Hi I am recently diagnosed with NBD and thought i would start this user group for people like me and also people at the start of trying to get some answers to their questions pre- diagnoses.
I felt the hardest thing for me over the years of limbo was knowing I had this and people thinking I was mad, So my first pearl of wisdom is seek the best neurologist you can afford and no matter where they are in the World go and see them as this will save you thousands and will also cut out all the crap one is faced with seeing under qualified people.
Normal people say "I just don't know when asked a question" Some Doctors are so arrogant they can not say this basic sentence it is beyond them. So it is easier to accuse the client of been insane even doe the medical evidence says otherwise.
So class lesson number one you know you, don't let anyone try and convince you otherwise,
My illness started with itchy hands and then progressed to mild mathematical disfunction, visual disturbance, and then after 2 years muscle twitching, tremor and weakness this is not all the time but most days.
I also get mouth sores and yes the unmentionables get the lesions as well, I have been tested for stiffer-less and VD more times than any porn star.
So lets get this rolling i am open to your questions !
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.