asking for help...

HI, my first entry...
Im a 39 yr old, used to be very healthy single mom, RN working twelve hr night shifts, active, love out doors, walked several times week and ride my horses often....blah, blah blah, Here's my thing. In August of last year, I developed muscular pain in legs (hips to kness) it was severe, as though I had done a thousand squats) it last for exactly three days. Hit out of the blue and went away. the next day I had a lesion onmy abd that looked similar to ringworm. Three days later I had a rash over my abd,upper chest and upper back, that looked like flea bites.. very itchy, very painful....this lasted for three months!! during this time I had nerve pain in my back, legs....ached generally and had a temperature that would elevate daily to 100.6. Because I work in a neonatal intensive care unit and because the rash and meds used to help with the itching was so debilitating, I was off work. At first the DX was pityriasis, but quickly changed to unknown as they said that pityriasis doesnt cause all the other symptoms I was having. At any rate, after the rash cleared, my skin is not the same, it has a mottled type appearance esp chest it does not itch however.
After coming off all the antidepressants, and atarax etc.. I realized the severe  fatique I felt wasn't just due to side effects of meds...I have now had fatique, labile temp,muscular and joint pain, occasional nerve type pain,reddened painful eyes,very sore neck,traveling althragias, pain in my feet, spot headaches, nausea comes and goes, every once in a while I get numbness in an extremity but it doesn't seem to be unilateral all the time. For first several months, I was tested for lymes,rocky mountain, other tick born illnesses,lupas,CMV,epstein-barr,CBCs and Chemistries all WNL,RA negative, had a nuclear body scan negative for tumors. I had to return to work after six months of leave or lose my postition of 17 yrs! Seeing a rehab MD she started me on Concerta, kept me on Anaprox and flexiril as need took me off all antidepressants.. also add that I cannot stay asleep.. wake often (sleep study showed I had 18 wakeful periods in eight hours) i have vivid dreams and dont feel as though I ever get stage 3,4 sleep.
Stimulant helps get me through a night shift but If I take on days Off, I mess my sleep up even more.
I recently asked (have been asking for months) for an MRI of brain and neck. To my suprise, since all other tests so far have yeilded no clues, the neck shows degenerative disk ( which I already knew), mildly centrally protruding disk C-6.0. The brain shows lesions right cerebral in periventricular and subcortical white matter. Posterior right cerebrum is a deep lesion. Saw a neuro (supposed to be really good) yesterday and was hopeful for answers. NONE. He said the lesions are not typical of MS nor are my symptoms, but admits he hasnt seen anything like this in person my age without a pathologic cause and is worried but doesnt feel an LP would yeild results. Suggested etiology probably more viral, infectious, or toxin related....ALL along I have wondered if my illness wasn't related to vacation I took in third week of July To Florida, (posssible ocean water or sea food ingestion).
I am desperate!! I havent ridden or groomed one of my horses in eight months! I have three teenage kids, boy is autisitic, I cannot exercise, After working a couple of night shifts in  row, I am wiped out completely and in pain.If I think I am having a good day and take kids to mall or movie, by thie time we get going, I am miserable. Im trying to keep in m ind that so many people deal with worse than this daily... but I am strugggling here, I don't even know what "this "is. I get frustrated because I find countless posts online with so many people searching for answers for years and years... I fear I wont be able to keep working full time.. and will lose our home, etc....I know Im not the first and only.
PLEASE if there is anyone out there who has a clue... let me know....I would be forever in your debt!  
Thank you