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Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.
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1 - 6 (of 211) questions
Avatar universal

remedies for severe scalp irritation from men’s toupee.

Kadenstan16
When my head gets hot it feels like the toupee is burning me. Does anyone know of any remedies?
Avatar universal

Can I get a spray tan?

rachelrox101
I’m 18 and have very mild IP (a few misshapen teeth, skin discoloration, etc). My prom is in two weeks and I’m thinking about getting a s...
Avatar universal

family planning

smashrck
I am 26 and I have IP. I was diagnosed at birth, due to the rashes. My parents and I participated in a medical study in Washington State....
26 answers | 3 comments   
Avatar universal

Any severe issue with nails?

Charise47
I was diagnosed with IP at or near after birth. I have had skin cancers that have gotten into bone causing Drs to advise me to have ampu...
Avatar universal

Incontinentia pigmenti

AmberCov198801
My step daughter was born with this condition and unfortunately it has affected her teeth. She only has 5 baby teeth and a possibility of...
Avatar universal

Male infant with IP

babechristian
My grandson has had preliminary diagnosis that he has IP. He was born with some small blisters on the back of his calf. They have subside...
16 answers   
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Will refractive surgery such as LASIK keep me out of glasses all my life
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VISUAL SNOW UPDATE: 2018
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2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder
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