My Posts
9 hours in the Neurology Community - 2
Hi.....the diverticula on the spine may be associated with ICP...intracranial hypertension,,,CSF leaks,,,, Many with Chiari may also have Ehlers-Danlos a connective tissue disorder that can cause scarring to form,,,not sure if this falls into that category,,, You mentioned Brain sag,,,,also known as cerebral ptosis....this can o...
9 hours in the Chiari Malformation Community - 2
Hi....I am so sorry you are having these issues,,,,, This can be a number of things do you feel nauseated along with intense HA when standing? Or is it extreme dizziness that happens when you change positions? It could be a CSF leak or POTS....or....depending on your daily activities you could be doing too mu...
9 hours in the Chiari Malformation Community - 2
Hi and welcome to the Chiari forum. I agree with the Dr....but I have to ask.....what testing did that Dr do? It really depends on what symptoms you have and what other related conditions.... Many Chiari specialists will try PT and a few other things b4 surgery is considered.,surgery is not a cure...but a means to restore CSF flow ...
10 hours in the Chiari Malformation Community - 5
Hmmmm well I was hoping with the Holiday's approaching we could share recipes.....sigh....
10 hours in the Chiari Malformation Community - 16
My Deepest Sympathies on the loss of your mother.,...I have no idea how hard that must be with small children to raise and not have your mom to lean on...But if I can help....I will the best I can,,,, No worries..you are doing great....
11 hours in the Chiari Malformation Community - 16
Adhesion's can be scar tissue that forms....arachnoid is a layer of membrane that surrounds the brain, there are 3 layers with the arachnoid being the middle layer.....they can be the beginnings of a syrinx.....these adhesions as they multiply can form into a syrinx. Since they were removed that should be ok, if they got them all,.....A Dr wou...
11 hours in the Chiari Malformation Community - 16
It was on page 2 of the forum's thread....http://www.medhelp.org/posts/Chiari-Malformation/-List-of-Chiari-Drs--USA-2013-2014/show/2046186 You have every right...and trust me a few thought I was crazy pushing for the answers for myself,.... Remember the Drs work for us....and we can fire them...you know your kids better then they do....
11 hours in the Chiari Malformation Community - 16
Have you tried Dr Frim in Chicago?.....We do have a list...it is not a referral....but you can use it to research Drs,....many of us do need to travel to get to the right Dr,....
11 hours in the Chiari Malformation Community - 16
Follow your gut...get another opinion.... May I ask what area you live in?