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Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11821) questions
New to the forum, but have not seen anyone with this issue. I discovered that I had a Type 1 malformation when I was going over my medic...
I have chiari malformation 1 and I've been to so many doctors and specialists and they said I've taken all the medication possible to hel...
What will you be doing? Many wear purple to help spread awareness, all over the country there will be walks held, even Niagara Falls wil...
This is something we have done in the past and I felt since we have all new members that are active it might be fun to see what answers y...
Just met with the NS. I have adhesions adhering the tonsils and also on the patch and mesh plate causing a csf blockage. And mentioned en...
Today has been three weeks since my decompression surgery and I still have the pain I had before the surgery plus new pain like headaches...
This might be a bit random........I had decompression surgery 3.5years ago which was very successful, however since surgery I have a 'buz...
type 1 chiari malformation, does it get worse and is it heredity?
Hi folks, Two years ago my daughter had the chiari I decompression surgery. Before surgery, she did not have a gag reflex at all. Now, w...
I don't want to offend anyone here or anything I was just wondering. I myself don't take narcotic pain pills because I used to love them ...
Hello all, My mom had a cervical spine MRI last month and last October that both showed a 2mm herniation. i know that doesn't fit the ...
I had the brain MRI and it was read as “mostly normal” but while I was looking through the images I see what looks like the tonsils are p...
I have had two MRI's in the past 4 months for chronic migraines and neck issues. The first one was for the cervical spine, which reveale...
I have only been diagnosed with Chiari for about a year but have had the headaches and passing out for almost 10. I was trying to get on ...
I had decompression surgery in 2011 asking withmy cerebral tonsils taken out. Recently I found out I have vitamin d deficiency but I also...
After years of head aches and passing out spells I was diagnosed with Chiari 1 in March of this year. When I got the news, I didn't know...
I was diagnosed with a Chiari Type I in 1989. I had decompression surgery with durma opening in 1990. I was diagnosed with a melanoma in ...
Hi Everyone, Recently after a year of being tossed from GP to neurologist to Chronic Pain Consultant, I decided to pay for a full spinal...
Hey I was diagnosed with chiari 10 years ago after suffering horrible head aches they seemed to ease them selves until about a year ago I...
Good evening, I was in a wreck on June 15th. Someone hit me from behind going 70 mph when I was at a stand still. My head hit the stee...
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