Communities>Gastrointestinal Stromal Tumor Community (GIST)
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Gastrointestinal Stromal Tumor Community (GIST) Community

WELCOME TO THE COMMUNITY: This Patient-To-Patient Community is for discussions and support relating to Causes, Clinical Trials, Complications, Diagnosis, Living With Issues, Prognosis, Questions to Ask Your Doctor and Treatment Options for GIST.
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1 - 20 (of 47) questions
Avatar universal

What can cause low platelets low white blood cells and abnormal red blood cells

riverwind05
My blood work is bad. My platelets are up and down, mostly down. My white blood cells are extremely low, and something about my red cell ...
Avatar universal

How do you get the results of your CT scan?

Ebenezer2
I had a follow-up CT scan for my GIST on 9 May in the Royal Bournemouth Hospital but have been unable to get the result. I spoke to my GP...
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What to do after doctor says "you may have a small GIST" ?

RuthieJ18
Last December I had an endoscopy to try to find out why I have been having episodes of nausea and GERD-like symptoms. The endoscopy showe...
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GIST tumor

cag214
From July 04 - June 05 I had a very stressful job and developed severe stomach pains after eating. I lost about 30 pounds in only a coupl...
1 answer   
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Live problem

Kumarhhh
Hello sir I ask you frequently empty bowels, after eating food and some time come fat and bad smell in stool some time come come indi...
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why am I so gasy and neausea?

ACETOOLSAM
I have been at battle with my innards for over a year now. for the last month and a half I have been taking a ppi, which has not helped a...
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How quick is the reoccurring of GIST?

Hamma2
A 1.2cm gist tumor was found through endoscopy in the fundus part of my stomach. I had a surgery Oct 30 2017. After surgery the hematolog...
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Week old abdominal surgery is weeping on one end. Is that normal?

RupturedAppendix
Avatar universal Week old abdominal surgery is weeping on one end. Is that normal? RupturedAppendix My appendix ruptured sometime betw...
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GIST STAGE 4

candoll84
Hi. My husband has been battling GIST and last year had sugery to remove the tumor and was taking GLEEVEC to shrink the tumor.. an...
2 answers   
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Opdivo has stopped my Gist Tumor Growth and started it to shirk

garyguernsey
I was diagnosed with Stage 4 Gist Tumors in an in operable area in Feb 2015. Put me on Gleevec 800 mgs worked for a little over a year. N...
Avatar universal

About my FGP?

Harleew1228
Can anyone give me information on what I need to know about this? My biopsies from endoscopy came back. I have a benign fundic gland ...
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About my FGP?

Harleew1228
Can anyone give me information on what I need to know about this? My biopsies from endoscopy came back. I have a benign fundic gland ...
Avatar universal

Duration of Gleevec side effects

Andymano
My partner has had stomach gist removed in early 2012. They suspected it had ruptured before removal so they put her on Gleevec. After a ...
3 answers   
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Menstrual cycle after gist removal

nesard
Hello, I'm 34. Just wondering if anyone has had their periods play up after a gist removal? My was removed 8 months ago and now my ...
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Abdominal Pain

cpad007
I've suffered from abdominal pain attacks for about 10 years (I'm 39). I get anywhere from 2-5 attacks per year. The pain is located un...
2 answers   
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operate gist tumor!?

bjerke
Hi. can someone answer me this question... My dad has gist cancer. he removed the first tumor 6 years ago. and this last year he is been...
1 answer   
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Abdominal attacks, severe but infrequent ~

Momo70
Hi , I'm a 41 yr. old female in very good health and no pre - existing medical conditions. I have had severe abdominal attacks since I ...
2 answers   
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Gist tumor

Tbelvin
I had a gist tumor removed from my stomach 3 weeks ago. I had been progressing well, but last week, I began having a stabbing pain in my ...
1 answer   
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9 lb tumor in 2008 removed from stomach

sandy235
My husband has been on gleevec since a very large tumor was removed 5 years ago. His latest CT scan showed 4 tumors, one being larger. ...
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PONATINIB TRIAL FOR GIST

johnp213
curious if anybody has started the trial and how they were progressing.
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