I am 49 (did I really admit my age?) and diagnosed with MS nearly 3 years ago. I feel the cold a great deal and at present in UK we have lots of snow so it is on with the thermals and I wrap up at home with a blanket when cold at night or in the day if necessary. I am convinced this is MS related as I have never previously been affected in this way..it makes ...
I have been on the Ponesimod trial in UK for 2 years and it is supposed to be very similar to gilenia. I find taking an oral drug easy, have had no side effects that I am aware of and am very positive. Have not had a bad relapse since being on it apart from a bit of a wobble when I had a UTI.
It is a personal decision what drugs to take and I think that ev...
Just to say wishing everyone on the forum a safe, healthy and Happy Christmas and may 2013 bring hope, peace and inspiration to enjoy each and every day,
With love
Sarah x
I have not been on the forum for a long time, mainly because I do not want a constant reminder of my MS. Before you were unlucky enough to get cancer, I admired your strength of character and recognised someone who will never be a victim. Though all the adversities that you have endured since childhood, you have never lost your fighting spirit with whatever y...
Hi and I don't think our paths have crossed before. I have read all the replies to your post andbtheone thing that is obvious is that you are living in the unknown with worrying symptoms. Whether it I'd anxiety that is underpinning your physical symptoms or possibly something else, none of us can diagnose this. However I do believe in hope and remai...
I have been on a tiny dose for ages and just take half a 10mg tablet at might. I found that on 20mg I was zombied out in the morning so reduced this back to 10mg and then eventually took it back to 5mg which for me seems to helps me sleep comfortably, whether psychological or not..it does the trick. I tried stopping it but found I slept badly so consultant s...
So sorry that you have had such a rough ride recently but very happy that you have at last found a caring, compassionate medical team who have understood your needs and helped you to improve. No one deserves what you have been through and you are a very strong woman. I will continue to think of you and send you love and prayers.
Hugs, Sarah x
I have not been on the forum for a while and so reading this post came as a bit of a surprise and I feel completely inadequate to even know how to help or how to find the right words. Alex I am so very sorry to hear of your dx'd of cancer and the terrible suffering you are going through at the hospital both mentally and physically. I am in admiration of ...
Hi and welcome to the forum. Well done for being brave and reaching out to ask for help..this is a first step in acknowledging your ongoing health difficulties. First of all I can really understand your concerns due to your family history, don't make any assumptions.
The best thing you can do is go and talk to your doctor. Have you got someone who can...
Hi Kelly
I have been watching the forum hoping to hear how you got on and sharing your anxiety as I wait to take my daughter to a rheumatologist next wednesday (on my birthday). So I really feel for you in the next week while you wait for all your results. I am no doctor but it does not take a genius to look at all your photos and know that something is go...
