't wonder how you are doing and how you are getting along. Through all of your love and support,you have ingrained yourselves in to my life. You once were and always will be my "forever friends"
  
  I am still planning on making this summer get together happen. Now more than ever. And I hope that those of you who leave us will still consider being there, it would make it that much more special to me. For now that is my bright spot on the horizon, and I am looking forward to it more than I can tell you. To make such close friends and then to lose them in such a short period of time just does not seem fair. Our lives are to short to miss out on that kind of closeness. We all share a bond that even our life long friends cannot share with us, and that is what makes us all so special to each other.
  I believe that we were all brought together for a reason. God has brought us together here on earth, so that we may be together in heaven. Those who have gone before us will greet us with open arms, the same as we have greeted each other with open arms here.

by Morrowville, Apr 03, 2008 06:59PM
Dear Chris,

I hope the ladies who felt like they needed to leave will read your message and realize the fresh hurt they are causing to good women (Like you) who don't deserve it.

I hope to see you this summer.

Donna

by cirella, Apr 03, 2008 07:32PM
Dear Chris,
We have talked.  I hear you.  I feel the same way, that the forum should not fall apart because of some idiot.  The problem for me is that it is very hard to come back here and look at posts with objectivity.  It's not fair to judge whether or not I think they're faking but that is what I do.  So, how can I come back to offer support.  I've tried to come here and speak with friends.  I'm sorry Marty has blocked all but one.  She is someone I wanted to stay in touch with.  But, for us all, I understand.  Each of us is dealing with it in our own way.  

I know that it is my choice what posts to answer, how close to get and who to let close to me.  I am just finding it so very hard.  It was MY choice to let it go as far as it did with those people.  I don't know why I did.  I honest to God thought that God chose me to intervene with her.  I know I did nothing wrong.  I only did what my heart told me to do but I am the one who got burned.  And...others did as well, some much, much more than I.  This all makes me cry and you know what...I haven't let that out since I found out, so maybe it's a good thing.

I used to love writing in my journal.  I kept that thing for so long and then I went and deleted it all.  I wish I hadn't.  It was my journey to today.  To write in it now would leave myself open to people seeing into me.  I'm not ready for that.  I've all but put up a huge wall on my profile.  What good is that?  Is it just for me to see?  

I'm so glad that you and some of the others have kept up the forum.  It won't go away, I know that.  But, there was such a huge support system here that went back SO long that I remember some from 2006 when I first came here.  This forum really stood out from the rest of them b/c of the welcoming and supportive people.  I know that other fakers will come here.  I guess finding the right balance of support is the key.  I don't know...

I plan to meet you and whoever else can go.  Chris, you are a special lady.  Thank you.
L

by marie3B, Apr 03, 2008 07:47PM
I looked at it like this...I spent time and emotion praying for someone I thought was very sick with cancer. As it turned out I was praying for someone sick in a different way. I don't regret praying. God knows all. My pastor came to my home to pray for this person. Does he regret it? No.This happened for some reason. We'll never know why, but we can become stronger from it. Some of the posts are questionable to me. I just try to remind myself not to judge. Answer what I can and bypass what I can't answer. And in the process of answering the one time posters I get to keep in touch with the new friends I have come to treasure so much here.

Love to all,
Marie

by PinkTissue, Apr 03, 2008 08:18PM
A need a few more hugs. Pls do not get too upset over it. Really, in the end, I really feel sorry for those 'mentally ill' person who had taken advantage of us. I am in the HR line so I have seen all sorts of sad and ugly characters. I too have been dubbed and was upset over that.

I have a person in my company who had taken frequent urgent leave and medical leave claiming that she had to take care of her mother and she was ill from all the stress. In the end, someone called up her mother to check whether there is anything we could tell only to discover that it is a big lie and that her mother is perfectly healthy. Needless to say, we were all appalled that the person is willing to 'curse' her own mother to have cancer and milking sympathy from us and have her colleagues to cover her work.

Some people do genuinely have their family members who are suffering from cancer. But after helping them. we only discover that while it is true that their family members are sick, they are not the caregivers and do not even visit the sick family members - instead they used that as an excuse to get better perks.

Do I regret helping these 'mentally ill' people? Yes, perhaps to be honestly true. Angry and upset - definitely. But I always think of the positive side - of the 10 people you help, perhaps only 1 or 2 are bad hats. The rest are genuine cases that you should help.

Hugs, kisses and hugs again.
PinkTissue

by Sandymac, Apr 03, 2008 10:31PM
I really have tossed this around for the last few days.Since I'm not 100% sure of what happened, I'm at somewhat of a disadvantage but I will tell you this for what it's worth; In some ways I think it may have been better to have opened the whole thing up to let the light shine in! So much of what is kept in the dark becomes stronger, just like the monster in the bedroom when we were children.. Perhaps it would have been better to expose the person/persons for what they are.. cowardly and pitiful... Named and shamed them publicly.. Then the "intrigue" of it all would have been out in the open. The decent, caring people on the forum could have dealt with it squarely and put it behind them, and moved on to do what they do best..

I know that some have been hurt and as a result are now less trusting, but you know what--- this WILL pass-- please consider trying to put it behind you as you would a bad dream and continue doing what is so important to this forum and each other.

I'm very much hoping this won't be deleted as it is only my opinion .. and to those of you considering leaving, I urge you to reconsider ... too many people out there really count on you.

With much affection
Sandy

by AnotherKatie, Apr 04, 2008 02:11AM
I lurk but I don't post much on here as I do not have ovca.... although my heart SO goes out to all those here who do.  I came here a few years ago with lots of ovarian problems and ended up with a hysterectomy.  So many of the ladies here were awesome and I got a lot of help and suggestions with hormones, etc.  Some of my closest friends (yes online but still dear friends) to this day I met here, because they were going through similar experiences.  It is really tough not having ovaries... and then to have ovca too, like the women here do, it is horrible and overwhelming.
Now.  To get to what happened.
I agree with Sandymac.  I think it should just be said.  I hope it's OK if I venture into this and I hope I get it sort of correct.   Please MedHelp it would be so kind of you to not delete this.  
A young girl in California came on here and pretended that her mother had ovca.  She also pretended that she had lupus.  Then she pretended that her mother died.  Then she pretended that she herself had died.  It was all untrue.  She then did it again, using a different user name.  She is, obviously, a very mentally ill child, as is her mother, who I believe was involved.  Some of the ladies here, who are wonderful, kind and caring, got involved with these evil people, to the extent that they had communication such as emails and phone calls and even sent them gifts.  As a result we all feel ...  well, one can only imagine how devasted you would feel, to be betrayed in such a manner.   It was a horrible experience for the women here.  NOW some women here feel like, everyone is a potential fraud and they are afraid to reach out.
I believe that we are stronger and smarter than some little pathological liar.  I think we can continue to support each other as best as we can.  Obviously we must be aware that this a public forum and any crackpot could be posting here.  It is just a reality of the Internet.  
To be honest, some of us smelled a rat all along about "Victoria"  and "Kimmie" and I can't even remember the other names that they used.  
Trust your gut instincts ladies.  Don't let one "spoiler" ruin a nice place.  We are SO much better than these pathetic losers.
I think about you brave ladies every day and my wish for you all is that this forum can once again be a safe haven for you.  Becky said it best "Karma will take care of them".
Love
Katie


by dawnlyn, Apr 04, 2008 06:33AM
Dear Chris,

I too am fairly new here.  I do not post much, I think because I am still trying to understand and research as much as I can.  I will I hope in the future begin to post more as I feel more comfortable in doing so.  

I wanted you and the other women and men that I have communicated with to know what a very special group of people you are, and the first thing I noticed about all of you, is that you are a tower of strength.  I believe God brought me to this site and I believe that I have received, knowledge, love, caring and support from all of you.
I really needed everyone here and I hope everyone will please stay for anyone else who may need you.

Again thank you so much for everything.  

Love,

Dawnlyn

by Tybear, Apr 04, 2008 08:45AM
Thank you for posting that Katie. I'm reading everyones responses and I don't think it's fair that there is such an uproar yet so many don't know the whole story. Everyone deserves to know what happened so they can fully understand why so many of us on here are scared to reach out and trust again.
I don't know what's going on with MedHelp deleting things...I know they deleted a message I had left on a post.
What goes around comes around...the person/s responsible for all of this pain and anguish will be punished one way or another.
As for people leaving...well, that's their choice. I know many of the women on here closley and will continue to keep an eye on them and ask how they are. Their feelings and knowing they are ok are more important to me than anything else. You don't just bail on your friends, especially in their time of need.
With that in mind, no I won't be posting as much, but I will not leave. I have to many friends on here I care too much about to do something so selfish.
Love and hugs to you all...
Becky

by lvfrogs, Apr 04, 2008 09:03AM
I just wanted to say thank you to all the wonderful women on here who have helped me so much. I am still struggling for answers for medical problems, but would never have gotten the answers that I do have, if not for all the help and advice that was given to me here.  I have "met" some wonderful women that I care about and pray daily for.  I too hate see women leave the forum that have brought so much to it, but I think I understand how they must be feeling after what happened.  It may be just that they need some time. Time does help heal wounds as we (as women) all know.  

The knowledge, love and compassion on here is what makes this forum so special. I pray that it stays that way. God Bless to all of you,
Colleen

by ChrisP2236, Apr 04, 2008 09:09AM
Hi Chris,
I am so sorry that this happened - I totally missed most of it but do remember reading some posts from/about those women (and thanks to Katie for making clear what happened).  It's a shame that there are people out there like that and I can understand the betrayal and the pain this has caused.  If there is anything positive to be gleaned from this it is that there are women here who are truly giving, caring and compassionate and it's sad to think these incidents could change that.  I don't post as often as many but look forward to checking in to see how people are doing and to see if there is anything I can offer.  You have been such a support and so kind in sharing and helping others, and I appreciate the way you are dealing with this - still reaching out and offering comfort and support.  

Wishing you many blessings and big hugs, Chris P

by cirella, Apr 04, 2008 10:22AM
You know, I'm just going to say this.  I'm glad that you all who were wondering who it was are now satisfied.  Do you feel any less/more trusting?  A lot of you asked me who it was at first.  I didn't think it was necessary to say.  As I said in my journal, it doesn't matter, it could be anyone here.  This is the Internet and you never know the person behind the keyboard.  I know friendships are formed and reality is brought in when phone calls and meetings are arranged. I love that it happens that way.  But, most people never meet the people we are talking to on the forum.  And you know what?  I did have a phone number and spoke to a person I thought was who they said they were.  So there you go...reality splattered all over the sidewalk.

At the time I posted, Med Help was already involved. They knew who they were dealing with.  If the sickos were continuing to post under their profile names believe me, you ALL would have been alerted.  I am not a cruel person.  I really wish the, well now I guess the count is 3, people who "smelled a rat" would have tried to tell me at the beginning so that I didnt't waste countless hours on the computer, phone calls and suffering the humiliation of bringing my ENTIRE family in on this disgusting, emotional robbery.  I'm sorry, but you do not know how I feel and cannot presume to as well.  I honestly felt that if a person was not involved with it, that telling would only mean it was gossip.  I really do not mean any disrespect.  We are all entitled to our opinions and speculations.  I guess I just mean that if it didn't happen to you, then you cannot understand how difficult it is to try to come back and look at each post with objectivity and not say "ya right" to each one.  That is not fair to the genuine posts.  I will never tell the others who were involved to just get over it and come back.  I don't know just how much they are hurt and humiliated.  Yes, we all do have a choice whether to post here or not.  Maybe when they're ready they'll come back.

I am doing my best to get over it and get back here.  I, too, came here for answers and support and found it.  I also formed friendships here.  My way of paying it forward is to try to help others that may be in my position.  I do believe that the sickos were coming back to the forum, under different names, right after the lid was blown off.  I kept a list of those I suspected and Med Help looked into it.  I am not the only one affected.  I am not affected the worst.  And you better believe that I looked at the people who were on my friends list a little differently.  I hated that I could not trust anyone.  

Now, I have come to know that...and this is for us all...WE choose who we answer, how far to know someone and how much to let them into our lives.  We can be helpful and supportive without emotional involvement.  If a situation sounds so far out in left field, it probably is.  You are correct, Katie, we all have a gut instinct and would be wise here on the forum and in life, generally, to use it.  

Take care,
cirella

by butterflytc, Apr 04, 2008 11:46AM
I personally did not know what had happened. Now that Katie has told us all the truth..I am shocked. I mourned for that girl and her family. I was totally and utterly fooled, and believed a tragedy had happened. No I was not in contact with her personally, but the emotions and sadness I felt for her were genuine. The mood of the board sprialed by her story. So many were affected, including me. I believed it all hook line and sinker. Does this make me an internet fool? most likely. She did fool me, I mourned her passing away, as so young, and just losing her mother too. I wont mourn her again now. Am I glad the truth is out there? Yes...It has been hard knowing so many of my friends have been in pain, and not knowing why. At least now it is out there, and we can draw strength from each other again. Do I trust any of you less? No, I guess I am willing to be an internet fool, for my friends.
I look forward to getting together with all of you this summer, and believe this trip will solidify the trust I have built with each of you, and make us stronger.
I apologize for my post above, maybe I should have kept back from it all, when I had no clue what happened. I just did not want to have friends dealing with cancer, leave here hurt or betrayed, and not even no what had caused this to happen. Now that I understand, I pray you will heal emotionally, so you can stay strong physically. I am sorry if my ignorance, has hurt any of you. It is hard enough watching friends leave my world with this disease, I don't want to lose any of you, knowing you are still alive, and fighting such an awful disease alone. I truly want to be there for my friends.
Love
butterfly Tc

by gma718, Apr 04, 2008 12:13PM
I am so sick over this!!! I personally will post occassionally but have lost trust on here..this was a SICK thing to do..on a forum where real people are dealing with disease and fighting for their lives..I too felt emotional when this happended especially snce my own mother died when i was 20...I cant express what I am feeling right now ..Gia:)

by Morrowville, Apr 04, 2008 05:33PM
Hi Chris,

I will continue to be hear, and try to help, and seek help.  I still don't know the extent of what happened, to whom, and frankly, it isn't my business.

I am interested in anyone who has a need, or information that I need, and that is the reason I'm here.

I believe God will deal with the fanatics, the emotionally distraught and the liars with a much better justice than any of us could, and I count on Him to do it.

Meantime, if anyone would like a friend, I'm Morrowville (Donna) and I'm here.  (Except for next week, when I'll either be on the toilet, or having an abdominal hysterectomy.

Chris, you have been a blessing to me.  Thank you.

by survivor_susie, Apr 04, 2008 11:33PM
Uh oh.  Have I been duped, too? Oh my gosh.  I didn't know about any of this.  I've been naively posting what I think are helpful and positive responses.   Are there people out there taking advantage of people like me? Yuk.  I thought this was one safe place to go and cry, laugh, kid around and encourage people.  Maybe I should lay low for a while...Kathy

by kimmywah, Apr 10, 2008 08:45PM
Hi Chris,

I didn't understand for a while, what had been going on, but now that I've read through your journal and the subsequent comments, I have a fair idea. Unfortunately in this world, there are people that just have no decency and morals and do crappy things, and the internet seems to be a prime target for these idiots!
I came across this forum while trying to research my symptoms and since then I look forward every day to coming on here and reading the posts.  I make comments when I think it is appropriate for me (being only new) and I genuinely want to be as supportive as I can, while I wait for my own results and outcomes. If there had been this forum when my Mum was diagnosed with ovarian cancer, it would have made the fear and worry so much easier to bear, just having you other incredible woman to talk to, get support from and be informed by.
I hope that no-one leaves and please know that for one person that is terrible, there are hundreds of women who are being helped and supported by you all.  I know I am

Peace
Kim (maybe an unfortunate name to have, but my real one!!! Lol)



by lady452008, Apr 11, 2008 02:20PM
I have no idea what you all have been encountering on here that was bad, but what you said Chris was VERY WELL WRITTEN.  I've had my own issue's in my own personal life and found this site as well as others to be a MAJOR BLESSING/HEAVEN SENT.  I TRULY APPRECIATE EACH AND EVERYONE OF YOU.  With my up coming surgery next Friday on the 18th I've been out of touch with trying to get everything done.  But, even when I'm not on here I think about you all and have added a new prayer to my life and that is for everyone fighting any kind of health problem.  For years I pray each and every time I hear any kind of siren.  Now I have added this to be a regular prayer as well.  I wish everyone on here THE VERY BEST ALWAYS.  Good Health and MUCH HAPPINESS ALWAYS.......  Sharon :)

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