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Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11866) questions
With an estimated 300,000 + people with Chiari - how come we don't hear of more celebrities and famous people with Chiari? I know MS is s...
..... now that the warmer weather is finally here.....or is it? The drastic weather changes , wam one day and cold the next, to all the ...
Hi guys- Surgery was Wednesday so I think things are going great for me compared to lots of the stories. My one issue that is driving m...
I have been having problems with my ears due to the weather. It is really humid here. Anyone else? They feel full. And i have alot of pr...
Hi please list your surgery dates here on this thread if you would like a Prayer Thread posted for any upcoming surgeries....list what ty...
i was born with ehlers danlos and spina bifida, I've had to have several surgeries. I have a history of times not being able to hold my h...
Hello I was diagnosed with CM about 6 years ago but was told decompression isn't needed until I can no longer deal with my symptoms. Sinc...
i have been getting migraines and now my whole head goes cold and tingles, is this something i should be worried about?
I'm wondering if anyone finds it painful and sensitive at the base of the skull. I use to put one of those doughnut pillows under my neck...
I do not know when, I just know it is closed and will see if I can get details.....some od the Drs have opened new locations and I will p...
This morning I woke up up my neck really sore and feels on fire and so does the back of my head. The throbbing pressure isn’t as bad firs...
Has anyone had burning in head on one side. It went away after rest?
am a 51 year old female. I have been having problems with memory, fatigue, numbness/tingling in (face,hands,arms,feet) 1-7 spasms everyd...
Inferior cerebellar tonsillar ectopia on my last MRI. For the past 2 yrs. I have had, pain in my neck and back, numbness tingling burning...
One of my symptoms is a hot flushing feeling in my entire body like burning up from inside. I cannot seem to identify any triggers. Has a...
3 months post op and 1 month ago diagnosed with a pseudo. I’m guessing it’s small but I have a very painful lump at the top of the incis...
I started having my first symptoms back in 2004. One thing that was specific about that year was I was in a terrible car accident tha...
Hey all , To those of you out there who have a TENS UNIT, Does it help ? and where did you get it? Make and model cost???? ANY feedbac...
My symptoms the lightheaded feeling, shortness of breath, and just feeling really unwell and disconnected are getting worse.. Is this sig...
I have a permanently clicky gratey neck, just as described here, moderate but permanent duzziness, occasional pressure in ears, no heada...
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