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Nov 24, 2014 in the Multiple Sclerosis Community - 4
I have not been on the forum for a very long time and somehow I accidentally clicked on the link and found myself here so thought perhaps I would just say hello although not sure anyonw will remember me. It is over 4 years since I was diagnosed and time flies. I am doing well, still on the oral drug trial in UK and think the only slight decline is that I just...
Aug 21, 2013 in the Multiple Sclerosis Community - 35
Apologies for terrible typing errors above!
Aug 21, 2013 in the Multiple Sclerosis Community - 35
Hi everyone, I am also a lurker and from posting regularly in my early days of diagnosis, I decided that I no longer needed or wanted such regular I traction on the board. So I just pop in from time to time, take stock of discussions and just have a quick look now and then. Am doing Ok, still on oral drug trial (similar to Gilenya) after ere years and do...
Jan 21, 2013 in the Multiple Sclerosis Community - 3
I am 49 (did I really admit my age?) and diagnosed with MS nearly 3 years ago. I feel the cold a great deal and at present in UK we have lots of snow so it is on with the thermals and I wrap up at home with a blanket when cold at night or in the day if necessary. I am convinced this is MS related as I have never previously been affected in this way..it makes ...
Jan 21, 2013 in the Multiple Sclerosis Community - 9
I have been on the Ponesimod trial in UK for 2 years and it is supposed to be very similar to gilenia. I find taking an oral drug easy, have had no side effects that I am aware of and am very positive. Have not had a bad relapse since being on it apart from a bit of a wobble when I had a UTI. It is a personal decision what drugs to take and I think that ev...
Dec 19, 2012 in the Multiple Sclerosis Community - 8
Just to say wishing everyone on the forum a safe, healthy and Happy Christmas and may 2013 bring hope, peace and inspiration to enjoy each and every day, With love Sarah x
Oct 30, 2012 in the Multiple Sclerosis Community - 17
I have not been on the forum for a long time, mainly because I do not want a constant reminder of my MS. Before you were unlucky enough to get cancer, I admired your strength of character and recognised someone who will never be a victim. Though all the adversities that you have endured since childhood, you have never lost your fighting spirit with whatever y...
Aug 04, 2012 in the Multiple Sclerosis Community - 18
Hi and I don't think our paths have crossed before. I have read all the replies to your post andbtheone thing that is obvious is that you are living in the unknown with worrying symptoms. Whether it I'd anxiety that is underpinning your physical symptoms or possibly something else, none of us can diagnose this. However I do believe in hope and remai...
Aug 04, 2012 in the Multiple Sclerosis Community - 7
I have been on a tiny dose for ages and just take half a 10mg tablet at might. I found that on 20mg I was zombied out in the morning so reduced this back to 10mg and then eventually took it back to 5mg which for me seems to helps me sleep comfortably, whether psychological or not..it does the trick. I tried stopping it but found I slept badly so consultant s...
Aug 04, 2012 in the Multiple Sclerosis Community - 25
So sorry that you have had such a rough ride recently but very happy that you have at last found a caring, compassionate medical team who have understood your needs and helped you to improve. No one deserves what you have been through and you are a very strong woman. I will continue to think of you and send you love and prayers. Hugs, Sarah x