My Posts
Nov 18, 2008 in the Improve MedHelp Suggestions Community - 3
The current pain tracker would be fine (instead of an entirely new tracker), but it would need additional choices for 'type of pain' in order to work for neurological symptoms. There is numbness and tingling on the list, but there are a whole host of other 'neurological' symptoms that aren't listed. Such as odd sensations, hypersens...
Nov 13, 2008 in the Improve MedHelp Suggestions Community - 3
I think a Neurological Symptom tracker would be a great idea!! It could be similar to the pain tracker (or functionality added to the pain tracker). The user could click on the part of the body that is experiencing symptoms, and then choose the severity and type of symptom - numbness, tingling, buzzing, loss of sensation, hypersensitive, odd sensations, etc...
Oct 24, 2008 in the Neurology Community - 14
Yep, it's one of the first things we checked. His magnesium levels are fine - but a good thought!! Keep em coming!! Thanks!
Oct 24, 2008 in the Multiple Sclerosis Community - 18
Thank you SO much for your reply. I have been reading information in the Health Pages - they are great sources of information!! Some of his sensations seem to move around from day to day, but there are others that stay for extended periods of time. For example, right now he has a 'buzzing' in his big toe on his left foot, and a sensation of wat...
Oct 24, 2008 in the Multiple Sclerosis Community - 18
Yes, he does have a lot of stuff to deal with, and I am so exhausted between trying to help him (to no avail) and worrying about what could be going on. I will be so glad to get to the neurologist on Monday. I know he won't have answers for us right away, but at least I will feel like we are putting the wheels in motion. We have been spinning our whee...
Oct 24, 2008 in the Neurology Community - 14
We had appointments with his Psychiatrist and his Occupational Therapist yesterday. We did some brainstorming in both appointments and both of them said that yes, there most likely is something else neurologic going on besides the Tourette Syndrome. I mentioned to both of them a few things I was concerned about - the possibility of Multipule Sclerosis or Ar...
Oct 22, 2008 in the Multiple Sclerosis Community - 18
I remember reading somewhere on this site about sensations of water or liquid dripping down the legs being a symptom of MS for some people. I have noticed my son 'wiping' his legs, for the past couple of weeks, and just assumed it was a tic. However, when I noticed it tonight, I remembered reading that and asked him why he does that. He said beca...
Oct 22, 2008 in the Multiple Sclerosis Community - 18
Thanks for the info. I agree that there are a LOT of neuro diseases that start in childhood and have a lot of the same symptoms, which is part of what makes this soooo hard to figure out. I checked out the link on Rett Syndrome - it doesn't seem to fit. He hasn't lost skills that he has acquired, except the incontinence issues. His speech is fin...
Oct 22, 2008 in the Neurology Community - 14
Thanks, I will check out ASAP. I have read a little about Chari Malformation, and my understanding is that the syrinx that is usually related to that is found in the cervical spine, whereas his is in his thoracic spine. Also, they say that since he is having symptoms in his arms and hands, it can't be related to the syrinx because of the location of it...
Oct 22, 2008 in the Multiple Sclerosis Community - 18
Thanks Lulu, and YES, I will come back often...lol. You may be right on the T2 images thing, I just remember seeing something in the MRI report about T2. I will ask, and again, since it was before the tingling and muscle spasms began, I think another one is probably what we need to do. I just want to make sure that when we do it, that we do it RIGHT, since...