My Posts
13 hours in the Chiari Malformation Community - 1
Hi and welcome to the Chiari forum. Yes a few members have gotten disability but it can take up to 2 yrs and most needed to appeal with the help of an attorney.....and they had several conditions not just Chiari....as Chiari is not on the disability list. We do have a thread on tips for getting disability,I will try to locate it and bump it up f...
19 hours in the Chiari Malformation Community - 4
Hi....thanks for adding a Dr.....but since this is an older thread could you add your info to the Drs list thread so the Dr can be added to the main Drs list? Thanks....BTW- how are you doing since your surgery?
19 hours in the GERD (Acid Reflux) Community - 4
Hi and welcome to the GERD forum. Do look at the list of foods to avoid with reflux as the above poster mentioned as these foods can trigger your symptoms to flare..... Only a Dr exam and testing can determine exactly what is going on, so do see a GI Dr for that. In the meantime avoid greasy, acidic, spicy, caffeine,alcohol, smoking.....as al...
19 hours in the Chiari Malformation Community - 6
Here my Drs said any MRI past 6 months is considered old and a new one would be done to check for changes....so, I would suspect a new MRI is due for you...... Keep us posted on your Dr search. Good Luck.
19 hours in the Chiari Malformation Community - 2
Hi and welcome to the Chiari forum. There are a few Drs in the Baltimore, MD, DC and N.C area that are true Chiari specialists....you will want to research them see a few and see which is best for you. http://www.medhelp.org/posts/Chiari-Malformation/-Chiari--Drs-list--links-2015/show/2415432 Since a syrinx is already formed, you ust have a CSF ...
Jan 25, 2015 in the Chiari Malformation Community - 6
Hi and welcome to the Chiari forum. Chiari symptoms do cycle and they can get worse after something triggers a flare or it is possible to have a CSF obstruction that can cause a syrinx to form over time, this too can change the symptoms you experience. When was your last MRI? Did they test you for Syringomyelia tethered cord, POTS, ICP, CCI, Ehlers-D...
Jan 25, 2015 in the Chiari Malformation Community - 5
Oh ok...I understand....wow....so that is why you still have symptoms.....Dr Rosner is a very good Dr from every thing I have read on him.....do keep us posted on what and when you take the next step.
Jan 24, 2015 in the Chiari Malformation Community - 5
He would know as he has taken care of many Chiarians.....with a good reputation..... How did the original Dr explain how he "lifted" the tonsils?