My Posts

8 posts
Sep 25, 2012
"I do have low vitamin levels and disk issues...buldging ones to be exact. Yeah, I've had the full cervical, thracic and lumbar MRI's and I'm unsure about the CINE? The first NS I saw is a Chiari specialist but he didn't offer muc..."
Sep 25, 2012
"I sure wish I could be more helpful besides the fact that I am only two weeks into topamax and the only side effects I have are tiredness and everything I eat tastes werid. I have only lost 6 lbs - I'm not sure if more is to come off. Wh..."
Sep 25, 2012
"My NS doesn't want to do the CM surgery yet because my migraines are under control (so far) but the muscles in my neck and shoulders are still very sore so I got a second opinion. The second opinion is the same. No surgery yet but the se..."
Jul 01, 2012
"My check up at Albany Med in NY is July 13th. I've started a journal and will tell him all about PT. I'm also going to tell, not ask, for a referral so I can go to where my mom goes in Syracuse. He seems great out there. We were also deb..."
Jul 01, 2012
"It is a chiari specialist that sent me for pt, he wants surgery to be the last option but he said I 'baffle him' because sometimes my headaches aren't always in the back of my head so he labeled me a 'mild chiari case' which may be true ..."
Jun 28, 2012
"Ok...so, my neurologist has me doing PT, and muscle relaxers and massage to help with the tenseness and pain in my neck and shoulders before we rule out that surgery is the best option. My malformation is just big enough to operate. When..."
Jun 08, 2012
"Thank you momma <3 I feel a little better already, just that I can post whatever and people aren't going jump all over my bandwagon because they know EXACTLY what it feels like :)"
Jun 08, 2012
"Hi everyone, I was officially diagnosed a month ago with Chiari when my doctor also told me that it was discovered four years ago after a cat-scan was done one night after fainting at work. Nice right? The roller coaster of feeling l..."