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Not getting off Lyrica yet
Jun 01, 2009 12:00AM
- 10 comments
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Tried to wean off the Lyrica but probably did too fast so I picked back up to 3 - 25 mg a day and that does it. On less than 75 mg day the nerve pain and spine tingling was nearly unbearable.
Added DLPA 500 mg twice a day and it helps a lot with the muscle pain and stiffness. Allowed me to get a lot of cleaning done with only a little extra soreness in my right shoulder from constantly wiping the wood work.
Pain Tracker
Added DLPA 500 mg twice a day and it helps a lot with the muscle pain and stiffness. Allowed me to get a lot of cleaning done with only a little extra soreness in my right shoulder from constantly wiping the wood work.
Pain Tracker
Hi. I had to go back to 100mg twice a day because of nausea, sweating, insomnia, etc. Have now gotten a supply of 25 mg of Lyrica, and tomorrow will start at 175/day, backing off 25 in the morning.
Good luck to you.
ess
Good luck to you.
ess
What a drug, huh? It is very effective for nerve pain, I have to say, and it seems there isn't much else out there besides neurontin that does the same sort of thing.
When I tried to back off, I got very antsy, uncomfortable, and b*tchy. LOL I will stay at 75 mg day for another couple of weeks and then try dropping the night time one as I sleep great. My worst time of day is when the afternoon one wears off before i eat dinner. After dinner things calm down so Hopefully that night one can go. We will see. I really want my brain and vision back and to get rid of the leg swelling. All of these are Lyrica related.
Let me know, Ess, how you come along. I think sneaking off by 25 mg is a great plan, just give it lots of time before stepping down again. I believe slow is best, giving the body a chance to settle. Good luck!
Jessica
When I tried to back off, I got very antsy, uncomfortable, and b*tchy. LOL I will stay at 75 mg day for another couple of weeks and then try dropping the night time one as I sleep great. My worst time of day is when the afternoon one wears off before i eat dinner. After dinner things calm down so Hopefully that night one can go. We will see. I really want my brain and vision back and to get rid of the leg swelling. All of these are Lyrica related.
Let me know, Ess, how you come along. I think sneaking off by 25 mg is a great plan, just give it lots of time before stepping down again. I believe slow is best, giving the body a chance to settle. Good luck!
Jessica
Hi
It took me 6 mths to come down from 600mg a day to nothing the first time i tried to do it in 3 weeks and ended up in alot of pain so much so i added morphine to my meds and still on that now (patch form change every 72 hrs) the next time i did it slowly and although i got the bad pain again after 2 mths things were ok and my head felt like my own again it took me a yr to lose the 2 st i put on by taking it i have not had nerve pain since till this weekend and am thinking i need something to control this pain but i wont go back on lyrica again.
sam
It took me 6 mths to come down from 600mg a day to nothing the first time i tried to do it in 3 weeks and ended up in alot of pain so much so i added morphine to my meds and still on that now (patch form change every 72 hrs) the next time i did it slowly and although i got the bad pain again after 2 mths things were ok and my head felt like my own again it took me a yr to lose the 2 st i put on by taking it i have not had nerve pain since till this weekend and am thinking i need something to control this pain but i wont go back on lyrica again.
sam
Hi Sam!
Good to hear from you!
I was hoping to gain weight on the Lyrica, maybe not 2 st, but 10 lbs would be nice. So far not a pound except water weight at the end of the day.
Glad you put your 2 cents in on how long it took you to get off Lyrica, Ess and I need to follow your lead to wean off slowly. I won't be taking morphine in any form though, since I take LDN and they are not compatible.
Hope you get out of the current pain, girl!
Jessica
Good to hear from you!
I was hoping to gain weight on the Lyrica, maybe not 2 st, but 10 lbs would be nice. So far not a pound except water weight at the end of the day.
Glad you put your 2 cents in on how long it took you to get off Lyrica, Ess and I need to follow your lead to wean off slowly. I won't be taking morphine in any form though, since I take LDN and they are not compatible.
Hope you get out of the current pain, girl!
Jessica
Hi Jessica,
I was on the lyrica for about 3 mths before i put on weight and it was at the higher does 400 mg to 600mg that he weight piled on.
I came off as it messed my head up mentaly caused me mood swings and with the other drugs caused me to have a pycotic episode that and requip just didnt agree with me then again nor does diazapam but at least i can take that when things are bad and not have to wait for it to build up in my system and then decrease when i dont need it lol
take care
sam (excuse my spelling) x
I was on the lyrica for about 3 mths before i put on weight and it was at the higher does 400 mg to 600mg that he weight piled on.
I came off as it messed my head up mentaly caused me mood swings and with the other drugs caused me to have a pycotic episode that and requip just didnt agree with me then again nor does diazapam but at least i can take that when things are bad and not have to wait for it to build up in my system and then decrease when i dont need it lol
take care
sam (excuse my spelling) x
Because my insurance coverage came to an end, I hane to get off Lyrica. I have been on 225 mg daily for th epast 3 years. My pharmacist told me to stop taking one, for one week, then drop the night time for one week, then go off all together. It has only been 5 days and the pain is really noticeable. I use to be on Fentanyl to help with the breakthrough pain, and wanted to get off as many drugs as I could so stopped that and the amitryptiline. I was on neurontin before the Lyrica and they switched me over when Lyrica came out. Any suggestions would be helpful. I have chemo-induced neuropathy.
Frani T.
Frani T.
Hi Frani,
I have had a heck of a time trying to get off this drug. Down to one every other day and the bounce back nerve pain (I have transverse myelitis, MS and fibro) is excruciating. I had no trouble getting off tramadol either but this is killer. I am not sure I can leave off the Lyrica and stay sane! I can resume Neurontin I guess, but its not as effective as the lyrica. i don't have much to offer today, Frani. If you find an answer to the neuropathy, please let me know.
Jessica
I have had a heck of a time trying to get off this drug. Down to one every other day and the bounce back nerve pain (I have transverse myelitis, MS and fibro) is excruciating. I had no trouble getting off tramadol either but this is killer. I am not sure I can leave off the Lyrica and stay sane! I can resume Neurontin I guess, but its not as effective as the lyrica. i don't have much to offer today, Frani. If you find an answer to the neuropathy, please let me know.
Jessica
Thanks! I am working with my pharmacist and he is helping me get off this nasty drug. You are right, it does help with the nerve pain. I have had such an awful headache since reducing my dosage, but they suggested taking Aleve or Elavil. Well, I just finally got off the Elavil (been on it for 5 years, too) and don't want to go that route either. The neurontin gave me tics, even at the lowest dosage. I would be sitting on the couch and my leg would kick out, or my hand would jump up, and boy was that annoying. I am going to do the B-12 shot regimen. Except for the headache and slight nausea, I teel better than yesterday. One day at a time. Again, thanks and I do hope you are doing better!
I have rarely heard of anyone that does well with Lyrica. It seems to have alot of strange side effects and did not help with my nerve pain at all. When I was on Neurontin, I got up to 3,500 mgs. per day, before my doctor decided it just wasn't working for me. It was much easier to come off the Neurontin than the Lyrica, but boy am I glad I don't take that stuff anymore.
What all of this tells me, that my pain is NOT caused from nerve pain. Thats my opinion and most doctor's do not agree with me. I seem to do much better with the muscle relaxant group of drugs, since most of my pain seems to come from spasms.
Good luck to anyone that is taking Lyrica that is actually being helped by it. That drug made me feel pretty awful. It seems to have that affect with so many people. I wonder what is in it, that causes all the strange symptoms?
Jessica, I hope the new dosage helps you and relieves some of your suffering. It's a shame there are so many drugs out there and we can't seem to find one that works well for nerve pain. Of course, with some people, they swear that Lyrica makes their lives much more bearable. I would certainly rather take a pill for the symptom, than take a pain pill to mask the symptom.
Hope you feel better soon.
Best Wishes,
Heather
dx with MS in 1995
Hi Sam....I sure have missed you, dearheart. It's been a long time since we have "talked." Will send you a PM. Hugs..
What all of this tells me, that my pain is NOT caused from nerve pain. Thats my opinion and most doctor's do not agree with me. I seem to do much better with the muscle relaxant group of drugs, since most of my pain seems to come from spasms.
Good luck to anyone that is taking Lyrica that is actually being helped by it. That drug made me feel pretty awful. It seems to have that affect with so many people. I wonder what is in it, that causes all the strange symptoms?
Jessica, I hope the new dosage helps you and relieves some of your suffering. It's a shame there are so many drugs out there and we can't seem to find one that works well for nerve pain. Of course, with some people, they swear that Lyrica makes their lives much more bearable. I would certainly rather take a pill for the symptom, than take a pain pill to mask the symptom.
Hope you feel better soon.
Best Wishes,
Heather
dx with MS in 1995
Hi Sam....I sure have missed you, dearheart. It's been a long time since we have "talked." Will send you a PM. Hugs..
Hi Frani, Heather,
Your support notes come at a perfect time!
I have been off the Lyrica 2 days now and am about to crawl out of my skin. I do feel better towards the end of the day though. I can always take a neurontin if I cannot stand it, but no more nasty Lyrica for me.
Heather, what muscle relaxant(s) do you take? I take half a 5 mg valium twice a day. I want to clear out the Lyrica before trying something else. I find my antihistamine, Atarax, helps a little with the muscle spasms and nerve pain so I alternate that with Valium every few days. But it knocks me out for most of the day.
Frani, one day at a time is exactly right! hang in there, and I hope you can get some relief and get off the stuff as well. Keep posting and let me know how you are coming along. OK?
Sam, Hi, girl how are you doing this summer?
Ess, let me know how your taper goes as well.
I wish there was something that would knock out the pain, leave me clear headed and make my muscles let go and just relax. Seems like my body is one big spasm. Like walking on rocks and sitting on a broomstick!
I think I will take a cup of coffee and see if this head ache will go away. Then a nap, then when I turn into a vampire as the sun goes down, I will get to work! I always feel so much better at night. Why is that? Anyone know?
Cheers all, and thanks for your support. Let me know if I can help any of you, just wait till I get rid of this headache.
Jessica
Your support notes come at a perfect time!
I have been off the Lyrica 2 days now and am about to crawl out of my skin. I do feel better towards the end of the day though. I can always take a neurontin if I cannot stand it, but no more nasty Lyrica for me.
Heather, what muscle relaxant(s) do you take? I take half a 5 mg valium twice a day. I want to clear out the Lyrica before trying something else. I find my antihistamine, Atarax, helps a little with the muscle spasms and nerve pain so I alternate that with Valium every few days. But it knocks me out for most of the day.
Frani, one day at a time is exactly right! hang in there, and I hope you can get some relief and get off the stuff as well. Keep posting and let me know how you are coming along. OK?
Sam, Hi, girl how are you doing this summer?
Ess, let me know how your taper goes as well.
I wish there was something that would knock out the pain, leave me clear headed and make my muscles let go and just relax. Seems like my body is one big spasm. Like walking on rocks and sitting on a broomstick!
I think I will take a cup of coffee and see if this head ache will go away. Then a nap, then when I turn into a vampire as the sun goes down, I will get to work! I always feel so much better at night. Why is that? Anyone know?
Cheers all, and thanks for your support. Let me know if I can help any of you, just wait till I get rid of this headache.
Jessica
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