Odds and Ends

Goodness it has been awhile since I posted on this journal. I promised myself I was going to be so good about it. It is major helpful to go back and read what was happening when. I need to be even more specific. I need to make a timeline, the thought of it just makes me want to crawl back under the covers... waaay to much work...

OK  Things are actually going alright overall right now.

Fatigue - has lessened, I am up and about nearly all day with breaks in between, course sometimes this isn't the case and it will hit me and I have to crash. But overall much of a letup.

Lymph nodes- The armpit area is still somewhat painful and swollen. Only the L armpit as always.

Joint pain- much eased off

Muscle spasms-  nearly ceased right now  :)

Numbness, buzzing, stabbing, tingling-  On the good side right now. Still alot of pain in the evenings with the feet and legs, always much worse when I initially lie down on the couch in the evening. I am learning a bit - that if it is Automatic nervous system damage that the blood is likely pooling in the lower extremeties and maybe that is causing the pain when I lie down- the blood trying to move back upward.

Dizziness- not bad right now

Brain fog - also not bad right now :)  I feel like I can actually think and read, so nice.

Headaches- not bad at all right now

No falling or weird foot situations lately

Bladder- still much trouble with going :(  and other problems


The C Spine came back clear. Neuro is really leaning toward Autonomic dysfunction & is looking toward a couple other tests to determine. Could this be the end of being lost for me? I dare not even hope. What would it be like to have an answer for everytime someone asks what I have? What would it be like to be done searcing and being jabbed and tortured. I can only dream.

I am really looking forward to accomplishing things with the dogs this year. I need to get my scooter arranged. The insurance didn't have any provider in the network. Good grief.
Ahh the perks of living in the wastelands. lol  Luckily there are some bennies. I talked to a lady in our area who has a four wheel scooter and she gave me some tips and her thoughts- she really recommends the 4 wheel over the 3 wheel. She said driving it up to get it in the van is completely doable. yay! No expensive lift thingy. She offered to sell me one of hers since she has two, I will look into finishing with the insurance first, hope they won't balk. I am the hole in their wallet hehehe, I bet they would love to get rid of me! She wants a fair chunk of change for her extra one. I have other things I want to buy. ;-)   But alas I know I need it.

I wonder how things will go with this new guy. I am always like a deer in the headlights with a new doc. Will they be sympathetic and helpful, or clueless and worthless. :(  
I have read he is a researcher, maybe that is a good thing. The neuro likes and recommends him also, so that makes me feel good.

He said the bladder is 'neurogenic'. Oh joy, something else #@# ed up. I knew that one was coming with the problems going.

Well, how can I make my scooter look hip? Is that a play on words? LOL  Shoot I will just be glad to be able to plan things and know I can make it all day. :))

I absolutely cannot keep up with the forum now, it speeds by like a blur.  :(    I wish I knew where I belonged. I am eternally lost in the woods.

Fizzle