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Mood: funmonkeytoes
still alive, but barely kicking -- and will be online to post about my recent escapades!
About Me: Female, Eau Claire - WI, member since Jan 2008
I was diagnosed with Multiple Sclerosis nine years ago.  I now have SPMS or possibly PRMS.  I have been treated with ALL of the available FDA approved treatments and am now seeking help with alternative treatments with help from an immunologist.  As of July, 2008 I am n ... [More] ot on any disease modifying treatments, but we are looking for a new drug so I can continue to do all I can to fight this disease.

I have five children and a beautiful granddaughter, and I am married with three step-children.  I am well-versed in the challenges that come with trying to be a wife and mother while living with Multiple Sclerosis.

I am 98% bedridden at this stage of my illness.  I suffer from severe fatigue, weakness, vertigo, and a Central Pain Syndrome - which makes it nearly impossible to be up and about - even in a wheelchair.  I like to find out as much as I can about available treatments, side-effects, and am always hoping for a cure!  I believe that there will be a cure sometime in the next few decades.  

I am a compassionate woman, a good listener, and love to meet others with issues that are common in every day life when dealing with an incurable disease.  I have much experience with MS drugs and in living with the disease in general.  If I can help someone that's hurting or afraid it makes me feel I am living my life to the fullest. [Less]
Interests: reading, chronic illnesses, psychology, children, writing  
Whatever Happened To The Clinical DX?
Sep 14, 2008 03:33AM in the Multiple Sclerosis Community
I would shout from the trees what you just wrote. What's awful too is when you get treated as if you have "stress" or "d...
Message from Quixotic
Sep 14, 2008 03:16AM in the Multiple Sclerosis Community
I know what it is like to need to be away for a while. I am just getting back in the swing after a pretty long absence du...
Revimmune Info
Sep 13, 2008 03:33AM in the Multiple Sclerosis Community
This is great info, and I am sure is useful to myself and many others that are having to look beyond what is FDA approved...

Blogs on MySpace


Jan 24, 2008 11:03PM - 3 Comments
I blog quite a bit. Not just about my experiences with Multiple Sclerosis, but about my life in general. I have been called "painfully honest". I guess (perhaps because...[more]

What MS Feels Like


Jan 24, 2008 10:52PM
I am being crushed on my right side, as if an elephant is resting its foot and weight on me. It feels like a tightening band is wrapped around my chest making it hard to ...[more]
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sllowe
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sllowe
Female
Member since Apr 2007
Mood: sllowe . . .taking things day by day
Journal Entry:   "This is not all of what happened, but wil..." [Read]
Oct 13
Thank you friend. I was thinking about you. I look forward to hearing from you when you are ready. No pressure w/getting the page up. Do what you can, that is all we can do. Glad you have your note! ttys, - Shell
sllowe
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sllowe
Female
Member since Apr 2007
Mood: sllowe . . .taking things day by day
Journal Entry:   "This is not all of what happened, but wil..." [Read]
Aug 20
Just a quick note to say hi! HEY! I'm hanging in there! Get your butt over here, and spill! We have so many new members, help us welcome them! Reintro yourself to those who will not know you. So, looking forward to seeing you and what has been going on! (((hugs))) - Shell
sllowe
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sllowe
Female
Member since Apr 2007
Mood: sllowe . . .taking things day by day
Journal Entry:   "This is not all of what happened, but wil..." [Read]
Jun 20
Ok, you blogger you - where is OUR update miss? Just kidding (though would like to know how it is going). Hope you are well! - SL
ReiIshida
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ReiIshida
Female, 20 years
Fort Collins - CO
Member since May 2008
Mood: ReiIshida psyched!
Journal Entry:   "I just got promoted to web maintenance an..." [Read]
Jun 19
I've never had to deal with a lot of physical pain, but have most of my life been in mental agony. I have several disorders that have affected my life for the worse and that have taken forever to get over. In a way, I think both are very intertwined because when I am really depressed I get physically sick; whereas since you are in constant pain, I'm sure you feel depressed a lot. They're are both different pictures of the same sky; Life.
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DON439
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DON439
Male
Richmond - VA
Member since Mar 2008
Mood: DON439 Life is either a daring adventure or nothing !!!
Journal Entry:   "Here is my bookstore,everytime I want to ..." [Read]

Male, Richmond - VA
DAWNP531
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DAWNP531
Female
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Member since Mar 2008
Mood: DAWNP531 ...

Female, -
scaredphysio
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scaredphysio
Female
United Kingdom
Member since Apr 2008
Mood: scaredphysio so so tired...but loving the sunshine.

Female, United Kingdom
Momzilla
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Momzilla
Female, 44 years
MI
Member since Jun 2007
Mood: Momzilla is tired of Limbo
Journal Entry:   "I told someone I'd post this. Please do ..." [Read]

Female, 44, MI
ReiIshida
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ReiIshida
Female, 20 years
Fort Collins - CO
Member since May 2008
Mood: ReiIshida psyched!
Journal Entry:   "I just got promoted to web maintenance an..." [Read]

Female, 20, Fort Collins - CO
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