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teeth issues
Nov 18, 2008 03:29PM in the Incontinentia Pigmenti Community
Hi, my daughter has IP and i know that one of the main issues with IP is problems with the teeth. My daughter is 11 months now and she just began to show 1 tooth on the bottom, is there anyway to find out with testing if they are all there, if they are not, what shape they will be or something to that effect? other than this , she is just perfect !!! god bles...
Seizure
Sep 24, 2008 12:48PM in the Incontinentia Pigmenti Community
I believe that you just have to let it happen, i dont think that you can stop it while it is happening.
seizures?
Sep 23, 2008 03:48PM in the Incontinentia Pigmenti Community
When my daughter had her first seizure , i didnt know what it was but i knew it was not normal. since she was only 5 days old, it looked like a hiccup but with no sound , she had a fixed stare and her arm and leg were moving also like a jolt at the same time as her little head. after she finished the seizure, she would turn blue because of lack of oxygen. it ...
how how how
Sep 23, 2008 03:37PM in the Incontinentia Pigmenti Community
you should start with speaking to your pediatrician. You need a neurologist , a dermatologist and an eye doctor to start with. Hopefully they can refer you to some doctors in your area. Good luck and if you need to talk, feel free to send me a message. D
no teeth yet
Sep 08, 2008 10:29AM in the Incontinentia Pigmenti Community
my daugther is 9 months and she still has not shown any sign of teeth. i know that sometimes kids dont get their teeth until later but im concerned that it may be because of her IP. i have touched her gums and have noticed that they are quite thin on one side. should i take her to a pediatric dentist or wait a while?
is this forever
Aug 12, 2008 12:09PM in the Hair Loss (Alopecia) Community
My husband has alopecia totalus, he had it when he was small, his hair grew back and then after high school, it all fell out again, this what about 18 , 19 years ago.. does anyone know if there is a possibility of the hair ever growing back? or is this a permanent thing? i dont mind at all that he doesnt have any hair, i actually like it , im just curious.....