Incontinentia Pigmenti Community

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I’m 18 and have very mild IP (a few misshapen teeth, skin discoloration, etc). My prom is in two weeks and I’m thinking about getting a s...
I am 26 and I have IP. I was diagnosed at birth, due to the rashes. My parents and I participated in a medical study in Washington State....
I was diagnosed with IP at or near after birth. I have had skin cancers that have gotten into bone causing Drs to advise me to have ampu...
My step daughter was born with this condition and unfortunately it has affected her teeth. She only has 5 baby teeth and a possibility of...
My grandson has had preliminary diagnosis that he has IP. He was born with some small blisters on the back of his calf. They have subside...
Interested to find out the outcome
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