Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

1 - 7 (of 11946) questions

Welcome to the Chiari and Syringomyelia Forum...

selmaS

Please read this message before you post! This is a good place for info and comfort. If you are here, then you, or someone close t...

23 answers

Anyone has had these strange symptoms as well? Chiari Malformation...

Dedekinns

Hi, I am new to this. I was diagnosed with Chari back in 2019 and the neuro doctor I had thought nothing of it. My ENT was the one...

4 answers | 8 comments

Swollen Lymph Nodes After Surgery

lindseyk221

A few weeks ago, I had Chiari decompression surgery with a laminectomy and duraplasty. About 2 weeks after my surgery I noticed a lump ma...

4 answers | 1 comment

Chiari, Worsening symptoms..

Stroud5393

This morning I woke up up my neck really sore and feels on fire and so does the back of my head. The throbbing pressure isn’t as bad firs...

32 answers | 90 comments

Pediatric Specialist in WA or Portland, OR area?

laratterman

Trying to help a friend whose daughter just found out that her GD has Chiari. The GD is 15. They live in Washington State, but are near P...

does my mri suggest chiari and/or craniocervical instability?

tcgrant

i was born with ehlers danlos and spina bifida, I've had to have several surgeries. I have a history of times not being able to hold my h...

2 answers | 6 comments

Need some advice Chiari Malformation.

azztastic

Hey guys, I could use some advice. I had surgery for my chiari back in January, and I have had 10 more surgeries. They mostly been reexa...

2 answers | 5 comments

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selmaS

Allentown, PA

supermum_ms

Australia

Red_Star

Queensland, Australia

KerriC1

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