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Aug 11, 2014 in the Hepatitis C Community - 15
Hi bean, It's good to hear from you. From what I understand it's the combo of sovaldi an olysio that's considered "investigational" for non responders to triple tx (i.e. incivek and boceprevir). The third denial was from a third party, so I guess that's the way it goes. New meds soon, we hope. thanks! Advocate1955
Aug 08, 2014 in the Cirrhosis of the Liver Community - 3
I don't know a lot about end stage liver disease, but I had a friend here on the forum (creewoman) who had end stage. The types of complications that she had included her electrolytes being imbalanced with potassium too high or too low. Lactulose, hydration, and proper nutrition are very critical for esld. The balance is critical. Not enough lactulos...
Aug 08, 2014 in the Hepatitis C Community - 15
My hubby's insurance (Regence) denied Sovaldi/Olyssio for him as well. We appealed three times, and they denied each time. The reason they gave was that it was "investigational" for people like him (who have treated and failed before) and therefore not covered. Try to find out the reason why aarp is denying it and see if your doctor will hel...
Aug 08, 2014 in the Hepatitis C Community - 23
Karen, I'm sorry to hear this too. I know how hard you fought and how you pushed through treatment working full time and with so many complications. Prayers up for a successful TACE and speedy transplant. Keep us posted. Advocate1955
Jul 17, 2014 in the Hepatitis Social Community - 33
Congratulations to you, OH! What a day to celebrate! Advocate1955
Jul 17, 2014 in the Cirrhosis of the Liver Community - 14
So sorry to hear this news Lynn. Sending up prayers. Advocate1955
Jul 13, 2014 in the Cirrhosis of the Liver Community - 60
Hi D1on, I'm sorry to hear your Auntie is still so up and down. Unfortunately End Stage Liver Disease is a very unpredictable disease. The liver begins to fail and continues to fail. Sometimes that is a gradual process, sometimes it is a quicker process. Sometimes other organs begin to fail too. Sadly, because her liver isn't functioning proper...
Jul 13, 2014 in the Hepatitis C Community - 5
So, the hepa did appeal the decision and the insurance company (Regence) did deny both of the appeals. He saw his hepa in June and his liver is still compensated and liver function is still good, no signs of HCC. I don't know if she'll appeal with the insurance company again, or just wait until new meds (sovaldi/ledipasvir) come out later this yea...
Jul 13, 2014 in the Cirrhosis of the Liver Community - 14
Hi Lynn, Of course I don't know the specifics of your co-worker's brother's situation, and I don't know the specifics of Swedish; however, based on my experience at UW Medical Center's transplant center (when I was accompanying another forum member, creewoman, to her appointments there - creewoman passed away of liver failure last su...
Jul 13, 2014 in the Hepatitis C Community - 42
I'm so sorry to hear these words "failed treatment". My husband and I know exactly how you feel. He has failed three previous treatments. His insurance company (Regence) denied sovaldi/olyssio for him even after 3 appeals by his hepatologist, so I doubt she will appeal again. I presume we will be waiting for sovaldi/ledipasvir later this ye...