My Posts
Sep 09, 2009 in the Respiratory Disorders Community - 3
I agree with Victoireh. An ENT is who you need to see. I was just diagnosed today with Stenotrophomonas Maltophilia which is a bacterial pseudomonas infection which I picked up while being intubated (I guess) during my trans-sphenoidal surgery to remove a pituitary tumor in April of this year. After 4 months of intense congestion, headaches, sinus pain etc., ...
Sep 09, 2009 in the Respiratory Disorders Community
I was just diagnosed with Stenotrophomonas Maltophilia today after having had severe congestion, breathing problems, a horrible headache on top and back of head, intense sinus pain, since my trans-sphenoidal surgery in April of 2009. A culture was taken on 9/1/09 and an MRI on 9/3/09 showed a massive infection in the sphenoid sinus area close to the brainstem...
Aug 07, 2009 in the Neurology Community - 2
You need to be proactive in your care. Demand from your doctors that they give you the answers you seek, or go to another doctor! If you have a tumor, do you know what kind? It sounds like you have a pituitary tumor, but you need to go to an endocrinologist, you need to find a surgeon who specializes in the type of tumor you have. You need to take your life i...
Aug 07, 2009 in the Neurology Community - 5
I just had a non-functioning pituitary tumor removed in April/2009. I was dismayed to find that the Vertex headache (or, headache on top of head) has come back. I once again have the constant headache and also the pain behind my eyes is back. Nothing works for this headache completely. I had the tumor removed through my nose, not the craniotomy, although, the...
Aug 07, 2009 in the Migraines & Headaches Community - 1
I also get debilitating migraines and about 2 years ago, I started experiencing numbing on the right side of my face/neck/shoulder. I went to the ER and they ran many tests and finally wanted to do a spinal tap, which I declined. The dr. on duty suggested that the numbing will be a normal symptom from now on of my migraines. Over the years, I have been ex...