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Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.
7 - 12 (of 211) questions
Interested to find out the outcome
Was diagnosed at birth with IP, only have a few symptoms now. Frizzy hair, cone teeth, and the marble like swirls on my calf muscles. I...
To anyone who has had CVS to diagnose IP during pregnancy, how long did it take to get your results back? Thank you!
Hi, I'm a 23 year old with IP. I think this forum is great, I'm actually glad to know that there are many people with IP out there. Now m...
We told our doctor we wanted to get an amnio to determine if the baby has IP. My wife already got tested and the mutation was identified ...
Hi! I have a 2 year old little girl who was born with IP. I had my daughter at 18 in January 2010. I took her home the following day agt...
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