My Posts

1 - 10 (of 20) posts
Nov 18, 2008
"The current pain tracker would be fine (instead of an entirely new tracker), but it would need additional choices for 'type of pain' in order to work for neurological symptoms. There is numbness and tingling on the list, but there are a..."
Nov 13, 2008
"I think a Neurological Symptom tracker would be a great idea!! It could be similar to the pain tracker (or functionality added to the pain tracker). The user could click on the part of the body that is experiencing symptoms, and then c..."
Oct 24, 2008
"Yep, it's one of the first things we checked. His magnesium levels are fine - but a good thought!! Keep em coming!! Thanks! "
Oct 24, 2008
"Thank you SO much for your reply. I have been reading information in the Health Pages - they are great sources of information!! Some of his sensations seem to move around from day to day, but there are others that stay for extended p..."
Oct 24, 2008
"Yes, he does have a lot of stuff to deal with, and I am so exhausted between trying to help him (to no avail) and worrying about what could be going on. I will be so glad to get to the neurologist on Monday. I know he won't have answer..."
Oct 24, 2008
"We had appointments with his Psychiatrist and his Occupational Therapist yesterday. We did some brainstorming in both appointments and both of them said that yes, there most likely is something else neurologic going on besides the Toure..."
Oct 22, 2008
"I remember reading somewhere on this site about sensations of water or liquid dripping down the legs being a symptom of MS for some people. I have noticed my son 'wiping' his legs, for the past couple of weeks, and just assumed it was a..."
Oct 22, 2008
"Thanks for the info. I agree that there are a LOT of neuro diseases that start in childhood and have a lot of the same symptoms, which is part of what makes this soooo hard to figure out. I checked out the link on Rett Syndrome - it do..."
Oct 22, 2008
"Thanks, I will check out ASAP. I have read a little about Chari Malformation, and my understanding is that the syrinx that is usually related to that is found in the cervical spine, whereas his is in his thoracic spine. Also, they say ..."
Oct 22, 2008
"Thanks Lulu, and YES, I will come back often...lol. You may be right on the T2 images thing, I just remember seeing something in the MRI report about T2. I will ask, and again, since it was before the tingling and muscle spasms began, ..."