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HELP!!!! Has anyone heard of Stiff Person Syndrome?
Sep 04, 2008 09:12AM in the Multiple Sclerosis Community
Hi Bob, I am sorry that Elizabeth was dx'd with this. There is a wonderful website, National Organization of Rare Diseases (NORD) that has a lot of info about rare diseases. I got the information below from About (dot) com. I will see if I can get into the database at NORD and get some more info for you. Stiff person syndrome (also called Moersch-Wolt...
Please help, Severe pain in bone, nothing relieves it...
Sep 03, 2008 03:43PM in the Arthritis Community
Hi there, I am so sorry you are having all this pain. You need to be seen by a rheumatologist. They can check and see if you have rheumatoid arthritis, lupus, ankylosing spondylitis, etc. I have arthritis in my spine and I get pain similar to yours and I take a bunch of medication but it doesn't take the pain completely away. I feel for ya, Sweetie. So...
A shoulder to cry on, please.
Sep 03, 2008 02:12PM in the Multiple Sclerosis Community
Count me in, Sweetie!!! That would be so fun, even if its on scooters!!! We could rent some go-carts and fly our way through!!! hehehe Bumper cars??? Oh Kathy, I am so, so, sorry about this news. I don't know what to say, other than I will always be there wielding my shield and battle ax for you. I feel so bad about this and not being able to be there...
They found Parvovirus B19 in my marrow....
Sep 02, 2008 03:27PM in the Multiple Sclerosis Community
They said it was active because of the titers? When I got the lab report all it said was positive for parvo B19. I know when the Dr is looking it up on the computer they have to click on test to get more details of the test. I also have positive titers for EBV but that one said it was inactive. Who knows? Love Ya, Ada
They found Parvovirus B19 in my marrow....
Sep 02, 2008 03:21PM in the Multiple Sclerosis Community
I forgot to tell you where to find that article, its from Suite101. If someone sees my brain, can you please, please tell it to come home????!!!!! hehehe Ada w/her tail between her legs......
They found Parvovirus B19 in my marrow....
Sep 02, 2008 07:21AM in the Multiple Sclerosis Community
hehehe!!! Have a cup for me, I'm at my daily limit of a potful already and still seeing the fuzzy's in me eyeballs!!!! They didn't do the genetic mapping like they said they were with the marrow but seems they did a full infectious disease panel. I cannot wait to hear what the I.D. drs have to say...... Love Ya, Ada