My Posts
Sep 25, 2012 in the Chiari Malformation Community - 3
I do have low vitamin levels and disk issues...buldging ones to be exact. Yeah, I've had the full cervical, thracic and lumbar MRI's and I'm unsure about the CINE? The first NS I saw is a Chiari specialist but he didn't offer much outside of just pain meds so I sought the second opinion. This is when I got hooked up with a neurolog...
Sep 25, 2012 in the Chiari Malformation Community - 13
I sure wish I could be more helpful besides the fact that I am only two weeks into topamax and the only side effects I have are tiredness and everything I eat tastes werid. I have only lost 6 lbs - I'm not sure if more is to come off. What kinda symptoms do you have?!
Sep 25, 2012 in the Chiari Malformation Community - 3
My NS doesn't want to do the CM surgery yet because my migraines are under control (so far) but the muscles in my neck and shoulders are still very sore so I got a second opinion. The second opinion is the same. No surgery yet but the second Neuro hooked me up with a pain management specialist that wants to try a tens unit (something I haven't tried...
Jul 01, 2012 in the Chiari Malformation Community - 6
My check up at Albany Med in NY is July 13th. I've started a journal and will tell him all about PT. I'm also going to tell, not ask, for a referral so I can go to where my mom goes in Syracuse. He seems great out there. We were also debating on the Chiari Institue..any ideas on that place? I've read mixed articles
Jul 01, 2012 in the Chiari Malformation Community - 6
It is a chiari specialist that sent me for pt, he wants surgery to be the last option but he said I 'baffle him' because sometimes my headaches aren't always in the back of my head so he labeled me a 'mild chiari case' which may be true I guess, idk but I know when I'm hurting and its a bad day...im in bed so idk. The PT has me d...
Jun 28, 2012 in the Chiari Malformation Community - 6
Ok...so, my neurologist has me doing PT, and muscle relaxers and massage to help with the tenseness and pain in my neck and shoulders before we rule out that surgery is the best option. My malformation is just big enough to operate. When i started PT, the therapist did admit that I was his first chiarian but not his fist neck/shoulder pain so I had mixed feel...
Jun 08, 2012 in the Chiari Malformation Community - 5
Thank you momma <3 I feel a little better already, just that I can post whatever and people aren't going jump all over my bandwagon because they know EXACTLY what it feels like :)
Jun 08, 2012 in the Chiari Malformation Community - 5
Hi everyone, I was officially diagnosed a month ago with Chiari when my doctor also told me that it was discovered four years ago after a cat-scan was done one night after fainting at work. Nice right? The roller coaster of feeling like you're going crazy because you're not being listened to is exhausting both physically and emotionally. I must ...