"This has been such a journey. I've discovered that many (may most?) of my symptoms are related to allergies and extensive angioedema (it affects many parts of my body and the swelling gets pretty crazy (i.e., more than 10 inches in diam..."
"I don't think it is true mitochondrial disease anymore. I discovered I have hashimotos hypothyroidism. Based on old labs I think I had hashimotos for over 20 years before my thyroid finally died. I also have many mutations in my methy..."
"For those who may be interested in these sort of symptoms, after a lot more diagnostics I discovered I have angioedema (immune related swelling) which is causing (among other things) my face, sinus area and eye area to swell. It is thou..."
"This is an old thread.. not sure if you are all still around.. but wanted to chirp in that I have Hashimotos and Hypothyroidism. I was muddling along.. accumulating symptoms for a long time, but it wasn't until my thyroid finally died t..."
"I have been having escalating problems for almost 30 years, but this year the idiopathic angioedema and urticarial skyrocketed and the asthma/shortness of breath (due to lung inflammation) have been poorly controlled, but not terrible. ..."
"Gah! My hands and arms have been horribly swollen since January. My fingers go from 1 ring size larger to two. Sometimes I can't even completely close my hands. I was diagnosed in April with hypothyroid but only today got sent an arti..."
"I totally get you. It took 3 years of following me before my opthalmologist had seen my vision go up down and all around enough to refer me to a neuro opthalmologist with all of his documentation -- but it was very thorough and there wa..."
"I am 47. Since 2005 I have had increasing diplopia in each eye (mono/vertical). It is intermittant and has progressively gotten worse (more frequent and more impairing). Typically I find it most crippling while working on the computer..."
"I haven't seen a description that closely matches my experience. I'd be interested to know if anyone else is like this or know what causes it... I am not a big drinker. I learned early on that I can randomly be affected by even a mouth..."
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