My Posts
Feb 27, 2015 in the Chiari Malformation Community - 1
Hi and welcome to the Chiari forum. There is a list here of Drs and the one in your area Is Dr Bejjani....some Drs even Chiari specialists will not do much if the herniation is less then 5 mm's...but if they are a true Chiari specialist they will not look at just the size of the herniation, they will look to see if you have a CSF obstruction and...
Feb 27, 2015 in the Chiari Malformation Community - 10
Hi...thanks for the update.....and I am glad to hear you will be getting a MRI... Is this Dr a Chiari specialist?... Hang in there....and keep us posted.
Feb 27, 2015 in the Chiari Malformation Community - 6
Anything is possible....do you have a sacral dimple?..... Or an elongated brain stem? These can indicate tethered cord....as TC can not always be seen on a MRI.... I would think if this was a possibility your Dr would have said something to you...
Feb 27, 2015 in the Chiari Malformation Community - 6
Tethered Cord is where there is a fatty lipoma and the cord attaches there.... It can be congenital, or from an injury or scar tissue after a surgery that can cause the cord to tether . I do have tethered cord....and I have not had the release surgery as I know it can re-tether due to the scar tissue and for now it is not bothersome enuff to have s...
Feb 27, 2015 in the Chiari Malformation Community - 6
A lipoma ca be described as a fatty tumor or cyst that can be slow growing btwn the skin and muscle..... These fatty growths are common in those with EDS.
Feb 27, 2015 in the Chiari Malformation Community - 13
Beisk reflexes are not uncommon as it can indicate a blockage to the brain...which Chiari with the herniation's create...and post op it can take time for inflammation to calm down and things to flow the way they should. All I was told is it was not nerve damage and that it should clear up post op....much of it has.....but I still have some relat...
Feb 27, 2015 in the Chiari Malformation Community - 6
Many have gone out of network to TCI....but things have changed recently...call their financial office or your INS company to see if it will be covered and how much you will be responsible for.Even out of network some INS companies will pay for it....so look into all possibilities. For me it was all considered in network, but I still had out of pocke...
Feb 26, 2015 in the Chiari Malformation Community - 13
Hi..sending you best wishes for a positive outcome.......and I will post a prayer thread for you....and I will look for updates from you when you are up to it post op.
Feb 26, 2015 in the GERD (Acid Reflux) Community - 2
Hi and welcome to the GERD forum. I have not had this procedure so, I can not speak from experience.....there are a few members who may pop on and offer insight. In the mean time, talk with your Dr about your concerns , get checked for sinus issues like post nasal drip.....elevate the head of you bed in case this is still acids moving up into your...