CMcH
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CMcH
Female, 48 years
CA
Member since Sep 2007
Mood: CMcH in low gear. I had my 12 week labs and will see my NP tomorrow. I think I need some rescue drugs again. Lately I'm a drag
Journal Entry: " Yesterday was one of my biggest breakdow..." [Read]
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Nov 11
Thank you for your reply. I did have the RA factor in my blood and had some joint pain before TX along w/Thyroid issues. It was all the autoimmune issues popping up that led me to TX.
Now 6 months into it and the weather getting colder I am so stiff and achy down to the bone. My WBC & RBC keep dropping out causing anemia. I have had a lot of Procrit shots to boost it up and my NP wants to drop my Riba and back off the Procrit. My Hemo stays around 10 sometimes up to 11.3 post rescue drugs.
My NP said she wants my bone marrow to make the RBC. So I was wondering if that contributes to the bones aching?
The RBC also transport oxygen to the muscles and brain. I think that is why my muscles burn ( esp. w/stairs) and contributes to the brain fog.
That is my take on it?
Hi Proud, don't believe I have ever met you. Yes, you are right - I did not clear and finished treatment about 2 years ago. I am glad to say I do not suffer any post tx symptoms but many do. YOu can check the archives for lots of threads. You asked when I knew? Probably about 10 weeks after treatment when I had a blood workup and had elevated liver enzymes. My 3-month post pcr proved that I had relapsed. I am still undecided as to what to do since I hve little liver damage. Good luck on your 2 year post PCR test.
frijole
How are you doing these days?
My time here since July has both flown by and dragged. I'm now halfway through and had some severe bone pain along the way. I was told it was caused by edema of the bone marrow putting internal pressure on my bones, especially the long ones. It happened right after my neutrophils rose on their own (without neupogen).
Any changes in your situation concerning lingering post-tx sx?
Thanks for writing me. It's really nice to hear from you.
headshop
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headshop
Male, 53 years
Reidsville - NC
Member since Mar 2008
Mood: headshop No matter what, gotta be grateful and tolerant
Journal Entry: "I slept about 11 hours, glad Luke got me ..." [Read]
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Nov 07
Thanks for your prayers and kind words.
I looked at some hemoglobin levels and severe symptoms, though my level was between moderate and mild it did say that any sudden decrease would cause severe like symptoms which I don't think is understood in a lot of medical clinics.
Peace and Health