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Acute cerebullar ataxia? 15m old
Jan 28, 2008 02:17AM in the Neurology Community
Thank you for your post. We aren't getting anywhere fast with Dr's right now. Yes we saw pediatric neuro Dr. We went to what is supposed to be one of the top pediatric hospitals in the country. Child magazine rated it the top one. When it came to the nurses and other staff I would agree completely. The dr's are another story. At least the ones we saw. Some we...
15m old losing ability to walk and more
Jan 24, 2008 07:59AM in the Neurology Community
Just a quick update. My ped dr called me the other day after speaking to Connor's Neuro dr and she managed to get the diagnosis out of them. They THINK he has post viral cerebellitis with ataxia. It is not something I am finding a whole lot of info on. At least not personal stories. I want to know what other families have really gone through not the easy answ...
15m old losing ability to walk and more
Jan 24, 2008 07:48AM in the Neurology Community
That is something that my husband and myself have asked them to check for but so far they are dragging their feet about it because they have their minds set on something else. I am going to ask my primary ped dr on Tuesday to test him for it. She knows us and knows what we have been through and thank God she listens to us. Hopefully she will give us a script ...
15m old losing ability to walk and more
Jan 24, 2008 07:44AM in the Neurology Community
Thank you so much for that info. I didn't happen to see that show but I am going to go to that website and hopefully they will have that story. I am hoping to print it up and bring it to me ped dr on Tuesday. I never thought of that and will definatly do some checking.
15m old losing ability to walk and more
Jan 22, 2008 11:24AM in the Neurology Community
As I have said in am earlier post my son was just released from Children's hospital of Philiadelphia. He has been followed by a team of dr's but they don't seem to be coming up with more than Acute Cerebullar ataxia. The cause is not known at this time. At least that is what they are telling me. The answer to all your questions above are no he doesn't have an...
15m old losing ability to walk and more
Jan 22, 2008 10:23AM in the Neurology Community
I can't post his MRI report as I do not have it yet. I tried to get the report before I left the hospital but they wouldn't let me. They said that they would have to send it to me and I have already put in the request. I will post it as soon as I get it. My son was born 9/28/06. He is 15 months old now. His birth was normal. He was a vaginal birth with lab...