My Posts
May 08, 2013 in the Chiari Malformation Community - 2
i had my decompression surgery march 13, 2013. they took out my c1 and some bone from my skull and put in a cadaver patch. my question is, though im feeling great, are there activities i need to avoid from now on? i got the ok to run so im slowly working my way up to that. but i mean like, should i avoid roller coasters or anything now? or should i be ok?
Apr 01, 2013 in the Chiari Malformation Community - 1
This started a few days ago. I've tried everything and thought maybe I had sprained the tips of these two fingers, but they aren't swollen. The pain is like a throbbing/sharp feeling. I don't know if it has anything to do with my decompression surgery or not. So any help would be great. I had my surgery march 13, 2013.
Mar 16, 2013 in the Chiari Malformation Community - 7
Thank you all for the well wishes and prayers. Everything went swimmingly!
Mar 06, 2013 in the Chiari Malformation Community - 109
my treasure this week is getting to see my little brother and sister this sunday. probably the last time i get to romp around with them for a while. molly is 6 and has ACM1, syrinx, scoliosis, mental health probs (ptsd, early onset bipolar, and adhd) and was born with a cleft lip and palate so shes my superhero. and logan is 3 and is getting tested for chiari...
Mar 06, 2013 in the Chiari Malformation Community - 23
i kinda get that but its more of a hot flash like, the feeling when you have a high fever. but it only comes when i have my period. my symptoms all seem to flare pretty high when i get my period
Mar 05, 2013 in the Chiari Malformation Community - 9
sending good thoughts your way sweetie!
Mar 05, 2013 in the Chiari Malformation Community - 5
i cant take aspirin because i have surgery next wednesday and my nl said no caffeine
Mar 05, 2013 in the Chiari Malformation Community - 5
these cramps are killing me and i cant take aspirin, i cant have caffeine either. so what do i do? what can help?
Mar 04, 2013 in the Chiari Malformation Community - 16
it does stink! i have the opposite problem in the shower. the water has to be BLAZING for me to even feel it be luke warm. only reason i know its that hot because of how red my skin gets afterwards and because its up almost all the ways lol
Mar 04, 2013 in the Chiari Malformation Community - 16
i sm cold all the time. but then at night, i sweat so much i have to change my pjs in the middle of the night and take a shower in the morning. its like my body temp cant regulate. anyone else have this problem?