My Posts
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Jan 04, 2016 in the Rare Diseases Community - 1
I don't think it is true mitochondrial disease anymore. I discovered I have hashimotos hypothyroidism. Based on old labs I think I had hashimotos for over 20 years before my thyroid finally died. I also have many mutations in my methylation pathway and a primary immunodeficiency. I believe what has been happening is that upstream requirements for cel...
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Jan 04, 2016 in the Eye Care Community - 2
For those who may be interested in these sort of symptoms, after a lot more diagnostics I discovered I have angioedema (immune related swelling) which is causing (among other things) my face, sinus area and eye area to swell. It is thought this pressure on my eyes is pushing them enough for the light to refract incorrectly. We are working on the swelling. ...
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Dec 30, 2015 in the Allergy Community - 8
This is an old thread.. not sure if you are all still around.. but wanted to chirp in that I have Hashimotos and Hypothyroidism. I was muddling along.. accumulating symptoms for a long time, but it wasn't until my thyroid finally died that things exploded and the angioedema got ridiculous and I started having anaphylaxis and my allergies got so complete...
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Dec 30, 2015 in the Chronic Idiopathic Urticaria Community - 135
I have been having escalating problems for almost 30 years, but this year the idiopathic angioedema and urticarial skyrocketed and the asthma/shortness of breath (due to lung inflammation) have been poorly controlled, but not terrible. I have oral allergy syndrome and oral latex syndrome in addition to a pretty long list of allergies and recently also found ...
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Jun 25, 2015 in the Thyroid Disorders Community - 11
Gah! My hands and arms have been horribly swollen since January. My fingers go from 1 ring size larger to two. Sometimes I can't even completely close my hands. I was diagnosed in April with hypothyroid but only today got sent an article from my cousin on hashimotos. Now I'm wondering if the laundry list of symptoms I've been living with fo...
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Jun 17, 2015 in the Eye Care Community - 2
I totally get you. It took 3 years of following me before my opthalmologist had seen my vision go up down and all around enough to refer me to a neuro opthalmologist with all of his documentation -- but it was very thorough and there was no denying his meticulous findings. It was frustrating because he started with Nothing Confirmed. Then when he would see...
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Jun 17, 2015 in the Eye Care Expert Forum - 28
A related discussion, pulfrich? monocular diplopia in both eyes with failed pinhole test was started.
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Jun 17, 2015 in the Eye Care Community - 2
I am 47. Since 2005 I have had increasing diplopia in each eye (mono/vertical). It is intermittant and has progressively gotten worse (more frequent and more impairing). Typically I find it most crippling while working on the computer or reading. Sometimes it gets so bad during the day that I can't read at all, even with the computer screen at 150%. ...
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Apr 02, 2015 in the Allergies - Food Community - 110
I haven't seen a description that closely matches my experience. I'd be interested to know if anyone else is like this or know what causes it... I am not a big drinker. I learned early on that I can randomly be affected by even a mouthful of any kind of alcohol. First I feel hot, which gets worse and makes me sweaty and flushed. Then my stomach ...
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Mar 06, 2012 in the Rare Diseases Community - 1
Hi. I probably have mitochodrial disease (I'm in the last stages of diagnosis) so I'm researching it and I have some questions about it. I haven't tripped over some of the answers yet and was wondering if the community on here might have some of this information or be able to point me at some. 1. Do 'mito crashes' increase prog...