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Fainting & Protective Helmets
Jul 17, 2012 in the Dysautonomia (Autonomic Dysfunction) Community - 2
I wear a helmet now, but I started protecting myself too late. My most recent head injury was in late 2010, and I am still recovering. I would recommend considering a protective helmet to anyone who faints frequently.
Fainting & Protective Helmets
Jul 17, 2012 in the Dysautonomia (Autonomic Dysfunction) Community - 2
Is fainting one of the symptoms you experience with your Dysautonomia or Autonomic Dysfunction? If so, do you use a protective helmet? Discuss if you will like.
Lyme Disease in the news
Apr 29, 2011 in the Lyme Disease Community - 2
I don't have Lyme Disease myself, but I've known several who do, and the other day I was talking to my mother about just how devastating some of the symptoms can be. As it turns out, she had recently seen a story about Lyme Disease on television. I immediately thought of MedHelp's Lyme Disease Community, and wanted to share the information in...
doctors
Apr 25, 2011 in the Dysautonomia (Autonomic Dysfunction) Community - 3
Unfortunately, I am not aware of any specialist in that area specifically. However, I would recommend beginning with a referral to either a Cardiologist or Neurologist in a local academic teaching hospital as these specialists are most likely to have up-to-date information. Additionally, our Dysautonomia Specialists health page may be helpful to you. Dys...
Health Trackers
Apr 25, 2011 in the Dysautonomia (Autonomic Dysfunction) Community
Many of us haven't been feeling well lately, but I just wanted to take a moment to remind the members of our community about some of the awesome health trackers MedHelp has created for us. The Blood Pressure Tracker: http://www.medhelp.org/land/blood-pressure-tracker The Dysautonomia Tracker: http://www.medhelp.org/land/dysautonomia-tracker T...
Happy Easter
Apr 25, 2011 in the Dysautonomia (Autonomic Dysfunction) Community - 2
I am a day late, but I wanted to wish everyone in the Dysautonomia Community a Happy Easter!
Anyone with NCS that has seizures?
Mar 07, 2011 in the Dysautonomia (Autonomic Dysfunction) Community - 6
Patients with Neurocardiogenic Syncope, and other forms of Dysautonomia can have both seizures, and seizure-like episodes associated with fainting. In my experience, it is relatively common to be misdiagnosed with another condition, (usually Epilepsy, or Anxiety), prior to being correctly diagnosed with any form of Dysautonomia. My own diagnosis took approx...
Ports
Jan 25, 2011 in the Dysautonomia (Autonomic Dysfunction) Community
Last month on the twenty-seventh I got my port. For anyone considering one, I thought I would tell you a little about my experience. Please let me know if you have any questions, and I will try to answer. To start with, I had been receiving IVs on the weekly bases for some time. Although use of a PICC or PORT had been considered many times, I'll be...
Happy Holidays!
Dec 22, 2010 in the Dysautonomia (Autonomic Dysfunction) Community - 4
Happy Holidays Dysautonomia Community! I just wanted to wish for everyone a wonderful holiday season! How is everyone feeling? I am still tapering off some of the medication from my concussion a couple of months ago. Additionally, I will be having a port placed on the twenty-seventh of this month. While I am hopeful about it being of great benefit to m...
Life Update
Sep 21, 2010 in the Dysautonomia (Autonomic Dysfunction) Community - 14
Thank you all so much for your comments! I've had a couple of head injuries in the past, but this one seems to be healing particularly slowly. I haven't even slept in my own bed these past weeks because I've required my parents twenty-four hour care. My mother had to take leave from work. I am improving. My doctor seems hopeful that my const...