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Incontinentia Pigmenti
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Questions
Resources
Baby with IP having unstoppable Seizures
AmelieMariaSayles
My newborn baby girl has been diagnosed with IP. She appears to have the worst type of IP - the extremely rare form of IP which causes CN...
7 answers
When is one safe from eye problems from IP
lanekmb
My daughter is 13yo with IP. I am wondering how long we should be watchful of eye problems developing due to IP. She has gotten yearly ey...
4 answers
Help Please
MissMyra1984
Hi there my daughter who is 4 was diagnosed with IP @ birth! I live in in Winnipeg, Manitoba and just wondering if anyone else in Manitob...
3 answers
Multiple Miscarrage
Moosespb
Anyone here had multi miscarrages related to IP or at least feel that they are IP related? Im pregnant with twins but Ive had fetal demis...
9 answers
IP and hypothyroidism in 16 year old. Any correlation?
britsmom288
My daughter stopped menstrating, for about 4 years now. Found that she is hypothyroid. Doctors we have seen do not know anything about IP...
3 answers
why mri
mono87
twice now i heard of babies with ip getting mri why is this? what are they looking for and do all kids with ip have to get them done? an...
3 answers
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