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Questing

Apr 18, 2009 - 0 comments
Tags:

spine

,

syringomyelia

,

Pain

,

chronic

,

apnea

,

thoracic

,

surgery

,

discs

,

help



After 7 plus years of being ill, I am on a quest to find a path to take that I haven't been down. Beginning with Carpal Tunnel, I started PT, had to have shoulder surgery after that and one month later I had Cervical spine surgery with hardware. It worked pretty well. Still in pain, a Radiologist happened to discover on a Cervical MRI, what looked like a Syrinx in my Thoracic Spine. MRI of Thoracic shows a couple of bulging discs and some damed up spinal fluid near T-8-T-9. My "caretaker" doctor at the time is a Physiatrist. We searched for a qualified surgeon, being an Orthopedic or Neuro, I was turned down by approx. a dozen local geniuses. Some looked at my films and said that they couldn't help me and some wouldn't even talk to me. I got on a medical merry-go-round with doors hitting me in the behind every place I went until I went to a pain specialist who helped me with the pain, but strong, pain, muscle, Oxy, anti-depressive meds, pt at 4 different places, tens, spinal implant trial, alternative medicine like accupunture, etc, etc., I am still a severely depressed, chronic pain patient with Mixed Sleep Apnea, IBS, Lumbar disc problems also; a tentative diagnosis of Myasthenia, and I refuse to go on disablilty! The company that I work for bought me a special $2K chair so that I am lying down designing on my computer. Lying on my back is the only position that is pain free for me. There is more to the story but you get the idea. I have been on other specialty sites and have read about a lot of people like me but no real resolutions. I thought that maybe a general medical help site might reach more people including doctors that possibly might have some ideas of where to go next. I am not the type of man that likes to talk about myself or ask for help. I spend all of me free time strapped to a couch or a $3k bed, upstairs. I like to read, search the internet. That's all I can do. That's sad. Everyone says to at least, go for a walk. I try, believe me. All I get is a limp and more pain that takes a couple of days to recover from. (I also have sciatica. I have to pay someone to do all of my chores that my wife can't do. That can't go on for long. Everytime that I watch someone doing something that I did and bitched about, and enjoyed it, I get more sad. Who or what can help me? Could it be Sanjay Gupta, MD or Dr. Johnson in California?, Cleveland Spine or the Mayo place? The last Spine speciality facility that I went to told me that my back will "never get fixed". I refuse to accept that and if I can ever retire, I will spend most of my time traveling, looking for that miracle. I have 2 golf sets for sale.






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