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Oct 18, 2014 in the Multiple Sclerosis Community - 7
Thanks for all help. While I have not had any relapses while on Avonex, and we discussed Techfidera and plegirdy, HE felt that the best chance I have for lessening for disability is Tysabri. The once a month option sounds great and if it helps with disability I am good! I am JCV negative. Thanks again.. I will keep you posted on how it goes.
Oct 16, 2014 in the Multiple Sclerosis Community - 7
After my recent visit to my neurologist we discussed changing my dmd. He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
Aug 31, 2014 in the Multiple Sclerosis Community - 38
HI... Juust saw your post, At the time I got my bioness I was with Coventry Insurance of Delaware. I was completely shocked they coverd all the costs. Now I am with United healthcare. I need one for my left leg and they will not cover any of the cost at all. I do love it it works great!
Aug 31, 2014 in the Multiple Sclerosis Community - 38
HI... At the time I got my bioness I was with Coventry Insurance of Delaware. I was completely shocked they coverd all the costs. Now I am with United healthcare. I need one for my left leg and they will not cover any of the cost at all. I do love it it works great!
Aug 09, 2014 in the Multiple Sclerosis Community - 23
Thank You! Reading these responses just sums up everything! Even well-meaning people just do not get it. The one I hear all the time when I say I am exhausted is..."Oh I didn't sleep well either. Little do they know I may have slept for 8 hours - like Ess said...tired all day go to bed tired, and wake up that way. I also want to ask ...when you...
Jul 30, 2014 in the Multiple Sclerosis Community - 10
JJ you are right the constant adapting and changing to what is the new "normal" in our lives is a exhausting... necessary but still exhausting. I think Alex hit the nail on the head when she said we deserve a vacation from this! I would be happy with a day a week where I could walk and move like my pre MS self! just to get stuff done!!! ...
Jul 25, 2014 in the Multiple Sclerosis Community - 7
awesome Kyle! way to go
Jul 11, 2014 in the Multiple Sclerosis Community - 6
WOW.. I have been having the same problem. Left calf has woken me up several times the past week alone. My spasticity is going nuts... Going to see a neuro who specializes in spinal cord issues to see what he recommends, my regular ms specialist suggested it when I inquired about botox. Anything has to help cause I need sleep!!!
Jul 04, 2014 in the Multiple Sclerosis Community - 2
Waiting to speak with neuro. do not want the pump. No desire to have something permanently in my spine and having to walk around with the pump. Especially hard to hide under clothes etc... and my ms is Not public knowledge...we shall see what he says
Jul 02, 2014 in the Multiple Sclerosis Community - 2
My spasticity has gotten so bad that it is really affecting my walking. I am on the max dosage of Baclofen and am looking into alternatives. Has anyone had Botox as a treatment? How are you all that also suffer from this handling it? Help!