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Incontinentia Pigmenti Community

This patient support community is for discussions relating to incontinentia pigmenti, genetics, and breast, dental, eye, hair, nail, nervous system and skin problems.
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19 - 24 (of 211) questions
Avatar universal

incontinentia pigmenti

310571
can men pass ip on to there children
2 answers   
1737603 tn?1310668304

Baby with IP having unstoppable Seizures

AmelieMariaSayles
My newborn baby girl has been diagnosed with IP. She appears to have the worst type of IP - the extremely rare form of IP which causes CN...
7 answers   
Avatar universal

When is one safe from eye problems from IP

lanekmb
My daughter is 13yo with IP. I am wondering how long we should be watchful of eye problems developing due to IP. She has gotten yearly ey...
4 answers   
Avatar universal

Help Please

MissMyra1984
Hi there my daughter who is 4 was diagnosed with IP @ birth! I live in in Winnipeg, Manitoba and just wondering if anyone else in Manitob...
3 answers   
482672 tn?1217108272

Multiple Miscarrage

Moosespb
Anyone here had multi miscarrages related to IP or at least feel that they are IP related? Im pregnant with twins but Ive had fetal demis...
9 answers   
Avatar universal

IP and hypothyroidism in 16 year old. Any correlation?

britsmom288
My daughter stopped menstrating, for about 4 years now. Found that she is hypothyroid. Doctors we have seen do not know anything about IP...
3 answers   
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Expert Activity
233488 tn?1310693103
Will refractive surgery such as LASIK keep me out of glasses all my life
John C Hagan III, MD, FACS, FAAOBlank Dec 31
233488 tn?1310693103
VISUAL SNOW UPDATE: 2018
John C Hagan III, MD, FACS, FAAOBlank 04/18
233488 tn?1310693103
2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder
John C Hagan III, MD, FACS, FAAOBlank 03/18
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