Return to Profile page Friends |  Notes |  Posts |  Status
Blank
My Posts
are there things i should avoid doing now?
May 08, 2013 in the Chiari Malformation Community - 2
i had my decompression surgery march 13, 2013. they took out my c1 and some bone from my skull and put in a cadaver patch. my question is, though im feeling great, are there activities i need to avoid from now on? i got the ok to run so im slowly working my way up to that. but i mean like, should i avoid roller coasters or anything now? or should i be ok?
pain in tip of thumb and pointer finger?
Apr 01, 2013 in the Chiari Malformation Community - 1
This started a few days ago. I've tried everything and thought maybe I had sprained the tips of these two fingers, but they aren't swollen. The pain is like a throbbing/sharp feeling. I don't know if it has anything to do with my decompression surgery or not. So any help would be great. I had my surgery march 13, 2013.
PRAYER THREAD ~~~ ambyj
Mar 16, 2013 in the Chiari Malformation Community - 7
Thank you all for the well wishes and prayers. Everything went swimmingly!
TUESDAY'S TREASURES ~~~~~2013
Mar 06, 2013 in the Chiari Malformation Community - 68
my treasure this week is getting to see my little brother and sister this sunday. probably the last time i get to romp around with them for a while. molly is 6 and has ACM1, syrinx, scoliosis, mental health probs (ptsd, early onset bipolar, and adhd) and was born with a cleft lip and palate so shes my superhero. and logan is 3 and is getting tested for chiari...
anyone experiencing entire-body hot flushing?
Mar 06, 2013 in the Chiari Malformation Community - 23
i kinda get that but its more of a hot flash like, the feeling when you have a high fever. but it only comes when i have my period. my symptoms all seem to flare pretty high when i get my period
PRAYER THREAD~~~ soccero /Molly
Mar 05, 2013 in the Chiari Malformation Community - 9
sending good thoughts your way sweetie!
cant take aspirin so what do i do?
Mar 05, 2013 in the Chiari Malformation Community - 5
i cant take aspirin because i have surgery next wednesday and my nl said no caffeine
cant take aspirin so what do i do?
Mar 05, 2013 in the Chiari Malformation Community - 5
these cramps are killing me and i cant take aspirin, i cant have caffeine either. so what do i do? what can help?
does anyone else have this problem?
Mar 04, 2013 in the Chiari Malformation Community - 8
it does stink! i have the opposite problem in the shower. the water has to be BLAZING for me to even feel it be luke warm. only reason i know its that hot because of how red my skin gets afterwards and because its up almost all the ways lol
does anyone else have this problem?
Mar 04, 2013 in the Chiari Malformation Community - 8
i sm cold all the time. but then at night, i sweat so much i have to change my pjs in the middle of the night and take a shower in the morning. its like my body temp cant regulate. anyone else have this problem?