Just getting the doctors to listen is a huge thing - trust me!!! We mentioned dysautonomia to Whitney's docs after checking it out on here and he poo-pooed it...but had not better alternative diagnosis other than psychosomatic and we knew that wasn't happening - even got confirmation on that from a psychologist! Anyway, keep up until they can figu...
Well there are a number of tests like the tilt table tests, but mostly its a diagnosis of exclusion I guess...still learning it all. She had so many tests that were normal results...finding a cardiologist or neurologist who knows anything about it will be helpful! check out dinet.org also.
Have you had your eyes checked? My daughter has dysautonomia and has a lot of dizziness. Her new pediatrician recommended we get her eyes checked as dysautonomia can affect them and be causing some or all of her dizziness. She did have a need for glasses and they have helped some but not all of the dizziness. You may want to look up dysautonomia too..
Have you been tested for POTS/ dysautonomia? My daughter has similar symptoms and has dysautonomia (though the tilt table test for POTS was normal). She also have peripheral neuropathy. There are forums for dysautonomia on medhelp...you can also check out dynakids.org. Good luck.
Hi. My daughter has similar symptoms and was diagnosed with dysautonomia. Many doctors don't know about it. Check out
There is a forum on medhelp about it and you could check it out. You can also check out my daughters story on this site. Good luck and keep me posted.
Have you looked into dysautonomia at all? My daughter has all of these symptoms and she was diagnoed with dysautonomia. She also has peripheral neuropathy. There is a forum here on dysautonomia - check it out.
I had the same kind of pain and they did an ultrasound looking for gall stones and I didn't have any. But after a few more months and no answers as to why I was in so much pain, the doctor ordered a nuclear hyda-scan of my gall bladder. Wa - la that showed my gallbaldder was totally non-functioning. I had no stones but it had just quit!! Could be a ne...
My 9 yr old daughter is the same. She can barely walk for the pain in her feet, her hands are getting worse as well. We have much more testing to go through but the neurologist said she has this neuropathy and autonomic dysfunction. She's been started on gabapentin but it's not helping yet. But we aren't at full dosage yet.
See a good ne...
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