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Mood: proud48
proud48
About Me: Female, 61, member since Apr 2008
nurse who wants to find out why I have these problems after the year long treatment of Interferon and Ribavirin. The major sites as well as the drug companies will not discuss any problems from these drugs. I don't feel I am an isolated case.I would love to be the same ... [More] person as before and will continue to have faith that things will get better. [Less]
Interests: cooking, Gardening, Sewing  
Blood work
Nov 17, 2008 04:43PM in the Hepatitis C Community
I have been off 2 years this February. My surgery was cancelled today because they did the lab work again on Friday and t...
Blood work
Nov 13, 2008 11:27AM in the Hepatitis C Community
Hello everyone, I am suppose to have cervical surgery next week. I just got my pre-op lab work back and have some abnorm...
med advice
Nov 12, 2008 07:50AM in the Hepatitis C Community
I too am an RN but have gained more knowledge here. I got no help from the HCV nurse and minimum from my GI doctor that t...

This is a Blessing


May 06, 2008 11:03AM
I want to thank everyone on this forum site....I wish I had known about this site while going through the 48 weeks of treatment. I am grateful to know about it now because...[more]
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CMcH
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CMcH
Female, 48 years
CA
Member since Sep 2007
Mood: CMcH in low gear. I had my 12 week labs and will see my NP tomorrow. I think I need some rescue drugs again. Lately I'm a drag
Journal Entry:   " Yesterday was one of my biggest breakdow..." [Read]
Nov 11
Thank you for your reply. I did have the RA factor in my blood and had some joint pain before TX along w/Thyroid issues. It was all the autoimmune issues popping up that led me to TX. Now 6 months into it and the weather getting colder I am so stiff and achy down to the bone. My WBC & RBC keep dropping out causing anemia. I have had a lot of Procrit shots to boost it up and my NP wants to drop my Riba and back off the Procrit. My Hemo stays around 10 sometimes up to 11.3 post rescue drugs. My NP said she wants my bone marrow to make the RBC. So I was wondering if that contributes to the bones aching? The RBC also transport oxygen to the muscles and brain. I think that is why my muscles burn ( esp. w/stairs) and contributes to the brain fog. That is my take on it?
frijole
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frijole
Female, 60 years
Midland - TX
Member since Jun 2007
Nov 09
Hi Proud, don't believe I have ever met you. Yes, you are right - I did not clear and finished treatment about 2 years ago. I am glad to say I do not suffer any post tx symptoms but many do. YOu can check the archives for lots of threads. You asked when I knew? Probably about 10 weeks after treatment when I had a blood workup and had elevated liver enzymes. My 3-month post pcr proved that I had relapsed. I am still undecided as to what to do since I hve little liver damage. Good luck on your 2 year post PCR test. frijole
portann
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portann
Female
Member since Jul 2008
Nov 08
How are you doing these days? My time here since July has both flown by and dragged. I'm now halfway through and had some severe bone pain along the way. I was told it was caused by edema of the bone marrow putting internal pressure on my bones, especially the long ones. It happened right after my neutrophils rose on their own (without neupogen). Any changes in your situation concerning lingering post-tx sx? Thanks for writing me. It's really nice to hear from you.
headshop
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headshop
Male, 53 years
Reidsville - NC
Member since Mar 2008
Mood: headshop No matter what, gotta be grateful and tolerant
Journal Entry:   "I slept about 11 hours, glad Luke got me ..." [Read]
Nov 07
Thanks for your prayers and kind words. I looked at some hemoglobin levels and severe symptoms, though my level was between moderate and mild it did say that any sudden decrease would cause severe like symptoms which I don't think is understood in a lot of medical clinics. Peace and Health
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Andiamo1
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Andiamo1
Male, 68 years
CT
Member since Jun 2007
Mood: Andiamo1 is waiting for our first house guests

Male, 68, CT
LindaC1207
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LindaC1207
Female
MA
Member since Apr 2008
Journal Entry:   "My first shot was on Friday, September 26..." [Read]

Female, MA
TeeVee36
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TeeVee36
Female
Member since Dec 2007
Mood: TeeVee36 is getting anxious...
Journal Entry:   "I am finished with tx now and don't have ..." [Read]

Female
charm27
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charm27
Female
FL
Member since Sep 2007
Mood: charm27 is ok

Female, FL
merryBe
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merryBe
Female, 57 years
portland - OR
Member since Jul 2007
Mood: merryBe 13 down and 5 to go
Journal Entry:   "well....I thought I was ok with the call ..." [Read]

Female, 57, portland - OR
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