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Dysautonomia (Autonomic Dysfunction) Community

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.
41 - 60 (of 1914) questions
Hi, I’ve had high blood pressure for 11 to 12 years since I was pregnant with my first child. About two years ago I started having g...
Hello! I was excited to find out that there is a dysautonomia forum out there! Isn't it great that we can be connected with other people ...
These fevers will hit me with no warning. All of a sudden I realize I'm freezing & burning up at the same time, I have such intense shiv...
Has anyone been able to prove their dysautonomia or autonomic dysfunction and get SSDI? I am battling with them and have been since Jan 2...
I take Metoprolol for control of HBP and to try to curb my heart rate and blood pressure during “episodes” of sympathetic activation. I’v...
I had a fairly sever syncopal episode ten years ago. I had a complete cardiac work up. I went through a number of tilt tests. I was ...
Hi! I have a few questions and I am hoping some can shed some light on this for me. I was having fainting and dizzy spells and had freque...
For some reason this didnt post the first time. I have been diagnosed with POTS after a series of tests carried out by my cardiologis...
  
Hi, it's been a while since I last posted here, so please bear with me. I've been told I have POTS after a tilt table test in January. ...
Hi, I just came back from Cleveland Clinic and I tested positive on the tilt table for POTS, but they also told me that it is sec...
Hello, I am trying to get pregnant with baby #2. I was diagnosed with POTS in November 2017. I am terrified that the pregnancy might ma...
In the last six months I have almost entirely lost my appetite. Without meaning to do so, I have lost 30 pounds. I'm not dreadfully thi...
I have been having this weard acid smell feeling in my nose, it co mes and goes, I have had it for about a month now. It feels as if wh...
Have you overcome a flu with POTS? Hi, I'm from Spain and my English is not very good, I'm sorry. I have POTS and I wanted to know ...
I am 13 years old, and in the 7th grade. A couple days ago I was diagnosed with dysautonomia. No one in my family has it but me, so it wa...
I was diagnosed with a nervous system imbalance called Dysautonomia in 2005. At the time my main problem (and the only symptom I really...
I've been dealing with a form of dysautonomia since 2006, it has now turned into pots. I'm scheduled for a pacemaker right before Thanksg...
Hey! I have a strange question for you guys... I have noticed that multiple people with POTS have feeding tubes... (Ranging from semi-per...
I have night time bradycardia where my heart slows way down when I am in REM sleep. Night time monitoring of my heart rate shows that it...
I've been dealing with a form of dysautonomia since 2006, with symptoms that are ringing in the ears, Raynaud's, insomnia, restless leg s...
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