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Ehlers-Danlos Syndrome Group

This group is for members with any form of Ehlers-Danlos Syndrome.We have this group to share info and support for each other. Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders characterized by articular hypermobility, skin extensibility and tissue fragility. Individuals with EDS have a defect in their connective tissue. It is this tissue that provides support to many body parts such as the skin, muscles, ligaments and organs. The fragile skin and unstable joints found in EDS are due to faulty collagen. Collagen is a protein that acts like glue in the body adding strength and elasticity to connective tissue.
I am posting on here so that my information may be of help to others. My DD 14 years old was recently diagnosed with EDS type 3. I have...
I just went to see my rheum Dr. I haven't seen him since January and it was preop for Chiari Surgery. Really I left the appointment fee...
Hi all, just wondering how a doctor differentiates between hypermobility and EDS? I was diagnosed several years ago with hypermobility...
my nl is pretty sure that i have eds type 3. im seeing a rheumatologist this mon and if he confirms it than i will be refrerred to a gene...
My daughter was diagnosed with cranial instability and we get to see the spine Dr at the Children's Hospital next week. She is no longer...
The New York Times reported on this disturbing account of deaths from this energy drink also citing a 14 yr olds health may have had som...
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