"I have Hereditary Corproporphyria, which is very similar to AIP and have acute attacks as well. I am also symptomatic when I am not having an attack and it rendered me unable to work. I would love to compare notes or share information. T..."
"Thank you very much for taking time respond. I had not heard about the beta-carotene supplements or choroquine. I will try them. I try to keep hydrated, but chronic nausea/vomiting thus leaves me chronically dehydrated, in which I receiv..."
"Is anyone out there dealing with one of the forms of porphyria. I have Hereditary Corporporphyria and am almost always symptomatic, with sporadic sever attacks that cause seizures (along with a host of other fun symptoms) and land me in ..."
Sorry you are having such severe pain. Does the pain feel at all like nerve pain? Like very sharp and stabbing? Does it ever travel down your inner thigh toward your knee? Also, is it intermittent or constant and worsen with c..."
Thanks for your post. I just realized, after reading this, that I experience the same thing. For example, today I have the shooting pain, my upper abdomen is bloated, and my BP was pretty high at the doctor today. I have neve..."
Glad you got on an AD. I think you will start to feel better soon, although I don' t know much about the one you are taking.
Check your company's and state's FMLA policy....here in NV they don't have you pay you while y..."
I had had pelvic and abdominal scan in Dec that revealed inflammation or tumor in my right groin. Since then, my left groin area has be come painful and I can feel a grape sized knot. I had my doc check it out. I also have extr..."
"I am about 2/3 through TX and have eye issue from the get go. Extreme sensitivity to light, TV light, even too much of a computer monitor causes me pain. I started to notice some real vision changes around week 19, turn out it was just e..."
"Wow...this is the first I have seen on near seizures/tremors, and early Parkinson's. I just saw my doc today about similar problems (severe limb, torso, and head jerking) along with other neuro symptoms. I have been trying to determine i..."
"Hi there Scruples,
Interesting...I would like to know what you find out. My ALT went from 42 (week 9) to 58 in week 12. Both are nominal compared to where I started, but it does seem odd. My Viral Load went down from 3.6 million to 252..."
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.