My Posts

1 - 10 (of 27) posts
I have Hereditary Corproporphyria, which is very similar to AIP and have acute attacks as well. I am also symptomatic...
7 answers |
Thank you very much for taking time respond. I had not heard about the beta-carotene supplements or choroquine. I wil...
3 answers |
Is anyone out there dealing with one of the forms of porphyria. I have Hereditary Corporporphyria and am almost alway...
3 answers |
Hi there, Sorry you are having such severe pain. Does the pain feel at all like nerve pain? Like very sharp and stab...
4 answers |
Hi Dina, Thanks for your post. I just realized, after reading this, that I experience the same thing. For example,...
4 answers |
Hi Michelle, Glad you got on an AD. I think you will start to feel better soon, although I don' t know much about th...
12 answers |
Hi all, I had had pelvic and abdominal scan in Dec that revealed inflammation or tumor in my right groin. Since then...
7 answers |
I am about 2/3 through TX and have eye issue from the get go. Extreme sensitivity to light, TV light, even too much o...
8 answers |
Wow...this is the first I have seen on near seizures/tremors, and early Parkinson's. I just saw my doc today about si...
20 answers |
Hi there Scruples, Interesting...I would like to know what you find out. My ALT went from 42 (week 9) to 58 in week ...
11 answers |