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Keeping Informed.. Life is Worth Living, The World Will Go On

Apr 28, 2009 - 2 comments
Tags:

glycine

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Prevention

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Safety

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vaccines

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swine flu

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Schizoaffective disorder

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clonidine

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tardive dyskinesia

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Tardive Dystonia

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Tardive Dysphrenia

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Tardive Dysmentia

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Tardive Psychosis

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Tardive Akathesia

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Tardive Myoclonus

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Tardive Touretticism



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  I can tell you that what I am experiencing now might not be quite rational. A family member took me through the city and it was sad to see all the record stores shutting down. And places I used to go (music clubs, restaurants, general places to hang out) be shutting down. And I could hardly speak or communicate But let's look back. Its the reccession. If we are all afraid of what's wrong with the economy it will continue to get worse. And the swine flu does concern me. Living in a boro of a city in the focus of the (potential) epidemic I am concerned about going to the supermarket. But is "panicking" a good idea? No. And of course the overly warm weather makes me think of global warming temperature summers and blackouts. Part of it does seem like "the end of the world". Let's stop there. It isn't..
  Now why do I have these feelings? Its the last day of the Clonidine patch and there is some standard mania/rapid cycling. But the bizzare dysphoric mania and dissociation is from tardive dysphrenia. The inability to communicate from tardive dysmentia. I will apply the patch soon and both will markedly improve. And the Zofran needs another medication to replace it. Well in working to define and have treatments for two unknown disabilities that's positive step right there. Family members are looking up unknown treatments for tardive dyskinesia for me. No one is offering medical advice. The information goes to my neurologist who can see if the study medications are worth starting me on. So I am no economist but I can tell you that if we try to figure out who is to blame for the reccession we'll waste time that could be used for solutions to help the economy. And as for climate change clean energy sources could be identified. I'd suggest you read a book (not for children although not explicit, mostly newspaper articles) from real life stories from the 1870's "Wisconsin Death Trip". It was a few small towns in that state that sunk into crime, murder, disease, arson, mental illness. Why read something that unpleasent? A good reason. Don't let history repeat itself. The pictured I posted of Pasteur vaccinating the first person against rabies is an excellent example (he would have died a horrible death otherwise, now the vaccine is standard and where used in time almost completly effective) There is a journal entry and enough public information about the swine flu (which may or may not pass over) but in having worked with researchers to identify treatments for an unknown disability and most essential a known one (the glutamate antagonists for schizoaffective) I know what's going on. Every thought is a connection betwen neurons and mine have been disrupted but when I apply the Clonidine patch soon those feelings will go away and I'll take neccessary precautions against the swine flu (I was vaccinated this year as always). And if this lack of communication continues I'll get a communication board. As the song went when I was growing up "Its the end of the world and I feel fine.". For myself only. For others with troubles I'll help them. I am concerned. And I do have some ideas I intend to take action on. Be prepared. Stay factual. Don't panic. Unite. I would say a good strategy for anyone regardless of your background or belief system.

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by paranoid_cataclysm, Aug 27, 2009
The Wall also dealt with unpleasant material but that doesn't mean it was bad either.  In fact it was quite the opposite much like that book probably is even though it deals with unpleasant material.

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by ILADVOCATE, Aug 27, 2009
Yes and I know for many people, especially growing up "The Wall" was a basic anthem. The truth is for myself it seems as if there has been a wall or iron curtain between me and society since the tardive dyskinesia advanced to the point where I was homebound (most probably because I built up a tolerance to the Flexaril and Clonidine). However, with the Vimpat, neurological functioning has improved and there still is the potential of the case study and they are seriously investigating tardive psychosis, tardive dysphrenia and tardive dysmentia with the Vimpat as a mitigating agent (this would be in a standard clinical study, what exactly they write up and find is up to multiple researchers but I've given them my input and they are interested). More importantly its enabling me to go back into the outside world. Tomorrow with a home attendant and transportation on Access A Ride I am going to a poetry reading. I would print the poem I will be reading but although its not inappropriate or offensive its a bit of a downer let's say. But although for a while it appeared as if life didn't go on and when I had the near death episode from dysphasic choking spasms, that almost became literal, the will to live prevailed. I, with supports and services will find my way back into the world and in understanding the rare neurological disabilities I acquired and the mental recovery, once the case study is understood and larger studies based on it are implemented and conclusive results found, so will other people...

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