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Mood: Cindy809
is praying to God that all her Ovca sisters are doing well with their treatments and having a nice day
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About Me: Female, 51, VA, member since Mar 2008
I was dx 3c grade 3 March 06.  Surgery:  3/13/06  hysterectomy, debulking.  Complication.  Pinched bowel.  Emergency surgery 3/27/06, ostomy.  Went septic.  6 weeks ICU.  Chemo May-Aug 06. Carbo/Taxol.  NED.  Bowel reversal, second look, scar revision Jan. 07.  Feb. CA1 ... [More] 25 started to rise.  CT clear.  My CA125 continued to rise.  It reached 886 in Aug. 06.  A PetCt was ordered and showed cancer progressed rapidly to liver, spleen, pancreas, lower an upper bowel.  Cancer everywhere!  Doctor would not operate.  Went clear across the US and had a secondary cytoreductive surgery with complete debulking.  Dr. Spirtos in Las Vegas did the surgery.  Had many complications.  Went septic twice.  Was in ICU for about 9 weeks.  Lost the ability to walk and use of my hands.  Went to rehab in Las Vegas.  Home to VA and started Chemo Nov. 06 Gemzar/Carbo.  Just started my 6th treatment and my CA125 is 9.4.  My treatment should end this thursday 3/20/08.  My CA125 is starting to rise again after my 6th treatment, 14.0.  On 5/27/08 it is 24.5.  TREND!!!  Had a CT scan 5/30/08.  Waiting for results.  Bad news CA125 jumped to 130 in three weeks.  Its in not on my liver now and spread to my lung.  It is also in 6 other places throughout my abdomin.  I start cisplatin/taxol today 7/8/08.  I've done 3 platinum drugs in the last 18 months.  I hope I can tolerate this one.  Doctor is going to check every two treatments with a scan and that will determine whether I continue.  All my hard work with the surgeries.  They almost killed me.  I don't get it.  I'm very down.  Well, more bad news.  After my fourth treatment of cisplatin/taxol which have been hell on earth my CA125 went up 5 points to 76.  That doesn't sound like a big number for some but during treatment.  My CA125 either doubles up or doubles down. Doctor said it might be a plateu.  Well see.  Still frightened and scared.  Nothing seems to be stopping my cancer.  Well the Cisplatin/taxol has stopped working.  Had a CT scan that showed 2cm and 3cm tumor IN my liver with 30 other stops.  It was covering my liver.  I asked about the cyberknife...my  gynonc called and the head radiologist and we had a consult two hours later.  I do not qualify for the cyberknife at this time.  The radiologist called UVA for a procedure called SIRTS.  He knows the team of doctors that do this procedure.  It is done through the main vein to the liver with radiation in the form of sandy little balls.  Cutting edge.  That explanation is a breif description of the procedure.  There is a lot more involved.  My insurance will probably deny.  It is FDA approved for colorectal mets to the liver.  I had a pet ct on friday and won't get the results until monday.  CT scans usually don't show all my cancer due to so much scar tissue etc.  Hopefully all the cancer is only in my liver.  I also have an appointment with the head of radiology at UVA that would be doing the SIRT procedure.  I have a lot of road blocks.  I must qualify for the procedure!  No other cancer anywhere else.  I'm bringing my CT disc and PETCT disc (not read yet) with me.  The insurance is going to be the biggest problem.  I don't have the time.  I am not on any chemo now and with aggressive cancer I'm scared.  All that growth while on cisplatin/taxol!  It was pure hell during treatment.  So, I won't have any answers until after tomorrow.  I think the date tomorrow is Oct. 25.  This time last year I was fighting for my life in ICU.  Nothing is working.  Ladies if you have read this please pray for me. [Less]
Interests: Mom and Dad, Sister & Family, Home, The Shore, Wine Festivals, Motorcycling, Boating, God, Husband kids God Family first, faith in God, husband, children, grandchildren ... [More] , family, holidays, parties, listening to music, my car, cooking, Dining out [Less]  
Very Scared and confused - please help.
11 minutes ago in the Ovarian Cancer Community
You are very welcome! You can send me a message if you like when you get your results..... :) Cindy
how long?
1 hour ago in the Ovarian Cancer Community
Kay ... the ladies have given you good advise. I have a few questions. How long ago did she have the surgery? Did she ...
article and update
1 hour ago in the Ovarian Cancer Community
Deandra ... We don't know each other but I've been lurking on and off for a while and recently started posting. You are ...
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bearx2
Female, 33 years
Member since Oct 2008
Mood: bearx2 A little sad
Journal Entry:   "Today was great, scary, frustrating and g..." [Read]
Nov 13
On a side note, I felt for that lymph node today and i cannot feel it. I felt it a couple of days ago, for a couple of days...but now i can't feel it. Is that weird?
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bearx2
Female, 33 years
Member since Oct 2008
Mood: bearx2 A little sad
Journal Entry:   "Today was great, scary, frustrating and g..." [Read]
Nov 13
Thanks Cindy. You are very kind. It's ok, i appreciate the candid nature of your response. I know it's out of compassion and experience. I do not take any offense to it. I called and tried to get my appointment on the 19th bumped up and they said she was booked. How do you go about getting a 2nd opinion? Do I call the dr and ask or do I just do it? also, what did you think about the symptoms I listed?
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bearx2
Female, 33 years
Member since Oct 2008
Mood: bearx2 A little sad
Journal Entry:   "Today was great, scary, frustrating and g..." [Read]
Nov 13
Hi Here are some of my symptoms: -full feeling/bloated feeling most of the time -overweight (very hard time loosing weight) -tender breast (mostly left) and tingling in breast/nipples -a little bit of nipple discharge (especially if i pinch) -nausous -insomnia -fatigue -trouble concentrating -lower back pain (chronic all year has increased) -blurred vision (new this year) -tingling in left hand (on and off for past couple of months) -heart palpitations (on and off) -pain on right and left side sharp stabbing pain on and off as well as a constant dull pain -bursts of shortness of breath Can you shed some light here? Thanks for your time Cindy.....you are a god send.
Flightsocks
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Flightsocks
Female, 39 years
London - United Kingdom
Member since Nov 2008
Mood: Flightsocks is not very well today!!
Nov 08
sorry about the comment on the thread. I will continue writing on is caelyx patupilone a safe trial? from now on. my sympathies go out to you. bless you. x
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Freeland - MI
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