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Jul 20, 2015 in the Multiple Sclerosis Community - 30
Funny this post hit home. My life consists of working 7 days week and taking care of my home. it takes me so long to do anything that my free time is spent doing this. My animals bring a smile to my face. there really isn't time for fun and my mobility issues prohibit me from doing much. Former friends no longer have the time or patience for my m...
Nov 04, 2014 in the Multiple Sclerosis Community - 22
Alex you have sparked a thought provoking topic. I have asked why me a couple of times. I know that I am no better or worse a person than the next but I have asked. I have also longed for my old life that I probably took for granted. I miss being able to do all the things I used to. Just being able to do something silly like walking the dog would be ...
Nov 02, 2014 in the Multiple Sclerosis Community - 7
The every two week dosing is why my neuro suggested it and I tolerate Avonex okay. I really wanted to do an oral DMD but after discussion we decided Tysabri was the way to go. While I have not had a relapse He is concerned about disability. Waiting for my first infusion will let you know hoe it goes. Hugs Tracy
Oct 18, 2014 in the Multiple Sclerosis Community - 7
Thanks for all help. While I have not had any relapses while on Avonex, and we discussed Techfidera and plegirdy, HE felt that the best chance I have for lessening for disability is Tysabri. The once a month option sounds great and if it helps with disability I am good! I am JCV negative. Thanks again.. I will keep you posted on how it goes.
Oct 16, 2014 in the Multiple Sclerosis Community - 7
After my recent visit to my neurologist we discussed changing my dmd. He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
Aug 31, 2014 in the Multiple Sclerosis Community - 41
HI... Juust saw your post, At the time I got my bioness I was with Coventry Insurance of Delaware. I was completely shocked they coverd all the costs. Now I am with United healthcare. I need one for my left leg and they will not cover any of the cost at all. I do love it it works great!
Aug 31, 2014 in the Multiple Sclerosis Community - 41
HI... At the time I got my bioness I was with Coventry Insurance of Delaware. I was completely shocked they coverd all the costs. Now I am with United healthcare. I need one for my left leg and they will not cover any of the cost at all. I do love it it works great!
Aug 09, 2014 in the Multiple Sclerosis Community - 23
Thank You! Reading these responses just sums up everything! Even well-meaning people just do not get it. The one I hear all the time when I say I am exhausted is..."Oh I didn't sleep well either. Little do they know I may have slept for 8 hours - like Ess said...tired all day go to bed tired, and wake up that way. I also want to ask ...when you...
Jul 30, 2014 in the Multiple Sclerosis Community - 10
JJ you are right the constant adapting and changing to what is the new "normal" in our lives is a exhausting... necessary but still exhausting. I think Alex hit the nail on the head when she said we deserve a vacation from this! I would be happy with a day a week where I could walk and move like my pre MS self! just to get stuff done!!! ...
Jul 25, 2014 in the Multiple Sclerosis Community - 7
awesome Kyle! way to go