yes I was also tested for lyme's disease and everything else under the sun. The biggest concern is the results of the muscle biopsy and I am hoping with those results that I got, that there could be another cause that produce the same muscle result and was told that there is not. I have received many different diagnosis' over the last 5 years and all of them ...
My biopsy experience. Date was March 16 2008. EMGs are actually not very painfull. The muscle biopsy is like going for surgery depending on how big they are cutting, mine was 5 inches. You will be heavily sedated but not to the point of requiring assisted ventalation. You will be very knocked out during the biopsy. I did not feel anything once they got the se...
Dear readers:
I have been reading many posts on here and I am curious why everyone thinks the worse? I HAVE ALS and I wish I didn't, why is it that everyone assumes that there is something seriously wrong. ALS is rare only 3500 new cases a year in North America. It strikes at an average age between 40-70 years of age. Although rare, it can happen in a yo...
Thank you for your input and any others wanting to post please feel free to do so. I just do not want to believe it is ALS and looking for other possible causes. I have had 2 opinions and both concurr that it is ALS but i can't believe it.
Doc.
As I had stated, I was officially diagnosed with ALS but I have been thinking, maybe they are wrong so I am letting you my pathology report from the mayo clinic.
Frozen section: the muscle fibers vary from 5 to 80 um is diameter. Fibers smaller than 25 um occur singly or in groups, with up to 13 fibers per group. Necrotic or regenerating fibers are ...
Finally after several years I have a diagnosis. Amyotrophic Lateral Sclerosis. I had a breathing crisis and went into hospital and there they did every test under the sun. I also had a feeding tube put in aswell at that same stay. After the testing, they did a final test, a muscle biopsy and it was there that they determined that I had ALS. I am scared now an...
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