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Laryngomalacia
May 01, 2008 01:11AM in the Cerebral Palsy Community
Thank you thank you thank you. All I wanted to hear. We are on the same page here. I agree wholeheartedly with quality over quantity... I have decided that I will take him to the surgeon and ask for some patients he has done it on and then speak to their families - if most of them had no improvement, then my choice will be obvious. How is Ashleigh doing ...
Hire a Lawyer or Not?
Apr 27, 2008 05:06AM in the Cerebral Palsy Community
Busy with a lawsuite. It is pure hell - having to relive every single minute of that time. I don't encourage people to do that. It is necessary but honestly, I wish I could back out. My son suffered a brain injury during a simple surgery. Their reasoning is that he was like "that" before and I was just so incompetent that I couldn't pick up his severe de...
Laryngomalacia
Apr 20, 2008 03:28AM in the Cerebral Palsy Community
It started shortly after the accident. It was only off and on but is now present constantly. It seems that he won't outgrow it because it is caused by floppy tissue - his whole bndy is floppy. A sleep study was done that excluded sleep apnoea at that time. We went back to ENt becuase for one, the noise is driving me nuts! and the most important, he has ...
Laryngomalacia
Apr 19, 2008 10:47AM in the Cerebral Palsy Community
My son has laryngomalacia. He had a sleep study that turned out normal. The ENT said that he needs an operation to remove the floppy tissue in his throat area which is blocking his airway and that he might need a tracheostomy in the near future. Has anyone had that operation? What exactly is done? Doesn't one need the tissue in your throat????
Laryngomalacia
Apr 19, 2008 10:46AM in the Children - Special Needs Community
My son has laryngomalacia. He had a sleep study that turned out normal. The ENT said that he needs an operation to remove the floppy tissue in his throat area which is blocking his airway and that he might need a tracheostomy in the near future. Has anyone had that operation? What exactly is done? Doesn't one need the tissue in your throat????
Advice, vent, help
Apr 19, 2008 10:42AM in the Cerebral Palsy Community
Your story is very similar to mine, scaringly similar. My biggest fear is to go into his room one morning, and he had stopped breathing. My question to you is...how did you deal with his death?