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Mood:
alwaysbelieve is
home from vacation
About Me:
Female, TN, member since Apr 2008
Currently recovering from a facial/head injury. Also a mom of 5 wonderful children! As a sub-section: Military Mom;Son with migraines;3 with asthma;Daughter with amblyopia; Blessed mom and caregiver to my son with brain injury (spastic-quad;19 surgeries;central apnea;d-... [More]
Notes:
(3)
what help is out there?
Jul 21, 2008 06:33PM in the Cerebral Palsy Community
What specific support are you loking for? I'll see what I can find for you.....
12 month old w/ CP
Jun 30, 2008 10:21PM in the Cerebral Palsy Community
As a mom of 5 (one with CP) and a nurse... Babies are often sent home still jaundiced...with biliblankets/bililights...your son's hypoxic event could have been due to another cause...perhaps something the hospital missed... My personal experience and opinion: consult a malpractice attorney...they will obtain your son's records, have them evaluated by ex...
C.P. caused by genetics?
Jun 27, 2008 10:10AM in the Cerebral Palsy Community
I have done a ton of research, even began writing a book...I do not know what your daughter may have read (or where) but CP is NOT genetic. It is in it's most simplistic definition: brain damage affecting muscle function/motor control. Certain diseases mimic CP and some genetic disorders can lead to this type of brain damage if left undiagnosed/untreated. My...
Talipes (club foot) linked with CP??
May 29, 2008 06:57AM in the Cerebral Palsy Community
My son was diagnosed at age 3 (officially). He also had club foot. Both feet. But his right was due to an IV infiltrate at 2 months that destroyed the growth plate, tendons, ligaments, muscle, and nearly all tissue on the inner aspect of his ankle. Over the years his fibula would grow but his tibia would not. That pushed his foot inward and upward. As for hi...
G-tube feedings
May 21, 2008 10:06AM in the Children - Special Needs Community
My son received GT feedings also. Since he often refused oral foods, then was restricted from them, I did feed pureed through the tube as well. First get some "bolus" extension tubes from your medical supply company or from Ballard directly. Also get some 60cc cath tip syringes. You will also need a hand blender. Then a tall mixing cup/bowl type thing. ...
Balcofen?
May 02, 2008 01:16PM in the Cerebral Palsy Community
In my opinion (as a nurse and a mom) the oral baclofen would be worth a try. It can take a few weeks to determine the effects. Worth a try. Keep me posted.