Hey, you don't have to feel alone! I found out just back in Feb of this year that I have MSK! I too suffer with pain, pings and pangs mostly. I cramp and my back hurts a lot.
Try to stay possitive. Its not easy I know. I don't feel like doing much of anything any more and I use to be so active.
Go to You Tube and type in Medullary Sponge Kidney an...
I am so sorry that you are dealing with MSK. I hate the fact that anyone has to deal with this evil disease.
I have back pain all the time. Lower mostly but sometimes its between the shoulders too. Doctors are so lame, they tell you You shouldn't have back pain, you shouldn't have pain at all unless you are passing a stone.
thats Crazy! I am in pa...
I don't think that's what I have it doesn't sound like me. I have to go aften but I drink a lot of water.
I cramp but it's in the groin area which is due to MSK. I burn sometimes but if I drink a lot it helps
All my urine tests are neg!
Oh I'm sorry I wasn't clear. I have only been treated for MSK! I was just wondering if it could be PKD not MSK. My nephro and urologist say they don't know how to treat MSK. It's rare! Not enough research has been done as of yet. I haven't seen a doctor about PKD because they say it's MSK
Back in Feb.2012 I was told I have Medullary Sponge Kidney ( MSK ) with Cortical thinning of the left Kedney and my right Kideny is inlarged just a little. My Question is Could I have Both MSK and PKD?
I have cysts in Both kidneys but what i have read It seems to me that thats what PKD is ,the problem is I don't know anyone in my family with PKD or MSK!...
I have noticed I get bumps on my face a chest that look sorta like a pimple but there is nothing to them. If I try to scratch them they just run clear then the next day their gone! I never had them till I started having MSK problems. I don't get but a few a week but it's kinda strange! I have changed my diet though and I drink a lot of water. Maybe ...
I have something else to ask too
What test do you take to find out if you do have a UTI? Regular urine tests come back negative! How do they find out?
I know I have a UTI because it burns and I cramp a lot. Plus my back hurts in between my shoulders and lower back.
Hey everyone, I'm sure it's a crazy question but
I'm just not finding Doctors that have answers for me. A kidney doctor that's never even seen a patient with MSK. A urologist that knows nothing about it and my regular never even heard of MSK and he's been a doctor for 40 years. OMG is there a doctor in the house, REALLY?
I to have MSK. I know what you are talking about
As far as your back hurts, flank pain, run down
No energy at at least I don't have any energy!
I also feel bloated a lot! It's like I have a bolder
In my side that just festers all the time.
My urine test are always negative too! I have seen
Specialist and so far no luck at all. They just put
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