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Aug 17, 2015 in the Multiple Sclerosis Community - 14
Thanks, Corriel. Good luck with your uro study. I hope you don't retain, too.... <3 Aspentoo... I'm just fortunate enough (and drug sensitive enough) that it could be the meds messing with me even if I only took it once. ;) Have had some retaining days since they took out the cath. It makes me wonder though... meds or relapse? My TN is a...
Aug 14, 2015 in the Multiple Sclerosis Community - 12
That's awesome!! It's so nice to talk with others who can relate. :)
Aug 14, 2015 in the Multiple Sclerosis Community - 14
Sorry for the delay in my reply. I finally saw a urologist who took out the catheter on my request. He said that there's no way that taking mirabegron once could cause that kind of retention and that it would likely happen again in the coming days even though I had quit taking it. He suggested a visit to my neurologist and that I keep going with the othe...
Aug 11, 2015 in the Multiple Sclerosis Community - 14
So, home from ER now with a catheter I have to keep for at least a week!? I'm going to try to see a urologist tomorrow and hopefully put an end to this nonsense. Mine is on vacay til September, but hopefully someone can see me. When she scripted me these meds she said I'd probably be self cathing which she would teach me at my next appointment....
Aug 11, 2015 in the Multiple Sclerosis Community - 14
I was retaining 240 ml before starting any meds. They said the two would work together to stop incontinence and stop the retention, too.... Not quite! I finally got through to my urologist's office and they said I have to go to the ER right away. I had hoped not, but at least hopefully they can resolve it for me.
Aug 11, 2015 in the Multiple Sclerosis Community - 6
The waiting is hard. I had Lhermittes for a short while in 2011/12 and have the bladder issues still now. I know neither of those are fun or easy to deal with. I have no advice to offer, but hope that your symptoms will go away and that you'll get some clear answers as soon as may be. Best to you xx Laura
Aug 11, 2015 in the Multiple Sclerosis Community - 14
I started two new meds for my bladder yesterday. Mirabegron and tirazosin (off label). Does anyone take these for a neurogenic bladder? I took my first dose of mirabegron yesterday at lunch (21 hours ago) and haven't used the bathroom in about 20 hours. I know that's a long time, and I'm waiting for a call from my doctor. Anyone else h...
Jul 10, 2015 in the Multiple Sclerosis Community - 5
Thanks for the brochure link. I've been dealing with this off and on for 15 years, but am just getting the tests done. I've had numerous UTI's but don't have one at the moment. Thanks again :)
Jul 09, 2015 in the Multiple Sclerosis Community - 5
Ok, that sounds like something I can do. It gives me hope to hear that you've been able to stop cathing. Those epic floods are a nightmare... have had those now and again for the past 15 years and they always manage to happen at the worst possible times. <3 I see a urologist August 10th, but could see the head of the MS department at a research...
Jul 09, 2015 in the Multiple Sclerosis Community - 29
So sorry that you've been dealing with TN. Thanks for sharing all of the info your neuro shared with you about the various drugs and relapse info. I had some experience with TN in 2012 and 13 and know it can be a monster! I hope yours disappears as mine has. Laura