Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

1 - 20 (of 11866) questions

Celebrities with chiari

DAWGS

With an estimated 300,000 + people with Chiari - how come we don't hear of more celebrities and famous people with Chiari? I know MS is s...

15 answers | 7 comments

Hi ALL----- Just wondering how everyone is doing?

selmaS

..... now that the warmer weather is finally here.....or is it? The drastic weather changes , wam one day and cold the next, to all the ...

2 answers | 3 comments

Leg pain after surgery

zygy

Hi guys- Surgery was Wednesday so I think things are going great for me compared to lots of the stories. My one issue that is driving m...

12 answers | 2 comments

Barometric pressure.

Trace2002

I have been having problems with my ears due to the weather. It is really humid here. Anyone else? They feel full. And i have alot of pr...

2 answers | 3 comments

List your surgery date~~~ 2019

selmaS

Hi please list your surgery dates here on this thread if you would like a Prayer Thread posted for any upcoming surgeries....list what ty...

does my mri suggest chiari and/or craniocervical instability?

tcgrant

i was born with ehlers danlos and spina bifida, I've had to have several surgeries. I have a history of times not being able to hold my h...

1 answer | 6 comments

Managing Chiari symptoms with diet and exercise and???

MommyDeluxe

Hello I was diagnosed with CM about 6 years ago but was told decompression isn't needed until I can no longer deal with my symptoms. Sinc...

15 answers | 3 comments

9yrs post surgery

kyleejo1

i have been getting migraines and now my whole head goes cold and tingles, is this something i should be worried about?

1 answer

Pain at the base of the skull.

speyguy56

I'm wondering if anyone finds it painful and sensitive at the base of the skull. I use to put one of those doughnut pillows under my neck...

1 answer | 4 comments

Hi ALL...Just a FYI: The Chiari Institute in NY has been permanentley closed.

selmaS

I do not know when, I just know it is closed and will see if I can get details.....some od the Drs have opened new locations and I will p...

3 answers | 1 comment

Worsening symptoms..

Stroud5393

This morning I woke up up my neck really sore and feels on fire and so does the back of my head. The throbbing pressure isn’t as bad firs...

22 answers | 44 comments

Burning?

Trace2002

Has anyone had burning in head on one side. It went away after rest?

1 answer

Syrinx C5-T5 51 year old female

Sandredeez

am a 51 year old female. I have been having problems with memory, fatigue, numbness/tingling in (face,hands,arms,feet) 1-7 spasms everyd...

2 answers | 4 comments

What do I do?

speyguy56

Inferior cerebellar tonsillar ectopia on my last MRI. For the past 2 yrs. I have had, pain in my neck and back, numbness tingling burning...

1 answer | 4 comments

anyone experiencing entire-body hot flushing?

auntij2746

One of my symptoms is a hot flushing feeling in my entire body like burning up from inside. I cannot seem to identify any triggers. Has a...

26 answers | 2 comments

Pseudomeningocele draining?

KerriC1

3 months post op and 1 month ago diagnosed with a pseudo. I’m guessing it’s small but I have a very painful lump at the top of the incis...

2 answers | 4 comments

Symptoms for 15 year and getting worse.

Trace2002

I started having my first symptoms back in 2004. One thing that was specific about that year was I was in a terrible car accident tha...

4 answers | 12 comments

TENS UNIT

Devin215

Hey all , To those of you out there who have a TENS UNIT, Does it help ? and where did you get it? Make and model cost???? ANY feedbac...

9 answers | 1 comment

Don’t know what to do..

Stroud5393

My symptoms the lightheaded feeling, shortness of breath, and just feeling really unwell and disconnected are getting worse.. Is this sig...

32 answers | 110 comments

Checking out a diagnosis?

JanePendry

I have a permanently clicky gratey neck, just as described here, moderate but permanent duzziness, occasional pressure in ears, no heada...

2 answers | 4 comments

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Ask a Question

selmaS

Allentown, PA

supermum_ms

Australia

Red_Star

Queensland, Australia

KerriC1

Learn About Top Answerers

VISUAL SNOW UPDATE: 2018

John C Hagan III, MD, FACS, FAAO

04/18

2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder

John C Hagan III, MD, FACS, FAAO

03/18

TMJ – What a Pain in the Neck! “Elegant Ecology”

Hamidreza Nassery , DMD, FICOI, FAGD, FICCMO

01/18

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