Epstein Barr Virus (EBV) Community

This patient support community is for discussions relating to Epstein Barr Virus (EBV), chronic EBV, and infectious mononucleosis (mono).

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1 - 20 (of 1209) questions

Best Type of Specialist

pvn

Have had chronic EBV for two years. Numbers are consistenlty in 9,000 range! Have heard Infectious Disease Doctors just confirm you ha...

15 answers | 7 comments

Does Epstein-Barr cause Pulsatile Tinnitus

ozonejunkie2

I’ve had ringing in my head (Pulsatile Tinnitus) since Jan 2019. I hv been to ENT’s have gotten MRI, MRA, ultrasound of carotid arteries...

EPV, PULSATILE TINNITUS, HEARING LOSS

missouri_girl_77

I started having pulsatile tinnitus in my left ear back in the summer with hearing loss. My ENT ran a battery of test and I've had MRI' s...

1 answer | 1 comment

I am being treated with Valtrex it's working

LivingDead101

Since I last posted soon after, I saw an immunologist and an infectious disease Dr both told me there was no treatment for EBV. I guess I...

5 answers

Bed ridden for 6 mos

Vixies

I was bed ridden for 6 mos w/vertigo/dizziness/nausea. Saw holistic dr. who gave me combination of supplements to detox from heavy metals...

2 answers

Should a person with reactivated EBV get immunotherapy, i.e., allergy shots?

penmanj

I have been getting allergy shots for over a year, but very recently I have not been tolerating them well. My blood work shows mild reac...

Normal Symptoms?

Eastin

For 4 months (since around mothers day) I have felt terrible. I went to my PCP and was diagnosed with strep even though I never had a sor...

4 answers | 2 comments

Muscle contractions, burning and soreness

TiredinOhio

I have been diagnosed with several different conditions, one of which is Chronic Epstein Barr virus and chronic fatigue syndrome. I am e...

3 answers

Could I had ebv

Shnider223

I kissed a prostitute but not an open mouth kissing could I get ebv from this exposure?

1 answer

Has anyone had a swollen face from EBV for years after?

enr0010

In November of 2017, I contracted mono and pretty much every single day since, I've had a swollen face to some degree and fatigue. Someti...

Can EBV/Mono cause pains every now and then?

Geminiii

Hello, I was diagnosed with EBV/Mono last summer and ever since I get on and off throat pains.. Lymph node tenderness and general pains. ...

Reactivated EBV

twofishes

I was recently diagnosed with a reactivated case of EBV. On the CDC website is says that most people do not experience symptoms with rea...

10 answers | 2 comments

Could it be EBV? Constant Fatigue & Brain Fog

Mikef25

Age: 26 Weight: 173 lbs Height: 5'10" Lives in Connecticut Symptoms: Brain fog, fatigue, lightheaded, extreme thirst, reaction to...

4 answers | 4 comments

Are My symptoms indicative of EBV?

wolfpackjac

In January 2018 I started having flu-like symptoms. Flu test was negative so they sent me home and said it would pass. Well it didn't. ...

1 answer | 1 comment

At my wits end someone please help me!

Worrywell94

Briefly, my situation is that I became ill 3 weeks following an unprotected sexual encounter late September 18 (yes silly silly me). Due ...

3 answers | 11 comments

Does mononucleosis go away?

Lilybelle691

I’m 17 years old and in January of his year I came down with an unknown sickness. I was waking up every morning puking and by the afterno...

3 years after EBV

SerpentGarden

So to give a little background, back in January 2010 I was diagnosed with EBV and Mono, at 27years old. This stuck around for a few...

6 answers

Has anyone else suffered with EBV with persistent symptoms for a long time?

BSTOCKLEY

I began with feeling ill back in March after I came back from Budapest with sickness and diarrhoea (sorry for the too much info!!). Ever ...

BODY TWITCHING

mercygracious

HAS ANYONE ON HERE THAT HAS BEEN DX'D WITH EBV HAD SEVERE BODY TWITCHING AT TIMES? IF SO, WOULD LOVE TO HEAR FROM YOU!

24 answers | 2 comments

Chronic ebv, parvo virus b19 and cmv

Dustela

Three years ago I was diagnosed with ebv, parvo virus b19 and cmv Dr. Don't know what to do with me. Im stuck in place. Unable to get ans...

1 answer

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