Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
1 - 20 (of 1901) questions
My 19 year old daughter has had POTS since she was born. She is currently on a beta blocker for her fast heart rate, increase her salt an...
My son is being treated for autonomic dysfunction. He is taking fludrocortisone for the dizziness. Every day since February, he has had...
29 answers |
I'm new to the group, and this is my first post. I'm a member of several dysautonomia-related FB pages, and it always seems my 21 year ol...
12 answers |
I was recently diagnosed with POTS and I was put on Coreg. Can Coreg cause muscle spasms? Is it the POTS? Something else entirely? I get ...
I was wondering can a person have pots and ncs at same time. As I research I see so many symptoms of pots in me even though diagnosis is ...
7 answers | 1 comment |
Hi All, So I just got back from the Cleveland Clinic in Ohio and I thought I'd share my experience and see if you all relate to any of...
14 answers | 1 comment |
Hi all, I'm a 21 year old female with POTS and PCOS. Recently I've been having some concerning and annoying symptoms. My left ear turn...
1 answer |
October 6th 2009 received flu shot with reaction within 1/2 hour to 45 minutes of shot..., blurred vision, tingling, numbness, short of b...
17 answers | 3 comments |
So, for some years now I've had unremarkable blood pressure, except that while my systolic has generally been measured to 105-130 mmHg, m...
"You just left it on the . . . where the food was." Does anyone else wind up saying nonsensical things like this because they get stuc...
17 answers | 3 comments |
Hi, I’ve had high blood pressure for 11 to 12 years since I was pregnant with my first child. About two years ago I started having g...
Hello! I was excited to find out that there is a dysautonomia forum out there! Isn't it great that we can be connected with other people ...
21 answers | 1 comment |
These fevers will hit me with no warning. All of a sudden I realize I'm freezing & burning up at the same time, I have such intense shiv...
Has anyone been able to prove their dysautonomia or autonomic dysfunction and get SSDI? I am battling with them and have been since Jan 2...
17 answers | 7 comments |
I take Metoprolol for control of HBP and to try to curb my heart rate and blood pressure during “episodes” of sympathetic activation. I’v...
I had a fairly sever syncopal episode ten years ago. I had a complete cardiac work up. I went through a number of tilt tests. I was ...
Hi! I have a few questions and I am hoping some can shed some light on this for me. I was having fainting and dizzy spells and had freque...
7 answers | 2 comments |
I was diagnosed with dysautonomia at the age of 14. I had a tilt table test shortly afterwards. My heart rate went up 39 beats. My doctor...
For some reason this didnt post the first time. I have been diagnosed with POTS after a series of tests carried out by my cardiologis...
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Hi, it's been a while since I last posted here, so please bear with me. I've been told I have POTS after a tilt table test in January. ...
12 answers |
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