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Jul 17, 2014 in the Hepatitis Social Community - 28
Congratulations to you, OH! What a day to celebrate! Advocate1955
Jul 17, 2014 in the Cirrhosis of the Liver Community - 14
So sorry to hear this news Lynn. Sending up prayers. Advocate1955
Jul 13, 2014 in the Cirrhosis of the Liver Community - 60
Hi D1on, I'm sorry to hear your Auntie is still so up and down. Unfortunately End Stage Liver Disease is a very unpredictable disease. The liver begins to fail and continues to fail. Sometimes that is a gradual process, sometimes it is a quicker process. Sometimes other organs begin to fail too. Sadly, because her liver isn't functioning proper...
Jul 13, 2014 in the Hepatitis C Community - 5
So, the hepa did appeal the decision and the insurance company (Regence) did deny both of the appeals. He saw his hepa in June and his liver is still compensated and liver function is still good, no signs of HCC. I don't know if she'll appeal with the insurance company again, or just wait until new meds (sovaldi/ledipasvir) come out later this yea...
Jul 13, 2014 in the Cirrhosis of the Liver Community - 14
Hi Lynn, Of course I don't know the specifics of your co-worker's brother's situation, and I don't know the specifics of Swedish; however, based on my experience at UW Medical Center's transplant center (when I was accompanying another forum member, creewoman, to her appointments there - creewoman passed away of liver failure last su...
Jul 13, 2014 in the Hepatitis C Community - 42
I'm so sorry to hear these words "failed treatment". My husband and I know exactly how you feel. He has failed three previous treatments. His insurance company (Regence) denied sovaldi/olyssio for him even after 3 appeals by his hepatologist, so I doubt she will appeal again. I presume we will be waiting for sovaldi/ledipasvir later this ye...
May 19, 2014 in the Hepatitis C Community - 27
Make sure your Mum's doctor is a hepatologist, a doctor who specializes in the liver. Call him/her today and explain what happened over the weekend so that he/she can advise you. Advocate1955
May 18, 2014 in the Hepatitis C Community - 5
My husband is a prior non-responder to 3 previous treatments, most recent Triple tx with Incivek. G1a. Cirrhosis. His hepatologist wrote a prescription for Sovaldi-Olysio, and his insurance company denied it stating that it was investigational for prior non responders to Incivek. After the good results on this combo for prior non responders came out afte...
May 18, 2014 in the Hepatitis C Community - 27
If you can't reach her doctor's office and the on-call doctor, please take her to an emergency room, preferably one that is associated with a research based/ university based medical center. But she needs immediate medical attention. Advocate1955
May 17, 2014 in the Cirrhosis of the Liver Community - 60
I'm glad your Auntie is in a nursing home where she can have full time care. I'm also glad that she's eating and drinking more. At this point, she seems to be doing as well as can be expected. There will still be ups and downs with her HE and her ascites. She may develop skin infections or overall edema. She may develop bleeding varices. ...