Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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1 - 12 (of 211) questions

remedies for severe scalp irritation from men’s toupee.

Kadenstan16

When my head gets hot it feels like the toupee is burning me. Does anyone know of any remedies?

Can I get a spray tan?

rachelrox101

I’m 18 and have very mild IP (a few misshapen teeth, skin discoloration, etc). My prom is in two weeks and I’m thinking about getting a s...

family planning

smashrck

I am 26 and I have IP. I was diagnosed at birth, due to the rashes. My parents and I participated in a medical study in Washington State....

26 answers | 3 comments

Any severe issue with nails?

Charise47

I was diagnosed with IP at or near after birth. I have had skin cancers that have gotten into bone causing Drs to advise me to have ampu...

Incontinentia pigmenti

AmberCov198801

My step daughter was born with this condition and unfortunately it has affected her teeth. She only has 5 baby teeth and a possibility of...

Male infant with IP

babechristian

My grandson has had preliminary diagnosis that he has IP. He was born with some small blisters on the back of his calf. They have subside...

16 answers

Anyone had Gender bloods and CVS testing

Griffy82

Interested to find out the outcome

Nine months pregnant n scared:(

busywrkrbee

About about to deliver my baby girl that has IP and I'm scared about the caring for blistering and diapering her. Any help is greatly app...

Incontinentia Pigmenti & pregnancy...

amithia24

Was diagnosed at birth with IP, only have a few symptoms now. Frizzy hair, cone teeth, and the marble like swirls on my calf muscles. I...

6 answers

CVS

ksaams

To anyone who has had CVS to diagnose IP during pregnancy, how long did it take to get your results back? Thank you!

6 answers

IP other suffers?

Lajdc

Hi i am 19 and have IP i have a little girl who is three and is not a sufferer she has no signs of it what so ever i on the other hand ha...

Any symptoms at adult age?

veronica2104

Hi, I'm a 23 year old with IP. I think this forum is great, I'm actually glad to know that there are many people with IP out there. Now m...

9 answers

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VISUAL SNOW UPDATE: 2018

John C Hagan III, MD, FACS, FAAO

04/18

2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder

John C Hagan III, MD, FACS, FAAO

03/18

TMJ – What a Pain in the Neck! “Elegant Ecology”

Hamidreza Nassery , DMD, FICOI, FAGD, FICCMO

01/18

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