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Nov 03, 2008 11:32AM in the Thyroid Disorders Community
I was kept less than 24 hours after my TT in Jan. 08. 24 hours later, I was at the emergency room - I couldn't breathe. I told them I thought I had pneumonia (never had it before, but I have an primary immune disease which results in no antibodies against pnuemonia). 13 hours later, a pulminologist is called in to read the x-ray taken during the first hour...
Oct 28, 2008 03:21PM in the Thyroid Disorders Community
Could someone give me a list of what my endo should be measuring and what the numbers should be? I had TT and modified neck disection for papillary in January '07, RAI 200mCi February '07. I had spread to cervical and mediastinal lymph nodes. I am NOT happy with my endo, and will be finding a new doc in January (waiting for benefits enrollement at work to ...
Oct 27, 2008 03:19PM in the Thyroid Disorders Community
One more thought - your surgeon or a dermatologist can inject cortisone into the scar to decrease redness and swelling. I had a few spots along my incision that were puffier than the rest and felt tight/pulling. The surgeon who did my TT also does facial reconstructive surgery and when he saw those areas in a follow-up a month after surgery, popped a shot i...
Sep 29, 2008 10:07AM in the Thyroid Disorders Community
The swelling could be a salivary gland. I had 200mCi for papillary in February '08 and have been having some problems with my salivary glands, most of it showing up in the glands below the ear lobe. Before that, I had no idea that there is a gland below the ear. If you had spread to lymph nodes, the whole body scan you had before the RAI would have shown...
Sep 15, 2008 01:44PM in the Thyroid Disorders Community
I've HAD it with my endo; I need someone who's a THYROID specialist, not a diabetes doc. I'm dealing with a papillary recurrence and need someone who's aggressive with this stuff, not a "wait-and-seer". I'm in Indianapolis - tell me about your great Indy area thyroid cancer endo. Any IU Cancer Center patients out there?