My Posts

1 - 10 (of 441) posts
Jul 20, 2015
"Funny this post hit home. My life consists of working 7 days week and taking care of my home. it takes me so long to do anything that my free time is spent doing this. My animals bring a smile to my face. there really isn't time f..."
Nov 04, 2014
"Alex you have sparked a thought provoking topic. I have asked why me a couple of times. I know that I am no better or worse a person than the next but I have asked. I have also longed for my old life that I probably took for granted. ..."
Nov 02, 2014
"The every two week dosing is why my neuro suggested it and I tolerate Avonex okay. I really wanted to do an oral DMD but after discussion we decided Tysabri was the way to go. While I have not had a relapse He is concerned about disabi..."
Oct 18, 2014
"Thanks for all help. While I have not had any relapses while on Avonex, and we discussed Techfidera and plegirdy, HE felt that the best chance I have for lessening for disability is Tysabri. The once a month option sounds great and if ..."
Oct 16, 2014
"After my recent visit to my neurologist we discussed changing my dmd. He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc....."
Aug 31, 2014
"HI... Juust saw your post, At the time I got my bioness I was with Coventry Insurance of Delaware. I was completely shocked they coverd all the costs. Now I am with United healthcare. I need one for my left leg and they will not..."
Aug 31, 2014
"HI... At the time I got my bioness I was with Coventry Insurance of Delaware. I was completely shocked they coverd all the costs. Now I am with United healthcare. I need one for my left leg and they will not cover any of the cost..."
Aug 09, 2014
"Thank You! Reading these responses just sums up everything! Even well-meaning people just do not get it. The one I hear all the time when I say I am exhausted is..."Oh I didn't sleep well either. Little do they know I may have slept ..."
Jul 30, 2014
" JJ you are right the constant adapting and changing to what is the new "normal" in our lives is a exhausting... necessary but still exhausting. I think Alex hit the nail on the head when she said we deserve a vacation from this!..."
Jul 25, 2014
"awesome Kyle! way to go"