Ehlers-Danlos Syndrome Group

This group is for members with any form of Ehlers-Danlos Syndrome.We have this group to share info and support for each other. Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. Individuals with EDS have a defect in their connective tissue. It is this tissue that provides support to many body parts such as the skin, muscles, ligaments and organs. The fragile skin and unstable joints found in EDS are due to faulty collagen. Collagen is a protein that acts like glue in the body adding strength and elasticity to connective tissue.
Do I Have Ehlers Danlos Syndrome? MY symptoms include: my fingers have that swan neck look to, and they become very hyper extended whenev...
I am farsighted and my eyes are very different. 2.5 prescription on right and .5 on the left. No matter what they do they can never make...
I have a teen daughter diagnosed by pediatric ortho and doctoral physical therapist to have JHS. It's not the simple variety as she has ...
So I guess I'll start with the fact that we have family history that I only found out about now after my child broke her 2nd bone in 5...
Hello. I am a 25 year old female with a large Chiari Malformation that was operated on in 2009. I recently was also diagnosed with Ehlers...
Hi, I'm 33. My dxs are eds, chiari, autonomic dysdunction, raynauds, basilar invagination, possible lupus, etc.... I am curious if anyone...
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