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Nov 04, 2014 in the Multiple Sclerosis Community - 22
Alex you have sparked a thought provoking topic. I have asked why me a couple of times. I know that I am no better or worse a person than the next but I have asked. I have also longed for my old life that I probably took for granted. I miss being able to do all the things I used to. Just being able to do something silly like walking the dog would be ...
Nov 02, 2014 in the Multiple Sclerosis Community - 7
The every two week dosing is why my neuro suggested it and I tolerate Avonex okay. I really wanted to do an oral DMD but after discussion we decided Tysabri was the way to go. While I have not had a relapse He is concerned about disability. Waiting for my first infusion will let you know hoe it goes. Hugs Tracy
Oct 18, 2014 in the Multiple Sclerosis Community - 7
Thanks for all help. While I have not had any relapses while on Avonex, and we discussed Techfidera and plegirdy, HE felt that the best chance I have for lessening for disability is Tysabri. The once a month option sounds great and if it helps with disability I am good! I am JCV negative. Thanks again.. I will keep you posted on how it goes.
Oct 16, 2014 in the Multiple Sclerosis Community - 7
After my recent visit to my neurologist we discussed changing my dmd. He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
Aug 31, 2014 in the Multiple Sclerosis Community - 41
HI... Juust saw your post, At the time I got my bioness I was with Coventry Insurance of Delaware. I was completely shocked they coverd all the costs. Now I am with United healthcare. I need one for my left leg and they will not cover any of the cost at all. I do love it it works great!
Aug 31, 2014 in the Multiple Sclerosis Community - 41
HI... At the time I got my bioness I was with Coventry Insurance of Delaware. I was completely shocked they coverd all the costs. Now I am with United healthcare. I need one for my left leg and they will not cover any of the cost at all. I do love it it works great!
Aug 09, 2014 in the Multiple Sclerosis Community - 23
Thank You! Reading these responses just sums up everything! Even well-meaning people just do not get it. The one I hear all the time when I say I am exhausted is..."Oh I didn't sleep well either. Little do they know I may have slept for 8 hours - like Ess said...tired all day go to bed tired, and wake up that way. I also want to ask ...when you...
Jul 30, 2014 in the Multiple Sclerosis Community - 10
JJ you are right the constant adapting and changing to what is the new "normal" in our lives is a exhausting... necessary but still exhausting. I think Alex hit the nail on the head when she said we deserve a vacation from this! I would be happy with a day a week where I could walk and move like my pre MS self! just to get stuff done!!! ...
Jul 25, 2014 in the Multiple Sclerosis Community - 7
awesome Kyle! way to go
Jul 11, 2014 in the Multiple Sclerosis Community - 6
WOW.. I have been having the same problem. Left calf has woken me up several times the past week alone. My spasticity is going nuts... Going to see a neuro who specializes in spinal cord issues to see what he recommends, my regular ms specialist suggested it when I inquired about botox. Anything has to help cause I need sleep!!!