Hi I am recently diagnosed with NBD and thought i would start this user group for people like me and also people at the start of trying to get some answers to their questions pre- diagnoses.
I felt the hardest thing for me over the years of limbo was knowing I had this and people thinking I was mad, So my first pearl of wisdom is seek the best neurologist you can afford and no matter where they are in the World go and see them as this will save you thousands and will also cut out all the crap one is faced with seeing under qualified people.
Normal people say "I just don't know when asked a question" Some Doctors are so arrogant they can not say this basic sentence it is beyond them. So it is easier to accuse the client of been insane even doe the medical evidence says otherwise.
So class lesson number one you know you, don't let anyone try and convince you otherwise,
My illness started with itchy hands and then progressed to mild mathematical disfunction, visual disturbance, and then after 2 years muscle twitching, tremor and weakness this is not all the time but most days.
I also get mouth sores and yes the unmentionables get the lesions as well, I have been tested for stiffer-less and VD more times than any porn star.
So lets get this rolling i am open to your questions !
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