May 19, 2009
I'm still coughing a bit from my bronchitis, but since my numbers are in the green, (asthma), I'm not at all worried about it. I'm mostly recovered as far as I can tell. A little wheezing when I laugh, but that's alright. It sounds funny, which makes me laugh even more!
My blood pressure was higher for most of today. I had one near faint earlier at the store, but recovered quickly. I kind of forgot my oxygen at home. Overall I'm doing good for all of the medication changes...
Yesterday I lowered Trileptal to 150mg, and raised Zonegran to 100mg. I'm REALLY lucky, because even on this low a dose I haven't had any seizures. I'm in the process of raising Zonegran, but don't want to go too quickly. I'll probably leave it where it's at for a couple days. Today I added B Complex (50mg of basically everything), and restarted Acetyl-L-Carnitine at a lower dose, (250mg instead of 500mg). I'll start taking Alpha Lipoic Acid later this week, (100mg).
Next week I will hopefully be starting the Mestinon... Then all I have left to do is raise my Zonegran, and hopefully get off the Trileptal entirely! Then the rest of my medications are: Toprol XL 25mg 2-3x daily, Theo-24 200mg 2x daily, Ritalin 10mg 4+ daily (every four hours while awake), Prozac 5mg daily, Guaifensin 600mg daily, Symbicort 160 2-4 puffs 2x daily, Saline Neb, CoEnzyme Q10 50mg, Omega 3, etc. I actually just realized I can't list them all, but still, less than before.
Hopefully I'm nearing the end of these medication changes... It's becoming tiring. Though, if I don't start Mestinon I'm going to have a new crisis on my hands. I'll need to raise my Ritalin and Theo-24 again. I don't want to be a hyper-caffeinated jitterbug! :(
Hopefully the doctor agrees to Mestinon instead of raising Ritalin/Theo-24, and hopefully Mestinon works! (Anyone who has used Mestinon for Dysautonomia, please feel free to let me know how well it had worked for you.)