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Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.
1 - 12 (of 211) questions
When my head gets hot it feels like the toupee is burning me. Does anyone know of any remedies?
I’m 18 and have very mild IP (a few misshapen teeth, skin discoloration, etc). My prom is in two weeks and I’m thinking about getting a s...
I am 26 and I have IP. I was diagnosed at birth, due to the rashes. My parents and I participated in a medical study in Washington State....
I was diagnosed with IP at or near after birth. I have had skin cancers that have gotten into bone causing Drs to advise me to have ampu...
My step daughter was born with this condition and unfortunately it has affected her teeth. She only has 5 baby teeth and a possibility of...
My grandson has had preliminary diagnosis that he has IP. He was born with some small blisters on the back of his calf. They have subside...
Interested to find out the outcome
About about to deliver my baby girl that has IP and I'm scared about the caring for blistering and diapering her. Any help is greatly app...
Was diagnosed at birth with IP, only have a few symptoms now. Frizzy hair, cone teeth, and the marble like swirls on my calf muscles. I...
To anyone who has had CVS to diagnose IP during pregnancy, how long did it take to get your results back? Thank you!
Hi i am 19 and have IP i have a little girl who is three and is not a sufferer she has no signs of it what so ever i on the other hand ha...
Hi, I'm a 23 year old with IP. I think this forum is great, I'm actually glad to know that there are many people with IP out there. Now m...
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