Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

1 - 6 (of 11905) questions

Blood clot in the brain??

KerriC1

After fighting to get a brain MRI ordered and performed, I got a call from my pcp saying that I had a dural venous sinus thrombosis. Just...

2 answers | 3 comments

Did anyone else have their cerebellar tonsils removed during decompression surgery?

reelman

My post-surgical notes show that my cerebellar tonsils were "buzzed" using bipolar cautery during my decompression surgery in 2012. I'm ...

1 answer | 1 comment

Advice for my daughter

Fionajane67

Hi, I am concerned about my daughter and have been for years. What ever it is it’s getting worse. As far back as I can remember Into her ...

5 answers | 6 comments

What is my next step? Neurologist?

concernedmom2020

My daughter has had migraines for a long period of time which were considered hormonal. We were both in a MVA in 2011 where I had cervica...

2 answers

Has anyone tried CBD for chiari pain?

lynnbrook177

I'm considering trying this for mild to moderate pain. I'm sure it wouldnt be enough for those with severe pain! Just curious to know yo...

3 answers | 2 comments

Craniocervical fusion, great results

lasel22

Hi everyone, I used to post here a lot back in 2014/2015 when I started having symptoms of chiari and finally had surgery in 2015. About ...

4 answers

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selmaS

Allentown, PA

supermum_ms

Australia

Red_Star

Queensland, Australia

KerriC1

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