My Posts
Oct 01, 2014 in the Chiari Malformation Community - 1
So it has been basically a year and a half since my surgery and for a little over a month now I have been experiencing moderate-severe headaches a few times a week and now they are at the back of my head again. And now I'm getting sharp pains that travel from the top right side of my head to the back almost right where my incision was. Anyone have a clue...
May 08, 2013 in the Chiari Malformation Community - 2
i had my decompression surgery march 13, 2013. they took out my c1 and some bone from my skull and put in a cadaver patch. my question is, though im feeling great, are there activities i need to avoid from now on? i got the ok to run so im slowly working my way up to that. but i mean like, should i avoid roller coasters or anything now? or should i be ok?
Apr 01, 2013 in the Chiari Malformation Community - 1
This started a few days ago. I've tried everything and thought maybe I had sprained the tips of these two fingers, but they aren't swollen. The pain is like a throbbing/sharp feeling. I don't know if it has anything to do with my decompression surgery or not. So any help would be great. I had my surgery march 13, 2013.
Mar 16, 2013 in the Chiari Malformation Community - 7
Thank you all for the well wishes and prayers. Everything went swimmingly!
Mar 06, 2013 in the Chiari Malformation Community - 109
my treasure this week is getting to see my little brother and sister this sunday. probably the last time i get to romp around with them for a while. molly is 6 and has ACM1, syrinx, scoliosis, mental health probs (ptsd, early onset bipolar, and adhd) and was born with a cleft lip and palate so shes my superhero. and logan is 3 and is getting tested for chiari...
Mar 06, 2013 in the Chiari Malformation Community - 23
i kinda get that but its more of a hot flash like, the feeling when you have a high fever. but it only comes when i have my period. my symptoms all seem to flare pretty high when i get my period
Mar 05, 2013 in the Chiari Malformation Community - 9
sending good thoughts your way sweetie!
Mar 05, 2013 in the Chiari Malformation Community - 5
i cant take aspirin because i have surgery next wednesday and my nl said no caffeine
Mar 05, 2013 in the Chiari Malformation Community - 5
these cramps are killing me and i cant take aspirin, i cant have caffeine either. so what do i do? what can help?
Mar 04, 2013 in the Chiari Malformation Community - 16
it does stink! i have the opposite problem in the shower. the water has to be BLAZING for me to even feel it be luke warm. only reason i know its that hot because of how red my skin gets afterwards and because its up almost all the ways lol