My Posts
Jun 25, 2015 in the Thyroid Disorders Community - 11
Gah! My hands and arms have been horribly swollen since January. My fingers go from 1 ring size larger to two. Sometimes I can't even completely close my hands. I was diagnosed in April with hypothyroid but only today got sent an article from my cousin on hashimotos. Now I'm wondering if the laundry list of symptoms I've been living with fo...
Jun 17, 2015 in the Eye Care Community - 2
I totally get you. It took 3 years of following me before my opthalmologist had seen my vision go up down and all around enough to refer me to a neuro opthalmologist with all of his documentation -- but it was very thorough and there was no denying his meticulous findings. It was frustrating because he started with Nothing Confirmed. Then when he would see...
Jun 17, 2015 in the Eye Care Expert Forum - 28
A related discussion, pulfrich? monocular diplopia in both eyes with failed pinhole test was started.
Jun 17, 2015 in the Eye Care Community
I am 47. Since 2005 I have had increasing diplopia in each eye (mono/vertical). It is intermittant and has progressively gotten worse (more frequent and more impairing). Typically I find it most crippling while working on the computer or reading. Sometimes it gets so bad during the day that I can't read at all, even with the computer screen at 150%. ...
Apr 02, 2015 in the Allergies - Food Community - 104
I haven't seen a description that closely matches my experience. I'd be interested to know if anyone else is like this or know what causes it... I am not a big drinker. I learned early on that I can randomly be affected by even a mouthful of any kind of alcohol. First I feel hot, which gets worse and makes me sweaty and flushed. Then my stomach ...
Mar 06, 2012 in the Rare Diseases Community
Hi. I probably have mitochodrial disease (I'm in the last stages of diagnosis) so I'm researching it and I have some questions about it. I haven't tripped over some of the answers yet and was wondering if the community on here might have some of this information or be able to point me at some. 1. Do 'mito crashes' increase prog...
Mar 05, 2012 in the Multiple Sclerosis Community - 34
Thanks Barb! I have been posting updates in my journal instead of in this thread. Someone recommended doing that, but it seems like no one sees them there, so I'm not sure that is really a good strategy. But, because people were so helpful and involved when I posted here, I thought it might be helpful to others. I have had a tremendous amount of te...
Mar 05, 2012 in the Multiple Sclerosis Community - 34
Hey, I wanted to follow up on this old thread. It looks like I am finally getting a diagnosis. Because my case was so weird, and this thread is where most of the weirdness is captured, I wanted to post the diagnosis here. It looks like it's going to be mitochondrial disease. That is where the energy of the cell doesn't replenish properly when it...
Nov 28, 2011 in the Neurology / Neurosurgery Expert Forum - 1
I have had various intermittant neurological problems for around 20 years across many systems - cognitive (more rare)[word choice, slow speech, logic impairment, short term memory impairment], muscular weakness (common), slow rhythmic tremors (mostly resting), migraine (common), hypersomnia (fairly common), urinary urgency/incontinence (more rare), blurry vis...
Feb 16, 2011 in the Neurology Community
If I stop supplementing with taurine as a test, how long until elevated levels due to supplementation will be exhausted so I can see how my functioning is without supplementation? I'm specifically looking to test functioning of muscles and neurotransmitters. I'm currently drinking 1000 - 3000 mg of taurine a day in energy drinks. Tks! Jen