My Posts
2 hours in the Chiari Malformation Community - 43
Hi and welcome to the Chiari forum. Thanks for sharing your thoughts and part of your Chiari journey with us...but I am confused...you said your brain dropped ...was this post op? If so, do you mean you have brain slump also known as cerebral ptosis? This can be corrected with surgery.,..this happens when too much bone is removed during decomp...
4 hours in the Chiari Malformation Community - 3
Hi...knowing where your issues lie is the first step in overcoming them....each time you feel you need someone else remember that you do not...you can do this...I just googled the area you are in and got this link...check it out they may be able to advise you on medical ins and other things you need help with. http://www.advoconnection.com/locations/h...
That is very possible...I had whip lash yrs ago and that affected my muscles and it was some of the worst pain I ever had... Follow what your Dr suggests and if it is no better ask about PT. Keep us posted on your progress : )
8 hours in the Chiari Malformation Community - 5
Hi...it is the comment of the subtotal effacement of CSF that concerns me...the MRI 1- was without contrast and was not a CINE MRI so not sure what they were getting at, but this is the first thing I would look into with a CINE MRI.
8 hours in the Chiari Malformation Community - 9
I know !! I had a "Chiari specialist" say my case was "above" him,..??? And he had no suggestions to where I might go...ugh...and yeah I paid him and not just a specialist fee, I was charged for the 5 min chat as a out patient which costs more??? No one told me that ...I went to an office so I thought it was an office visit,,,,the thin...
Jul 23, 2014 in the Chiari Malformation Community - 3
Hi...it is possible to be symptomatic with Chiari but no CSF obstruction....many with Chiari also have other related conditions that can cause the same HA's and symptoms.Surgery is done to restore CSF flow so if there is no obstruction there is no way surgery can be of help...BUT if you have a related condition it is possible to get relief . Ther...
Jul 23, 2014 in the GERD (Acid Reflux) Community - 1
Hi and welcome to the GERD forum. I have heard that speech issues can be associated with pediatric GERD...but not mental issues??? If you feel she is a bright Child I am sure she is and should not have an issue to sign her up...they will evaluate her for enrollment and as the yr progresses and should be able to tell you is there is an issue. D...
Jul 23, 2014 in the Chiari Malformation Community - 7
I had a MRI and yrs later when I got my Chiari DX they wanted copies of ALL my MRI's I had....so I went to the hospital that did mine and got a copy of the report...mine stated I had tethered cord...but I was never told...so if I had not gotten my Chiari DX I might not have found out that it was visible on the MRI and I was told all was fine....since...
Jul 23, 2014 in the Chiari Malformation Community - 7
The ER does not DX only treats the current symptoms do tests and send you to your Dr for an eval of results...ER is only really good for life threatening situations...as they will not try to figure out what the issue is. Did they ever do a CINE MRI to see if he has an obstruction of CSF flow or a MRI of the cervical, thoracic and lumbar spine to rule ...
Jul 23, 2014 in the Chiari Malformation Community - 42
Chiari or GERD can cause Anxiety as GERD can affect the vagus nerve and Chiari can affect just about any bodily function...... I had anxiety too but it went away....Chiari symptoms cycle and you can have one symptoms for yrs or a few months and then change to something else....this is one reason Chiari is difficult to DX as we do not connect all th...