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Mood: mommyofnathan
ok
About Me: Female, 29, CAPE TOWN - South Africa, member since Dec 2007
Mom to a severely disabled child.  Two other healthy abled kiddos.  Live in South-Africa.
Interests: special needs child, epilepsy, developmental delays, neorology, CP, Sleep disorders  
Laryngomalacia
May 01, 2008 01:11AM in the Cerebral Palsy Community
Thank you thank you thank you. All I wanted to hear. We are on the same page here. I agree wholeheartedly with quality...
Hire a Lawyer or Not?
Apr 27, 2008 05:06AM in the Cerebral Palsy Community
Busy with a lawsuite. It is pure hell - having to relive every single minute of that time. I don't encourage people to ...
Laryngomalacia
Apr 20, 2008 03:28AM in the Cerebral Palsy Community
It started shortly after the accident. It was only off and on but is now present constantly. It seems that he won't ou...

Sleep


Dec 31, 2007 08:27AM - 2 Comments
If anybody out there knows how to get a special needs boy to sleep through the night, please please make my day!!
(3)
(1)
(1)
(2)
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lovingmom101
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lovingmom101
Female, 30 years
- AR
Member since Dec 2007
Mood: lovingmom101 asking for you to pray for my little blessing.
Aug 08
Hi. I have a son that has been diagnosed with cistic encephalmalacia. I looked his diagnosis up on here and began reading some of the post and I came across your post. Hope you don't mind that I read it. I was wondering are you still having trouble with your child sleeping?
supermomma531
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supermomma531
Female, 31 years
Windsor - ON
Member since May 2008
Mood: supermomma531 sooooooooo...... ready to ship the kids back to school! LOL
Journal Entry:   "Hi everyone. I'm new to this site. I've b..." [Read]
May 22
You are in my thoughts and prayers.
supermomma531
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supermomma531
Female, 31 years
Windsor - ON
Member since May 2008
Mood: supermomma531 sooooooooo...... ready to ship the kids back to school! LOL
Journal Entry:   "Hi everyone. I'm new to this site. I've b..." [Read]
May 18
You deserve a big bear hug! Hi, I'm new to this site. I am looking for poeple to speak with. I have 3 children,one of which has severe uncontrolled epilepsy. I don't know anyone else in my home town with a child of this nature. I was reading on your site about your child and I really congradulate you on all of the work that I know you put into a day for him/her. I have had experience in working with severely disabled children. I also have a severely disabled brother who has to have 24 hour care. Anyhow, I hope that we can become friends. Sincerely, Supermomma531.
windsculpted
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windsculpted
Female
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Member since Apr 2008
Mood: windsculpted happy
Apr 21
Hi, my son had laryngomalacia as well. That was about 13 years ago and he had 2 surgeries to open up his airway and they removed his tonsils and adnoids and additional tissue. They considered putting in a trach but after the second surgery things started to get better. You know as he gets older his airway cartilage will become more ridgid and that helps so the tissue won't colapse and he will get more 02 as he inhales and exhales. Although I had to talk to the ENT to please give it a chance for the tissue to harden up before a trach was put in (which they didn't have to). My son did have to be on oxygen 24/7 for the first 4 years of his life. My son is now 18 and has no problems regarding this issue. I know it's hard..my heart goes out to you..
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NavinKumar
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NavinKumar
Male, 32 years
Ara - India
Member since Dec 2007
Mood: NavinKumar unluckyhis son died

Male, 32, Ara - India
hkjordaan
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hkjordaan
Female, 35 years
sedgefield - South Africa
Member since Jan 2008
Mood: hkjordaan doing well and is content

Female, 35, sedgefield - South Africa
carolyn4
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carolyn4
Female, 35 years
Adelaide - Australia
Member since Jan 2008
Mood: carolyn4

Female, 35, Adelaide - Australia
Annasmom327
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Annasmom327
Female
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Member since Jan 2008
Mood: Annasmom327 WORRIED :-(

Female, -
JacqHein
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JacqHein
Female, 43 years
Port Elizabeth - South Africa
Member since Jan 2008

Female, 43, Port Elizabeth - South Africa
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