My Posts
Jun 15, 2015 in the Aneurysm Community - 1
I am now on my 3 year anniversary from toxic NMS medicines. I was told that the medicine would cure my chronic cluster headaches. It caused my brain to rupture. Now on my 3rd year. I suffer everyday with polyneurapthy to severe OSW to post stroke symptoms everyday. I cannot keep my oxygen levels above 85 if i lay down. The hospital refuses to update my medi...
Jun 06, 2015 in the Stroke Community - 1
I wish i could help you. My grandmother went through the same thing, but she fell first, later some time later! like in her later 80's she was in a coma. Your grandmother is still young. She is going to need a lot of love, & yes it is going to a long road, especially for you. She is going to get upset. She also is going to maybe end up with vascular ...
Jun 06, 2015 in the Stroke Community
I had a ruptured anurism from toxic medicine, called Abilify and also was given 3 shots of Haldol, because i trusted my doctor. He had told the Mayo clinic to give me 7 shots of different neuroleptics. I had no idea, until the Mayo shipped me 300 miles to another hospital. By the time i got home i realized i had shower shock and could not figure out how to op...
Jul 22, 2014 in the Neurology Community - 21
Have u been checked out for vasculitis? There r multible types. Please mention to ur neurolist. Also, if it gets really bad, the doctor could order a skin biopsy. I am not a doctor, but i have had those signs but more when i am in a stationary position like sitting to long, or laying down, etc. I do have demylination disease, tho, but that was from a mistake...
Jul 10, 2014 in the Leukemia & Lymphoma Community - 18
Just wanted to let u know, when u r on medicare, make sure u go to dept. of aging in ur state, & have them set u up with a medi-gap coverage to cover the other 20 percent so u wont have any co-pays! Medicare only pays 80 percent, 7 believe me, your bills will rack up without one!(usually fr a good plan, its under $150.00 a month, & 'ship' ca...
Jun 28, 2014 in the Leukemia & Lymphoma Community - 8
Hi. I dont want to bother with all my symtoms in the past, but i did want to mention 1 thing that a neurolist once prescribed me for my cluster headaches, & it made things worse, BUT, i JUST WANT TO MENTION IT TO YOU, CAS IT CAUSED SO MUCH SWEATING THAT MY FINGERS WERE ACTUALLY POURING SWEAT OUT OF THEM! (woops, sorry about the cap letters!) Has your doct...
May 26, 2014 in the Neurology Community - 21
No one ever told me i was having multible strokes, & my doctor still is denying them, when they show up on my history! I went to multible hospitals, & not 1 hosp. was told of my strokes, & they gave me neuroleptics!, which is 1st thing a doctor takes a person off of, not give them! Also i just noticed some time ago, the 1st hosp. DNR me! I now hav...
May 24, 2014 in the Leukemia & Lymphoma Community - 39
Hi Ken. I think u r fantastic! I wanted to let you know you have been 1 of the most/best contributors of this site! I vew been through hxxl for last 3 years, & i had nothing wrong with me till the divorce, which the state managed to lose the records n transcripts as of last week! Not sure if i told u how many doctors have "moved on", & even ...
May 17, 2014 in the Bipolar Disorder Community - 14
As far as i am concern, this drug can kill you, if u have problems with heart & stroke issues. The doctor who put me on it was a quack! Actually there were 2 of them. I was suppose to have an appointment with my neurolist for an anurism, & i arrived a few hours early with my brother, cas what i thought might be cluster headaches, were actually multibl...
May 08, 2014 in the Leukemia & Lymphoma Community - 3
Just wanted to let u know, i had a lot of ur symtoms, & Ken is really smart when it comes down to topics like what u r experiencing. My first time i ever got ill, besides my long history of cluster headaches due to nautious fumes, mostly paint & carbon monoxide poisoning for over 25 years. BUT never got the ill feelings like you r talkin about like 11...