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Chiari Malformation Community

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11839) questions
Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists, but found their na...
My symptoms the lightheaded feeling, shortness of breath, and just feeling really unwell and disconnected are getting worse.. Is this sig...
Hi all, please wear your purple January 7th, to help spread awareness and show support for our friend as she heads in for other surgery. ...
Most of us here are the ones who have to live with the affects and effects of Chiari Malformation. But some are here because at least at ...
Hey guys i have dysautonomia not POTS specifically but very similar. My pco just told me that having decompression surgery can actually w...
I know this sounds weird but does anyone elses neck click and grind? I have neck pain anyway with the chiari but my neck needs cracking ...
I have been with weird symptoms ranging from eye, to balance issues to weird heart rate and blood pressure spikes. Dr adada at cleveland ...
Hey, I’m 20 and had surgery 6 years ago. Helped hugely but never got rid of symptoms completely. Past couple years symptoms have started ...
Hello Ihave congenital hydrocephalus with vp shunt And now im suffering headache every day , back and shoulder pain , arms pain , dizz...
I had surgery August 30th 2017 my body rejected the plate so they had to take it out I'm still not got a plate all my symptoms are back t...
Dr Vorster spoke at the conference last year about the pitfalls, dx and treatment of Chiari Malformation. He sounds like a nice guy and a...
Hey, im currently 25 and 4-5 years ago i started to have a bunch of crazy symptoms going to a bunch of specialists. My vision is deff g...
Our daughter is 3 1/2 years old. She's been dx'd with Right Coronal Craniosynotosis (CVR and FOA to correct at 10 months), PFAPA (T&A see...
I was told by my doctor that I have what she believes low lying cerebellar tonsils and it was at 4mm,shes referred me to a neurologist wh...
New to the forum, but have not seen anyone with this issue. I discovered that I had a Type 1 malformation when I was going over my medic...
Hi everyone, Good day everyone hope you're doing great ! Not to make this long, my only symptom is that I get sever headaches at t...
Was wondering if anyone that has chiari or post-op decompression for chiari has had issues with their pituitary gland? I have had some re...
Had my surgery in 2013. Surgeon told me it would slow the progression not cure it. The neurologist I have now insists I’m cured. I was fe...
I am scheduled to have decompression surgery for my Chiari on October 28- 3 weeks from Tuesday. I am beginning to get a little nervous a...
My 17 year old daughter has just been diagnosed with syringomelia. Her consultant has requested a 4th MRI with contrast. I haven't really...
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