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Chiari Malformation Community
This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.
1 - 20 (of 11688) questions
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In 2008 I had a successful decompression surgery for Chiari Malformation and a Syrinx. Once I recovered, I have not had many issues at a...
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Hey every hope your having a wonderful day :D To make this short, my question is, Do people with chiari feel pain in their head, with ...
1 answer
  selmaS
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New here. 99.9999% sure my kids and I have Ehlers Danlos and also Chiari Malformation. My son 22 with Asperger disabled physically unable...
1 answer | 2 comments
  selmaS ,    steph4458,    selmaS
620923 tn?1452919248
This list is not a complete list of possible Specialists - This thread is here so Please continue to add your Drs names once you have b...
34 answers | 5 comments
  selmaS ,    steph4458
Avatar universal
Hi everyone, I've been diagnose with low lying cerebellum at the base of the foremen magnum, no syrinx thankfully, honestly I'm not sur...
1 answer
  selmaS
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I been in hospital since Thursday at 5 a.m. my legs collapsed 20 times. In 1 hour. I saw physical therapy and said I need a wheelchair. N...
1 answer
  selmaS
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I am not looking for a neurosurgeon, I am looking for a neurologist who specializes in Chiari... I want to find out everything I have rel...
2 answers | 4 comments
  FlowerGirl123,    selmaS ,    FlowerGirl123,    selmaS ,    FlowerGirl123
Avatar universal
Has anyone out there that had decompression surgery or no surgery, ever turn your head a little and your head pops? It sounds like a knee...
7 answers | 3 comments
  selmaS ,    RheaAnn,    selmaS ,    mom22greatgirls
Avatar universal
My sister has had several Neurological Surgeries here in New Brunswick Canada. I am not sure which type of Chiari she was diagnosed with,...
1 answer
  selmaS
Avatar universal
Hi, my name is Ellie, I’m 21 and live in the UK. I was diagnosed with Chiari Malformation when I was 15 years old and ever since then hav...
2 answers
  selmaS ,    selmaS
Avatar universal
I recently had a consult with Dr. Batzdorf at UCLA. Does anybody have experience with this doctor?
1 answer
  selmaS
Avatar universal
Is it common? What medications are safe to take? I had a bad experience with an SSRI. I've since been told by a Naturopath they aren't re...
1 answer
  selmaS
Avatar universal
Hello, I’m hoping to get some advice/help here. I just had decompression surgery for Chiari on October 27th (pfd, with C1 laminectimony, ...
1 answer | 3 comments
  selmaS ,    selmaS ,    Lynnlee03,    selmaS
Avatar universal
I already have had one CSF leak after the decompression surgery, they went in and fixed it surgically about 4 weeks ago. The last week th...
2 answers | 2 comments
  selmaS ,    Katiefaye1991,    selmaS ,    Katiefaye1991
Avatar universal
Hi Everyone. I am new to the site. I'm 47 and was finally diagnosed with a Chiari Malformation Type 1 by MRI in May 2017. I was told for ...
3 answers | 2 comments
  selmaS ,    Pickster1,    selmaS ,    Pickster1,    selmaS
Avatar universal
This si MRI report IMPRESSION: 1. Multilevel lumbar spondylosis on a background of congenital lumbar spinal stenosis and mild promine...
1 answer | 2 comments
  selmaS ,    patman817,    selmaS
620923 tn?1452919248
I am posting this here as it seems not many utilize the Health Pages and I want this to be seen by ALL!! The subject no one wants to h...
58 answers | 11 comments
  selmaS ,    sun_buns,    selmaS ,    BrunoP85,    BrunoP85
Avatar universal
Hi, I had my stitches removed Tuesday even though I had fluid buildup near incision. Last night I started leaking fluid through my incisi...
1 answer | 2 comments
  selmaS ,    BobbyRaines2017,    selmaS
Avatar universal
Hello All, I am a newly diagnosed female with Chiari - 12 mm. I have had symptoms for 10 years and have done everything possible between...
9 answers | 2 comments
  selmaS ,    Cman101
Avatar universal
I was wondering if anyone else experiences this symptom. I am diagnosed with chiari and I am also diagnosed with POTS/dysautonomia, so no...
1 answer | 2 comments
  selmaS ,    Dani2141,    selmaS
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