WOW.. I have been having the same problem. Left calf has woken me up several times the past week alone. My spasticity is going nuts... Going to see a neuro who specializes in spinal cord issues to see what he recommends, my regular ms specialist suggested it when I inquired about botox. Anything has to help cause I need sleep!!!
Waiting to speak with neuro. do not want the pump. No desire to have something permanently in my spine and having to walk around with the pump. Especially hard to hide under clothes etc... and my ms is Not public knowledge...we shall see what he says
My spasticity has gotten so bad that it is really affecting my walking. I am on the max dosage of Baclofen and am looking into alternatives. Has anyone had Botox as a treatment? How are you all that also suffer from this handling it? Help!
Update spoke with my friend today, her aunt has an appt. with a neuro next Wednesday.
she is concerned as something is definitely wrong. but is waiting until she sees the doctor to completely freak out, unfortunately not an ms specialist but that appt. would have taken 3 months.
Found out more info - this was her pcp. Had brain mri nurse practioner called her on the phone and said well no brain tumor but you have primary progressive ms. They said no need for neuro we can treat you here. After flipping out for a day she has researched and found an ms specialist and is making an apt for a full battery of tests. And she is looking ...
She told me the dr thought she had a brain tumor. did the mri and said no its MS. I kind of thought SPMS too cause never heard of the tier 2 either. told her to take a deep breath and make an apt with an ms neurologist.
I told her how many tests I had and while every case is different she needs to do research and get another opinion!
Have a great eve...
A very good friend of mine told me her Aunt was dx'd with MS. When I asked questions she told me she had one mri and was told she had "Tier 2" MS.... Has to be the fastest MS diagnosis on record! Now we all know what we have gone through to get a dx. The dr isn't even a neuro... told her to have her aunt get an appt. with a neuro asap - p...
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