Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.

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1 - 20 (of 210) questions

Can I get a spray tan?

rachelrox101

I’m 18 and have very mild IP (a few misshapen teeth, skin discoloration, etc). My prom is in two weeks and I’m thinking about getting a s...

family planning

smashrck

I am 26 and I have IP. I was diagnosed at birth, due to the rashes. My parents and I participated in a medical study in Washington State....

26 answers | 3 comments

Any severe issue with nails?

Charise47

I was diagnosed with IP at or near after birth. I have had skin cancers that have gotten into bone causing Drs to advise me to have ampu...

Incontinentia pigmenti

AmberCov198801

My step daughter was born with this condition and unfortunately it has affected her teeth. She only has 5 baby teeth and a possibility of...

Male infant with IP

babechristian

My grandson has had preliminary diagnosis that he has IP. He was born with some small blisters on the back of his calf. They have subside...

16 answers

Anyone had Gender bloods and CVS testing

Griffy82

Interested to find out the outcome

Nine months pregnant n scared:(

busywrkrbee

About about to deliver my baby girl that has IP and I'm scared about the caring for blistering and diapering her. Any help is greatly app...

Incontinentia Pigmenti & pregnancy...

amithia24

Was diagnosed at birth with IP, only have a few symptoms now. Frizzy hair, cone teeth, and the marble like swirls on my calf muscles. I...

6 answers

CVS

ksaams

To anyone who has had CVS to diagnose IP during pregnancy, how long did it take to get your results back? Thank you!

6 answers

IP other suffers?

Lajdc

Hi i am 19 and have IP i have a little girl who is three and is not a sufferer she has no signs of it what so ever i on the other hand ha...

Any symptoms at adult age?

veronica2104

Hi, I'm a 23 year old with IP. I think this forum is great, I'm actually glad to know that there are many people with IP out there. Now m...

9 answers

Teeth and IP

Beckymatt

My daughter was born in April 2015. Around 3 days old I noticed a blister like rash under her armpit after a pediatrician visit, then a ...

who has IP?

chocolateswirls

hello everyone! :) my name is Wendy, I am 23 years old. I just now left the dermatologist and was properly diagnosed with IP. Ever since ...

14months and no teeth

lutefisk51

My daughter in law and granddaughter both have IP. The baby is now 14 months and has yet to show any baby teeth. They said at 15 months t...

Does anyone with IP have more than 1 healthy boy?

Ang623

I have 1 healthy son that is now 12, had 1 miscarriage at 9 weeks, and 1 stillbirth of a male at 20 weeks. Does anyone with IP have more ...

1 answer

When moms carrying a boy with IP usually miscarry?

shadyridr

We told our doctor we wanted to get an amnio to determine if the baby has IP. My wife already got tested and the mutation was identified ...

18 answers

Is there anyone else who has a child with pretty much all the symptoms of IP?

NathalyLorraine

Hi! I have a 2 year old little girl who was born with IP. I had my daughter at 18 in January 2010. I took her home the following day agt...

3 answers

dr said, my baby has hypomelanosis of ito

eveesmom

My dr said my baby has hypomelanosis of ito. I was told not to worry about it, then a week ago she started having what looks like a siezu...

2 answers

what do seizures around 1 week old mean?

michelemomof3

Hi my daughter was diagnosed with IP at 2 weeks old, she is now 8 weeks. She had the blisters the day after she was born and all the doct...

1 answer

IP diagnosed 2012

PreemieMom2002

I never heard of IP until 2012 when my 10 yr old daughter had to go see a Cranifacial Clinic at the local Children's Hospital in British ...

1 answer

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VISUAL SNOW UPDATE: 2018

John C Hagan III, MD, FACS, FAAO

04/18

2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder

John C Hagan III, MD, FACS, FAAO

03/18

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Hamidreza Nassery , DMD, FICOI, FAGD, FICCMO

01/18

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