My Posts
8 hours in the Chiari Malformation Community - 26
Hi all my wish this week is the weather changes and keeps steady one way or another...it's going to be cold.....or hot but this switching back is forth is crazy,,,,,,not just for me but for all of us....
10 hours in the Chiari Malformation Community - 1
Luck!! and if you want a prayer thread post on that thread so one is posted for you.... Didn't they cauterize your tonsils the last time?..... Praying you get enuff room for flow......
10 hours in the Chiari Malformation Community - 1
Good question.....from what I understand it depends on the condition of the patch when they go in.....if they feel it will hold....if there is scar tissue etc.....so, that might not be decided until they are in,,,,as for retrieving more tissue from the same location,I would doubt that...maybe nearby...or from your thigh.,...
15 hours in the Neurology Community - 5
Sounds great!! Good Luck <3
15 hours in the Chiari Malformation Community - 3
Vertigo can strike if we are prone or upright....and it does not matter if you are on your back ,side...if you move, it gets worse....I use to get back episodes and it felt like my bed was spinning so fast I would fly off....lol....so glad that is behind me now....but as I said can happen regardless of your position.
15 hours in the Chiari Malformation Community - 39
Fabulous news!!....I pray it all works out.....having the right school for your child is so important....mine went to private schools...and when she had a choice decided to continue.....they know when it is better for them as well....
15 hours in the Chiari Malformation Community - 44
Your BP could be affected by the apnea but it can also be the Chiari causing it...mine was always on the low side..... Yes....I was sent to group and individual counseling when I was in high school.....RX'd meds for anxiety and migraines,,,, The thing is when you get a DX like that most times it's a bless...
15 hours in the Chiari Malformation Community - 1
Hi,,,,mine is congenital....primary..acquired can occur and in most instances is reported as low lying tonsils not Chiari....Acquired Chiari does not have the malformation of the skull and the herniation occurs due to blunt force trauma to the head/neck area..... However, some Drs refer to a herniated cerebral tonsil as low lyin...
Oct 20, 2014 in the Chiari Malformation Community - 4
Have you tried to elevate the head of your bed to see if that helps?...Like being in a recliner verses being completely flat...give it a go...hope it helps.